Diagnosed with sarcoma? Let's share

@fluttergord
Hello, sorry to hear about your diagnosis. I too am 67 and was recently diagnosed with epitheiold sarcoma (they think) and similar to your timetable you mentioned. Mine started with an aggressive growing tumor in my upper thigh that metastasized to lymph nodes, and lung.
I did 10 rounds of radiation that did wonders on the tumor in my upper thigh, now I am starting another 10 rounds focused my my pelvic area. There is a major lymph node called the lilac in the groin area they are focusing on to reduce the swelling in my leg.
Also, just completed 6 rounds of chemo, gemcitabine & docetaxel, only to find out the cancer actually grew during this period. If they recommend these 2 chemo, just beware that the efficacy on sarcoma is less than 30%. Hoping my experience is of value. Wishing you the best. Joe

A scan of my small intestine turned up a large tumor connected to my left kidney. It was initially diagnosed as renal carcinoma. My urologist operated and removed the tumor and the affected kidney. The tumor proved to be more extensive than anticipated and the surgery took eight and a half hours. The tumor was sent to Mayo for analysis and was determined by genetics to be a Dedifferentiated Liposarcoma, high grade, with osteosarcomatous differentiation. I've been referred to the Moffitt Cancer Center, which has a sarcoma department and sarcoma experts. I have my first appointments later this week.

@fluttergord so the surgery I had missed the original liposarcoma that is blended with the fat on the left side of my body. It runs from just under my chest down to my pelvis. I'll be having another surgery to get it all and rebuild some of my diaphragm and colon. No chemo because it would likely destroy my remaining kidney and put me on dialysis.

@matt439
Sorry to hear this. Hope the surgery got all of it. I was diagnosed with dedifferentiated liposarcoma from a biopsy on a lump in my right groin. In July. I have just finished 25 radiation treatments. Now healing up and to get new scans start of November. Then surgery to remove it and what ever it is attached to. Waiting is the worst part. Hope whatever they plan for you will keep it from returning.
Gord.

A scan of my small intestine turned up a large tumor connected to my left kidney. It was initially diagnosed as renal carcinoma. My urologist operated and removed the tumor and the affected kidney. The tumor proved to be more extensive than anticipated and the surgery took eight and a half hours. The tumor was sent to Mayo for analysis and was determined by genetics to be a Dedifferentiated Liposarcoma, high grade, with osteosarcomatous differentiation. I've been referred to the Moffitt Cancer Center, which has a sarcoma department and sarcoma experts. I have my first appointments later this week.

I was diagnosed with Dediferentiated liposarcoma in July after 4 months of tests and scans. Then a 1 month wait to see an oncologist. Between the surgical oncologist and the radiation oncologist they have decided that radiation before surgery is my best option. I start 25 radiation treatments on mon. 24 of August. I am a 67 year old male in generally good health.my tumor is rapidly growing in the uper right quadrant of my groin just below belt line.

Hi my name is Denna I have been diagnosed with sarcoma cancer in the belly tissues. Waiting to hear back from Mayo about what type it is. They are preparing me to start chemo. I go tomorrow to have my port put in. The waiting is the hardest of all.

Hello,
My name is Julie.
In 2024 I was diagnosed with undifferentiated pleomorphic sarcoma. I guess they call it UPS. I had 25 radiation treatments over 5 week period to slow down the growth. I had surgery to remove it on December 3, 2024. It was huge and ugly and located on my left hip.
On 7/9/2026 I was diagnosed with Metastatic high-grade undifferentiable pleomorphic sarcoma. It was in my left lower lobe of my lung.
On August 3, 2026 I had the nodule in my left lower lobe removed.
I will get a CT Chest scan September 4, 2026.
So, this is where I am now. Waiting

Hi my name is Denna I have been diagnosed with sarcoma cancer in the belly tissues. Waiting to hear back from Mayo about what type it is. They are preparing me to start chemo. I go tomorrow to have my port put in. The waiting is the hardest of all.