Diagnosed with sarcoma? Let's share

I have radiation induced Angiosarcoma of the breast. Surgery in 2019 and 2021. In March of 2023 it metastasized to the lung. It’s been stressful to say the least. Being a rare cancer, it’s been hard to connect with others with this type of cancer. I am currently taking paxitaxol, used for other cancers, but having sensitivities to it. The first one was severe and was very traumatizing. More Benadryl was given and things settled. Treatments 2,3,4 and 5 were all good but on the 6th one I had another reaction which was scary but less severe. The only difference with number 6 treatment was that the premeds were given in a different order.........hydrocortisone then dexomethazone. The other times the dexomethazone was first. Does anyone know if that can make a difference, Maybe to my body it does. I will see my Dr before next treatment, so that will definitely be part of our conversation. Just wondering about others with a sensitivity to paxlitaxol and their experiences, which I understand is common. Thank you for any input you may have. One day at a time.

Anyone been diagnosed with "Low Grade Fibromyxoid Sarcoma"?

Thank you for following up with me. I have been on the fence about it. I have been thinking about getting a 2nd opinion.

I just want to sleep and drink my juice

I was dx with angiosarcoma in the skin on my left cheek in Fall of 2012. I had cancerous tissue removed and 30 radiation treatments in Jan. of 2013. I had no reoccurrence until this year. It showed up adjacent to where it was before but closer to my eye and nose. Surgery gave clear margins except near lacrimal duct. I will have more tissue in that area removed next. Reradiation is off the table and I am wondering is any places are using adjunct therapies in my situation. CT and MRI show no metastasis to any other area.

Also for info below -

A lipoma is a non cancerous (benign) lump that forms due to an overgrowth of fat cells. You can get a lipoma anywhere on the body where you have fat cells. Lipomas are not cancer. Cancerous tumours of the fat cells are called liposarcomas.

Hi
Not sure if you’ve seen my earlier post but my Dad had a ‘benign’ skin tag removed from his back...13 months later has multiple lung metastasis and now diagnosed as sarcoma (UPS). He is currently undergoing Trabectadin chemo. Please make sure you ask for a CT scan to check your lungs (or PET scan even better). I don’t want to scare you but this is the exact misdiagnosis that my Dad had - told it was a benign atypical fibroxanthoma but it is UPS which comes with a much worse prognosis. They will argue it is very difficult to distinguish between the two but please go for follow up and I wish you all the very best

It's been just over a year since I finished treatment for Ewings Sarcoma and they said there was no evidence of disease. I'm still constantly anxious that it's going to come back. Especially since with my age group and location, the overall 5-year rate was relatively low with a significant chance of recurrence. I remember when they initially found it I could not stop overanalyzing and researching. I spent countless hours looking at studies and articles but all that did was make me more anxious. How do you deal with all the anxiety?

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Do anyone knows if Zantac Medication cause GIST CANCER