Diagnosed with sarcoma? Let's share

I just was diagnosed with a myxoid liposarcoma in my left thigh. I am starting radiation today. I am so glad to hear of your 6 year survival anniversary! I look forward to celebrating mine. Did your recurrences happen in the same area?

Hi my name is Chris and I am new to all of this cancer stuff. I was diagnosed with a myxoid liposarcoma in my left thigh last month and am starting my first radiation treatment at Mayo today. I am excited to get on the journey to healing. I am looking forward to hearing from you any tips and tricks to making these next 5 weeks go by quickly and as painlessly as possible. Thanks in advance for any advice.

Hello Deb, I hope this finds you well. I am quickly approaching my 1 year anniversary of the major removal and reconstruction surgery which was performed on October 24th, 2016. I have been blessed in recovery and am doing very well. As this day approaches I thought of your journey and wanted to check in to make sure you are well and walking at pace! Have a great day! Jeff

I'm so sorry your wife has to be in such great pain. I don't understand that with all the advances with controlling pain why anyone should be walking around with severe dehabilating chronic pain. I hope that the pain pump works to take the pain away so she can get through her treatments and get cured. I can only imagine how helpless you feel when she's in such pain. Sending you and her positive vibes and prayers to get through it all successfully.

Thank you for the positive thoughts. Yes, I will do my best to update on treatment and progress.

Thanks so much for info and also so glad you are doing great:) It's always encouraging to hear the success stories. We asked the one oncologist we've seen about proton therapy and he said it might be possible but most success is with tumors that are very defined in shape. Curious if your cancer was on the iliac or hip bone or somewhere else? Thanks

My wife has Osteosarcoma and is only 32. It really hurts to see her in so much pain. Dr. Rushing at IU Indianapolis is an expert in this type of rare cancer. This Dr. is amazing how he explains the type what it does and what to expect. According to statistics and research IU is the #1 hospital for Cancer in Indiana. IU is also connected to several hospitals Riley, St. Jude, and others. Never seen a hospital so huge. All I know from my experience in UI they are great people who care for my wife. They have compassion and empathy towards there patients. All you can do is be there for them and stay strong. I try as much as possible but at times I break down and cry to see my wife suffer this why. It even hurts more for her to ask WHY ME? The pain is so excruciating for her she asked them to just cut her leg off. I am optimistic the pain pump will work and they can continue with chemo to beat this.

Heather is a loving caring person, and has one biological child Nicole age 12, and three other step children, Joe, Dillon and Brittany. Over the years she complained about her right leg bothering her. Many times she lay in bed crying because the pain was so unbearable. After 7 visits to the ER for the same leg pain. On January 2nd just a few days from her birthday she was diagnosed with cancer. She was transferred to IU cancer center the following days from Porter Manorial. There we would learn the type of cancer she had. A biopsy was done but no result could be given because of the rarity of the type of cancer. We later learned she had Osteosarcoma a rare bone cancer. To make things even worse she had to undergo 10 hours of surgery on February 14th 2017. No much of a Valentines present huh? They had to remove 15 centimeters of her femur bone and also replaced the hip ball.

Recommended treatment is chemo therapy to shrink the tumors. About two months into therapy we learned that they had found 3 more masses in the right lung, Then again another mass in her pelvic area. I feel so helpless for her because of the pain she has to endure on a daily basis, all she does is lay and cry in excruciating pain from the bone cancer. I even asked the doctors why is she in so much pain? They all say "The Bone Cancer". Therefore it constant trips to the ER to try and get her Acute pain under control. Pain specialist are now trying to get her comfortable until the pain "pump" can be put in on the 21st. of September.

@c945105

Your husband sounds like a person with remarkable resiliency! We all wish him well.

Will you please keep us updated on how he is doing?

Teresa

@me67

Your Mayo experience sounds wonderful! I appreciate your sharing your story with our Connect Members.

Teresa