Diagnosed with sarcoma? Let's share

Posted by Colleen Young, Connect Director @colleenyoung, Jun 21, 2017

Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.

As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.

Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?

Interested in more discussions like this? Go to the Sarcoma Support Group.

jeffk | @jeffk | Jun 21, 2017

I was diagnosed with Laryngeal Chondrosarcoma on July 12th, 2016. Fortunately after a very thorough diligence process which involved seeking out the best of the best surgeons across the country we found Dr. Eric Moore at Mayo. He was the only one out of eight doctors that was confident he could remove all of the cancer, rebuild my cricoid cartilage and maintain all of my functionality. On February 21, 2017 following five surgeries my trach was removed and I am cancer free and well on my way to a full recovery. My voice will never be the same given the tumor impaired my voice box and paralyzed on of my vocal cords. If there is any way in which I can add value I am happy to. Gratefully, Jeff

Colleen Young, Connect Director | @colleenyoung | Jun 21, 2017

Hi @me67 @udderplace @brinys @deborahe @jeffk @Laydeewinx @sheila2005 @funkynotes @zshivaughn @jacobito @swstar,
I'd like to invite you to the new discussion group for people living with sarcoma. What type of sarcoma have you been diagnosed with? Are you currently in treatment or finished with treatment?