1. < Sarcoma
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Diagnosed with sarcoma? Let's share

Posted by Colleen Young, Connect Director @colleenyoung, Jun 21, 2017

Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.

As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.

Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?

Interested in more discussions like this? Go to the Sarcoma Support Group.

Terriebikes | @bicycle3 | Nov 14, 2022
In reply to @marymaurer "Husband with Chondrosarcima will begin clinical trials soon at Jefferson Hospital in Philadelphia. There are other..." + (show)
@marymaurer

Husband with
Chondrosarcima will begin clinical trials soon at Jefferson Hospital in Philadelphia.
There are other places offering these trials too. Check it out

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What is Chondrosarcoma?

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marymaurer | @marymaurer | Nov 14, 2022

Husband with
Chondrosarcima will begin clinical trials soon at Jefferson Hospital in Philadelphia.
There are other places offering these trials too. Check it out

REPLY
1 reply
Terriebikes | @bicycle3 | Nov 13, 2022
In reply to @bicycle3 "Many thx First chemo in the books. The couch is calling me?😊" + (show)
@bicycle3

Many thx
First chemo in the books.
The couch is calling me?😊

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Left hip is more sore now. Maybe from.inctrased yoga,!?!?

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mar4 | @mar4 | Nov 12, 2022
In reply to @mkoebs "Keeping you in my prayers! I hope all goes well. Hang in there!!" + (show)
@mkoebs

Keeping you in my prayers! I hope all goes well. Hang in there!!

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Thank you. And I wish you good luck also

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Terriebikes | @bicycle3 | Nov 11, 2022
In reply to @mkoebs "Keeping you in my prayers! I hope all goes well. Hang in there!!" + (show)
@mkoebs

Keeping you in my prayers! I hope all goes well. Hang in there!!

Jump to this post

Many thx
First chemo in the books.
The couch is calling me?😊

REPLY
1 reply
mkoebs | @mkoebs | Nov 11, 2022
In reply to @bicycle3 "Thx. Have new tattoos in prep for lung radiations on the 28th. Chemo once a month..." + (show)
@bicycle3

Thx.
Have new tattoos in prep for lung radiations on the 28th.
Chemo once a month starts tomorrow.
I usually fall asleep during Doxil infusion that takes almost an hour in a windowed cubicle with snack trays.

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Keeping you in my prayers! I hope all goes well. Hang in there!!

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3 replies
Terriebikes | @bicycle3 | Nov 10, 2022

Thx.
Have new tattoos in prep for lung radiations on the 28th.
Chemo once a month starts tomorrow.
I usually fall asleep during Doxil infusion that takes almost an hour in a windowed cubicle with snack trays.

REPLY
1 reply
mkoebs | @mkoebs | Nov 7, 2022
In reply to @bicycle3 "Just discovered growths on lungs after abdominal growths which are more stable after radiation and chemo." + (show)
@bicycle3

Just discovered growths on lungs after abdominal growths which are more stable after radiation and chemo.

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Hi. I am sorry to hear about your latest health development. If I can be of any help, please reach out. Here is the Memorial Sloan Kettering sarcoma cancer support group application link. It’s free and takes a few weeks for approval:
https://www.mskcc.org/cancer-care/patient-education/sarcoma-group

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Terriebikes | @bicycle3 | Nov 7, 2022
In reply to @mkoebs "My undifferentiated sarcoma was removed from my knee and on my five year anniversary of being..." + (show)
@mkoebs

My undifferentiated sarcoma was removed from my knee and on my five year anniversary of being cancer free several spots were seen in my lungs. I’ve had surgery to remove the two largest nodules a few months ago. Now just waiting anxiously until the next CT scan to see if other nodules have grown and can be surgically removed. I’ve joined a sarcoma cancer support group (virtually) hosted by Memorial Sloan Kettering and would be happy to share the link to application if you’re interested.

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Please share link

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Terriebikes | @bicycle3 | Nov 7, 2022
In reply to @mkoebs "My undifferentiated sarcoma was removed from my knee and on my five year anniversary of being..." + (show)
@mkoebs

My undifferentiated sarcoma was removed from my knee and on my five year anniversary of being cancer free several spots were seen in my lungs. I’ve had surgery to remove the two largest nodules a few months ago. Now just waiting anxiously until the next CT scan to see if other nodules have grown and can be surgically removed. I’ve joined a sarcoma cancer support group (virtually) hosted by Memorial Sloan Kettering and would be happy to share the link to application if you’re interested.

Jump to this post

Just discovered growths on lungs after abdominal growths which are more stable after radiation and chemo.

REPLY
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