Diagnosed with sarcoma? Let's share
Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.
As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.
Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?
Interested in more discussions like this? Go to the Sarcoma Support Group.
Ellen here. I have Synovial sarcoma which started in my calf, was removed and am now showing a growing spot in the lower right lobe of my lung. Anyone else with Synovial sarcoma spreading to the lung?
Soon see plastic surgeon Monday
Oh, an open wound anywhere is hard to manage. But this must be particularly hard if you're not able to sit. How soon might you get surgery?
Luckily 30 days of radiation but still open would and looking at flap surgeru
Welcome @celeste59. That must be an uncomfortable place to have treatment and to recover. What treatments have you had? How are you doing?
Stage 2 high grade sacoma in my buttox
so confusing!
I am waiting to see if chemo and radiation made a difference.
It is truly a mind blowing time of life!
Blessings to you!
Thank you!
I try to get to the Y 3-5 days a week.
It is a tough day like today when I feel fatigue and queasy.
Great to connect!
I have stage 4 Leiomyosarcoma. Football-size tumor mostly removed. Nodules on right lung and liver. Starting chemo soon. Live north of Mpls-St Paul Mn.
~ Mary