Diagnosed with sarcoma? Let's share
Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.
As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.
Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?
Interested in more discussions like this? Go to the Sarcoma Support Group.
Hi. I am sorry to hear about your latest health development. If I can be of any help, please reach out. Here is the Memorial Sloan Kettering sarcoma cancer support group application link. It’s free and takes a few weeks for approval:
https://www.mskcc.org/cancer-care/patient-education/sarcoma-group
Please share link
Just discovered growths on lungs after abdominal growths which are more stable after radiation and chemo.
Getting more radiation and chemo for growth on lungs.
Try Galisano children's hospital in Rochester, NY?
Did not sign in but now I have the knack, maybe next time.
Hi @bicycle3, I'm sorry I didn't see your message until now. I hope you were able to eventually sign into the Zoom ostomy meeting. It's still happening now. Please Join Zoom Meeting here
https://mchealth.zoom.us/j/99659580974?pwd=VUdyZ0dQVmdxd3lCd0s4S0JzbnVvdz09
Please contact Candy Boyes, ARZMCOSTOMYSG@mayo.edu if you need help in the future.
Having trouble signing in to participate in zoom at 9pm for ostomy meet up.
Scan showed not much change in 3 months time.
Doc will explain next Monday.
Hopefully the rigid calcification will limit growth?!?!
Thanks a lot!!