Diagnosed with sarcoma? Let's share
Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.
As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.
Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?
Interested in more discussions like this? Go to the Sarcoma Support Group.
I hope all is well.
We have shared experience.
I know it is. You go through so much. I’m gave you are in remission.
Hello...this site from Mayo may be a start...tap the link or copy and paste to your browser.
https://www.mayoclinic.org/diseases-conditions/dermatofibrosarcoma-protuberans/symptoms-causes/syc-20576872
My name is Melissa Stonebrook and I was recently diagnosed with Dermatofibrosarcoma Protuberans (DFSP). I have surgery scheduled in 2 weeks for a re excision of the area on my left shoulder. I know this particular sarcoma is rare and wanted to know if there is some literature that can be recommended for me to read.
I will. Thank you. ❤️
Thank you. ❤️
I suggest that you contact Immunocine.com to discuss the situation. They may be able to help your mom.
Hello Jennbelle....I'm sorry for the experiences you've had, and the frustrations you're experiencing. No one deserves to be ignored. Hopefully you've found a more compassionate Dr for your Mom, and have had better experiences now. It's possible your Mom is still processing her diagnosis mentally and emotionally, and may eventually become involved in her own treatment and care. Until then continue your efforts to help her and take time for your own health. There are answers for you and your Mom. Don't give up....❤️
I'm a fibroblastic sarcoma cancer Patient in remission 8 months had it ten year there was a mass in my leg 14 cm when your diagnosed with cancer it hard to make it back mentally I'm 53 and I'm not OK im sorry for your sorrow I lost myself it's a hard road back