Diagnosed with Meningioma
Saw a neurosurgeon went over my options. My surgery date is tentatively the end of this month. Nervous.. looking for advice from someone who has been through it. Tumor is located behind my left eye and is attached to my optic nerve.
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rh61: NO, this is not acceptable care. You state that as of last week it is still growing. At the minimum a repeat scan should be at the 6 month mark, not a year. You need a second opinion from a neurosurgeon, not a neurologist.
Hi I’m new here.
In 2019 I was rear ended hard, my left side forehead hit the steering wheel. I only had a busted lip, didn’t go to ER.
I went to ER the next morning due to large bump, headache and N&V they did an MRI and they didn’t see anything that was worrisome told me just to wait it out. 4 months later I went to a neurologist for pain behind the left eye, memory focus concentration problems. He did another MRI and found the meningioma. 4 years later it has doubled in size from 4mm to 8mm and as of last week is continuous grow.
I was told just check it in a year. Is this a normal procedure to wait while it keeps growing ?
OMG this, up until the MRI, is exactly what happened to me! Only from the CT they suspected something, then ordered a MRI. I have an appointment at May 5/6/2025.. glad to read this before my appointment! Thank you!
@mothermary1, the last you wrote you were waiting for test results. Any update? How are you doing?
This is an old post I found hoping for someone to respond. I’m waiting for my latest mri. What type and where was your tumors.
Mine is SSS I think Superior Sinus something. Hope I hear back.
Thanks
Prayers for you🙏 My 19 year old has the same diagnosis about 2019 , and so far no new growth. He is being followed at Mayo, RochesterHas there ever been A cure for this?
I am so sorry that you are having all these issues. I had Gamma surgery in 2019 and so far, things are good. Did you ask the doctors if you could have Gamma surgery? The surgery uses lasers and it stopped my meningioma from growing. I have an MRI every other year to monitor it.
I will pray for you .
No i haven't been to the mayo hospital i thought this group was for anyone going through the same thing im sorry and thanks for the prays likewise
I am so sorry you are going through this.
I am assuming you went to the Mayo Clinic since you are on this blog. I also went there after a brain tumor diagnosed. They were wonderful. Do you follow up with brain scans to see the status of your tumor?
I had Gamma knife and surgery in 2019. I also have increased
mobility issues on my left side which effects my hand and walking. I have started seeing a motion specialist (who knew there was such a thing) in my city who has helped me with medication and physical and occupational therapy . Please know that you are in my prayers.
God will take of you.
In 2016, I was hospitalized for excruciating pain in my head. After undergoing an MRI scan, I received the devastating news that I had a brain tumor. Unfortunately, doctors were unable to determine if it was cancerous and the location of the tumor made a biopsy too risky. Despite the daunting prognosis, I chose not to undergo the biopsy due to the high risk of paralysis or blindness.
Although the doctors were initially unsure if I would make it out of the hospital, I eventually did. However, I've continued to experience deteriorating health since then, and today I'm essentially just surviving. Despite the challenges, I'm grateful to have discovered a community of individuals who are facing similar medical struggles.
Currently, I'm losing mobility on my left side, which is particularly tough since I work as a bartender and require the use of both hands. I feel lost and unsure of where to go from here. Nonetheless, I'm thankful for each day that God gives me and will continue to push forward.