Diagnosed with esophageal cancer Most scared of the Feeding Tube

I am ok, had a CT scan yesterday. I have an appointment on the 27th with the oncologist. I am staying positive and just ready to find out the next steps.

How are you ?

We did (I’m writing under my mom name) - you have to be fast - choose the top surgeon and start treatments fast. Don’t be afraid it’s a journey but focus and the other side and it will go fast.
Careful with any symptoms…
Start treatments asap !
We are here to share !

Hi. Just want to say good luck and stay positive. You'll get through it with ease.

We are waiting for the results of the PET and also he is scheduled for an MRI today as they think there may be cancer in his liver as well. Treatment will start as soon as the results are in 25 radiation and chemo once a week with the radiation. Surgery can happen as long as cancer is not found in the liver… so for now it is more waiting …

Hi I was diagnosed the same. After the CT I met with Oncologist and just had a PET scan. Also meeting With the radiation oncologist and a chemo class this week. Having a port put in next week then hopefully the treatments can start. I’ve been told chemo once a week and radiation 5 days. Kind of a whirlwind but ready to get started and kick cancers butt.

No, I have not been referred to a surgeon or an oncologist as of yet.

Welcome @jp2023 and @lalaluv, you've come to the right place to get support from others who are living with esophageal cancer or caring for someone with esophageal cancer. To help you connect with others, I moved your messages to this existing discussion:

- Diagnosed with esophageal cancer Most scared of the Feeding Tube https://connect.mayoclinic.org/discussion/diagnosed-on-thanksgiving/

I did this so you can read previous helpful posts and connect with members like @ddunavin @dsh33782 @johnstawicki @kissingrhino @sjw6358 @doglover888 @survivorsuz @puprluvr @karly @davevb @margaretdv @atafitness @lori57216 @naomicanada @socalkelly and many others.

JP, I'm glad you finally got a referral to a surgeon. Have you started a list of questions to ask?

@lalaluv, I assume the CT scan is part of the diagnostic process for you to stage the cancer. Have you been referred to a surgeon>

Hello,
I had an EGD on Wednesday. The doctor found a tumor at the bottom of my esophagus and the top of my stomach. It was confirmed, the tumor is cancer. I am scheduled for a CT scan on Wednesday 1/18. I have to schedule an appointment with an oncologist after the CT appointment. Is there anyone out there that has had a similar experience and can share what to expect? I am at a loss for words and I don't know what to expect.

So sorry to hear about your partners diagnosis. Is he seeing an oncologist or a surgeon? Typically an oncologist will start with chemo/radiation as initial treatment.
My husband was diagnosed in January 2022 and did 30 rounds of radiation and 6 chemo treatments. His tumor (at the junction of his stomach/esophagus) reduced as a result of the treatment. In July 2022 he had an esophagectomy removing portions of esophagus/stomach.
After/during chemo/radiation he really struggled with getting/holding anything down. He ended up getting a feeding tube. This has been a lifesaver. He still has it and while he can eat a little, it’s not enough to sustain him.
Due to scar tissue, he periodically needs to get his esophagus “stretched”. When he needs to get this done, he struggles with nausea, vomiting and general malaise. He’s in the throes of this right now. Just waiting for the procedure to get approved/scheduled.
Hang in there, keep him hydrated and keep the calories up! Good luck, there’s lots of folks here to provide input, feedback and suggestions.