Diagnosed with sarcoma? Let's share

Hi @rociovega, I would ask the pediatrician for referrals, oncologists for children, if available. Take it easy and study options. My friend (with another cancer, non curable) heard from a neighbour her mother had gone to a Doctor "xx" and recovered. I checked his name with friends and my clinical doctor. They all said that guy is a NO NO. He gives placebo and sells "hope". So thank god I could stop that nonsense.
Desperate is not good.
Go to doctors referred by doctors you trust.
Hope this helps, get two or three opinions. Sending all my love.

I appreciate your attention and any guidance regarding this disease. We are desperate.

hello, my name is Rocio, I am from Queretaro in Mexico, and I found this group searching through the internet since we are in shock and desperate looking for an answer or guidance because we do not know where to turn for this situation. My 4-year-old little cousin has been diagnosed with osteosarcoma in her bones, the news has been devastating, but according to the studies that have been done, the spots have appeared quickly on both of her legs. I would like help on where to go, in Mexico attention is precarious and in the country's capital the wait is very long for an appointment, I think we should act as soon as possible but we feel our hands are tied.

Hi Rocio, I am in another group, for a friend of mine, I am from Argentina. No idea about medicine in Mexico. There are hospitals in Mexico DF. I would ask the pediatrician for suggestions.

hello, my name is Rocio, I am from Queretaro in Mexico, and I found this group searching through the internet since we are in shock and desperate looking for an answer or guidance because we do not know where to turn for this situation. My 4-year-old little cousin has been diagnosed with osteosarcoma in her bones, the news has been devastating, but according to the studies that have been done, the spots have appeared quickly on both of her legs. I would like help on where to go, in Mexico attention is precarious and in the country's capital the wait is very long for an appointment, I think we should act as soon as possible but we feel our hands are tied.

Hi Marty, @msannino. Some difficult choices to be made. How did the second opinion go? Did they recommend surgery first?

I’m a 69 year old male in otherwise generally good health. In September I was diagnosed with Liposarcoma of the Retroperitoneal area with a 6.1cm x 6.7cm tumor abutting top of my left kidney. Telltale symptoms (fatigue, night sweats, dry cough) began in April. The diagnosis was made at Fox Chase Cancer Center of Temple University Health Systems in Phila. The pathology report after biopsy of tumor indicates a subtype of well-differentiated cells, though the Surgeon Oncologist said there is potentially some de-differentiated cells showing up in surrounding fat. His recommendation is five weeks (25 days) of radiation on the tumor area, followed by 5 weeks of recovery, then open surgery to remove the tumor mass, left kidney and possibly the spleen. The left kidney is currently healthy and is only abutted by the tumor making it close in proximity. Per the surgeon, the reason the kidney would be removed is due to the damage caused by the radiation treatments. In my meeting with the Radiation Oncologist, I asked if the radiation treatment can be made precise enough to treat the tumor and prevent/minimize damage to the left kidney. She said that she would adjust the target area based on what the surgeon’s plan was regarding the margin he plans to remove (full kidney or partial kidney). My hope is that both radiologist and surgeon can agree to work to spare a portion of the left kidney, but I don’t think the surgeon is inclined to change his plan. I am going for a second opinion at Penn Medicine Sarcoma program this coming week, but Fox Chase doctors bizarrely told me in advance that they expect I will be told by the Penn doctor that he recommends surgery up front, without radiation treatment. If so, that demonstrates how rare this cancer is, where two leading cancer treatment centers in the same city do not agree on the same treatment protocol. If the second opinion recommendation by Penn Medicine is for surgery up front as predicated by Fox Chase doctors, I may be facing the need for a possible third opinion.