Diagnosed with Meningioma

I would also like to know about this question. Mine is either a meningioma or trigeminal schwannoma and we are waiting and watching. I worry a lot about this and what the future holds

I was diagnosed with a meningioma 28 years ago. Now at 51, dealing with fatigue, and ringing in ears yet I got these results from my MRI yesterday. Can anyone advise. My Dr hasn't called me back to explain. Idk why they have hearing loss because I passed at 100%.

HISTORY: Bilateral tinnitus and sensorineural hearing loss, asymmetric. History of meningioma.

TECHNIQUE: Imaging of the brain included sagittal and axial T1, axial FLAIR and T2, axial diffusion and axial susceptibility weighted, contrast enhanced sagittal, axial and coronal T1. Imaging of the IACs includes thin axial T1 and T2-weighted fiesta, contrast enhanced axial and coronal T1. 14 mL MultiHance contrast were administered.

COMPARISON:None

FINDINGS: The ventricular system is midline and normal size. There are scattered small periventricular and subcortical white matter lesions throughout both cerebral hemispheres. These are most consistent with changes of small vessel vasculopathy or ischemic small vessel disease and clinical correlation is needed. There is no acute ischemia on diffusion imaging. There is no associated enhancement. There are no other parenchymal abnormalities. There is no evidence of acute edema, parenchymal mass, or mass effect.

There is a small, dural based, mass along the right parietal lobe measuring 1.4 cm in oblique craniocaudal diameter, by 0.9 cm in thickness 1.3 cm in oblique transverse diameter. There is evidence of associated calcification and a broad base on the dura. Findings are consistent with the patient's given history of meningioma. There is minimal mass effect on the adjacent brain. There is no associated edema. There are no other extra-axial masses and there is no other abnormal enhancement on postcontrast images. Normal enhancement of dural venous sinuses is present.

Incidentally noted is a 1.2 cm septated pineal cyst, without solid or nodular components. There is slight mass effect on the tectum without compression of the aqueduct.

Imaging of the internal auditory canals demonstrates a normal appearance of the 7th and 8th nerves on both sides. There is no mass and there is no enhancing abnormality. Cerebellopontine angle cisterns and internal auditory canals are normal in appearance. There is no destructive lesion of the skull base. There is no fluid in the mastoid air cells. Minimal ectopia of the right inferior cerebellar tonsils noted, without crowding or compression.

IMPRESSION:

1. No acute intracranial abnormality. Scattered white matter lesions, likely representing mild small vessel vasculopathy or ischemic small vessel disease.

2. Small dural based mass along the right parietal convexity consistent with meningioma. No significant mass effect or edema and no other masses.

3. Unremarkable appearance of the internal auditory canals.

4. Pineal cyst with mild mass effect on the tectum but no significant compression or ventricular obstruction.

Hello @khoosen and welcome to Mayo Clinic Connect. There are several members with varying meningioma diagnosis, so you will notice that I have moved your post into an existing discussion on meningioma, which you can find here:
- Diagnosed with Meningioma: https://connect.mayoclinic.org/discussion/diagnosed-with-meningioma/

Members like @sambarry8585 @rsfcowgirl and @jmb73 may be able to come in and share more with you on their meningioma journey.

When were you diagnosed?

Hi I have been diagnosed with vestubelar neuritis and Neuro calls it meningioma behind my left ear anyone else who has this?

Hello @sambarry8585 and welcome to Mayo Clinic Connect. I am sorry that you are faced with this. I am sure with this being your second time hearing concerning news, you are in need of support, so glad to have you here where we get and give support to one another.

You will notice that I have moved your post into an existing discussion on meningiomas, which you can find here:
- Diagnosed with Meningioma: https://connect.mayoclinic.org/discussion/diagnosed-with-meningioma/

Members like @rsfcowgirl and @jmb73 have recently been in this discussion and may be able to come back and share more with you.

Do you have a date for your consult with the neurosurgeon?

I had a posterior fossa meningioma removed back in 2010. Now after headaches, issues with my words and vision problems, I had a new MRI performed.
It shows new, rounded, extra-axial, enhancing lesion with dural tail adjacent tot he lateral aspect of the left cerebellar hemisphere. Enhancing lesion is 1.5 x 1.6 cm. No significant diffusion restriction. Lesion abuts and probably invades the left transverse sinus. No evidence of venous hemorrhage/infarction. There is an additional smaller similar appearing lesion just adjacent to the other lesion measuring 7 x 4 mm. Prior left retromastoid cranially surgical changes. Minimal encephalomalacia present on the lateral aspect of the left cerebral hemisphere.

Not sure what to think about this. Being referred to a neurosugeon to discuss my "options"

PS. ABTA Also can inform you of all options other than surgery. Even clinical trials you may qualify for if you have no other options.

I don't know about the quality or sophistication of care in Jamaica. I faced the possibility of brain surgery recently. I live in a relatively advanced US area. Even still, I sought the consultation with the top recognized neurosurgeons + hospitals near me. I strongly agree with your second thoughts. Having 2 brain surgeries did not seem like a good plan to me at all. Florida has very good neurosurgeons + hospitals. Mayo Clinic is also there.
It doesn't seem like you have had sufficient info for an informed decision. Don't be pressured into surgery in Jamaica. Look into a consult with someone from Florida. You can get help with this in 24 hrs for free from the American Brain Tumor Association. 1-800-886 -ABTA. I encourage you to reach out to them today. They have nurses who can provide you with information that covers everything from info on your diagnosis to coordination of consultations for 2nd opinions of your MRI. There is no charge for their help.

It would be worth it to ask your Dr. about the possibility of having Gamma Ray surgery. I live in Orlando and my neurosurgeon is Dr. Field with Advent Health. He lectures all over about Gamma Ray surgery. Maybe your Dr. has heard of him.
Good luck,
Joan

Thank you so much for reaching out to me. Thanks for your words of encouragement. I am not getting as much info from my doc. I am schedule for surgery and I am having second thoughts