Diagnosed with sarcoma? Let's share

Welcome, @kenroy. I moved your message about fibroblastic soft tissue sarcoma to the Sarcoma support group here: https://connect.mayoclinic.org/group/sarcoma/ where you can meet others with soft tissue sarcoma.

I'd be interested to hear more about the Fitbit study you did.

Did you have any treatment after surgery? How are you doing now?

I had fibroblastic soft tissue sarcoma.Dr shawtz at Vanderbilt removed a 13.5cm tumor from my leg. I have lost most of the feeling in my leg. I donated the tumor to the mayo clinic and did a12 week fitbit cancer study.im doing an mri and cat scan next mouth.no one in my family has had cancer

I have a Mycoid Liposarcoma of the Right Calf and I am scheduled for 25 Radiation Treatments - so far I have completed 12
Some fatigue ut generally feeling good - no pain
I am also in a Pre-Surgical trial for Physical Therapy to determine if this will help in the recovery after surgery

My husband has been diagnosed with undifferentiated Pleomorphic February 2024 and received 24 Radiation sessions

can I ask where the tumor was located

Yes. I had a pretty big tumor but was only in hospital 3 nights then rehab for a week

have you had your surgery yet - Mine is scheduled for May 5th - I was told 7 to 10 days in hospital because of the flap - not looking forward to the hospital stay

That sounds great ! I had no advice during radiation. It was hard on my skin and me in general. Be glad you are in that pre surgery physical therapy!!

I am checking the days off on the calendar love coming home and putting a big X through the day - I have completed 8 of 25

I have a soft tissue sarcoma in my right calf about the size of a Soft Ball - I have completed 8 of 25 radiation treatments - no adverse affects - I am also in a clinical trial for pre-surgery Physical therapy - I must walk 30 minutes a day plus each week I am given a series of daily exercises - they range from increasing strength, movements, flexibility. An example is to get up from a chair unassisted - this is really strengthening my core. This week the concentration is my hips to give me more movement. This really helps me with a feeling of empowerment that I can have a positive affect on my recovery after surgery - I have to have a thigh flap taken to replace the muscle and tissue from the surgery.
I am using a radiation burn cream 2 to 3 times of day - no sign of any damage to the skin as of yet - some swelling in the leg - currently little pain and no affect on use of the leg