Diagnosed with sarcoma? Let's share

My sarcoma was first identified as a Myopericytoma, i have them in my right quadrant. some 30yr ago i had a bump on my right ankle that had pain when touched removed and the pathology stated it was a hemangioma, probably wrong as then the 7 tumors showed up in MRIs, all but the one was malignant.
I have been told they were probably there since birth. I never developed a right calf and was told my right led vascular was not fully developed, the three branches were complete. One went malignant and it was tried to save my right leg but it lost the battle. Doing ok 20 months on the prosthetic above the knee.
Recently another showed up at the base of the penis, operation went ok no infection but there were cells in the margin. Next is to have a consult with radiation, which on the right leg just made it worse, as well as cryoablation. I do have pictures of the tumor coming out of my skin. My Oncologist has not recommended any chemo. I am 66 and still working a desk job. I am still living life and hope this new occurrence is the last. the latest pathology describes it is a spindle to round cell neoplasm. When first and only gene study done it was part Brest cancer and part Prostate cancer markers.

Thank you for the reply and the prayers, I will also prayer for you. I have hope in all this and leaning on God and my wife helps so much. Blessing to you, the peace of Christ Jesus upon you.

'Now may the God of hope fill you with all joy and peace in believing, so that you will abound in hope by the power of the Holy Spirit. '
Romans 15:13

P.s Dr Swartzs team where amazing with my after care I had to have a wound vac changed Weekly I chose his team the do it at the clinic and not home care that was a great decision I had my three mouth mri last week still cancer free

Dr herbert Swartz at the Vanderbilt clinic removed a 14cm fibroblastic sarcoma tumor that was attached to the artery in my upper inner thigh with blood vessels I am cancer free at the time of this post I met with multiple Dr at skyline hospital they referred me to Vanderbilt the trauma sergen at skyline said she didn't feel comfortable trying to remove it she said I would be laying in a pool of my own blood if your looking for a oncologist he's the Dr you want to call

The right doctor that is both caring and technical competent are difficult to locate. Obviously you are successful.

My father was diagnosed with kaposi sarcoma in his foot

Please do check in when you can. I was also diagnosed with a GIST in the distal esophagus. My oncologist has put me on Gleevec and wants to see if my tumor, currently also 3.5 cm, improves. I'm scheduled for surgery in the fall. I look forward to hearing your reports and pray for a speedy and uneventful recovery. I'll add you to my prayers.

To all who are diagnosed and on the treatment road...please read...
https://www.curetoday.com/view/you-are-not-a-statistic-facing-cancer-with-hope-not-numbers
BEST WISHES AND HUGS!!

Hi everyone, I was diagnosed with a GIST 7 days ago, and I am scheduled for surgery on 6/16. I feel blessed because of the way this all played out. I went in for a routine endoscopy about some swallowing issues, and my GI doctor discovered the tumor. After second endoscopy with ultrasound and fine needle aspiration I was told that it was a GIST, approximately 3.5cm.

The other reason I am feeling blessed is the location, it is in the wall of the fundus, in the muscle tissue, and no other tumors were found in subsequent CT scans. My oncologist surgeon thinks this will be a curative surgery, barring any unforeseen issues.

I know not everyone has such prognosis, so my prayers are with everyone on this group, for comfort, peace, and healing.

I am now in the waiting mode; I will check in when I can and will give an update after surgery. I also know the doctor will be using the Da Vinci Robot for the surgery.

I would like to thank Mayo Clinic, and Ms. Young for this support group.

In Christ, David L

I discovered the disease in 2023 after 1 year in which I went to several doctors and they did not know what I had. In my case, it manifested itself in the form of spots on the lower limbs, more precisely on the fingers and soles of the feet. After biopsy and immunohistochemistry, the diagnosis of Kaposi's sarcoma was made. That year I had radiotherapy on one leg and the following year on the other. After radiotherapy, the skin burned and opened, fell off and now it looks good. Radiotherapy weakens the immune system even more, the skin becomes dead and does not recover and the dermatologist forbade me from having radiotherapy anymore. I go for a check-up in Italy every 6 months and as a medicine I take something that contains vitamin D.