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Decreased tolerance to visual and auditory stimuli
My 61 year old husband is 4 years post-covid pneumonia and has experienced a vast array of troubling long covid symptoms over the years. His intolerance to visual and auditory stimuli has really limited his (our) ability to enjoy many activities, like movies on the big screen, concerts, active/excited grandchildren, etc. He does use noise cancelling earbuds that really help with the auditory piece of this puzzle. This weekend, however, we had to leave a wedding reception abruptly because the photographer's flash caught us both off guard as the flashing lights sent him into a POTS spiral with rapid HR, decreased O2 saturation, dizziness, etc. His occupational therapist pinpointed this issue months ago and suggested that he see a neuro-ophthalmologist, but Mayo Clinic Jacksonville, turned down the request for an appointment. Do any of you have experience with this issue and what treatment(s) and/or specialists can you recommend - other than avoidance? Thanks in advance for any help you can offer.
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I'm post covid as well.
And the lights and noise are a big problem as well and also handwriting and unbalanced walking.
I'm 59 and was healthy as an ox.
But after covid ugh it's hard .but they are also doing physical therapy for vestibular hypofunction.
See an neurologist maybe they can help I've actually just learning to deal with it for the past 14 months.
Prayers.
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1 ReactionI have noise sensitivity that seems cyclic. Also triggers anxiety.
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2 ReactionsHi @ugatina88. Your post and the others are me to a tee going on 4 yrs🙃 My PT helped my visual part with Romberg stance and 5 minute rest with eyes closed about every couple of hours. The hearing part is tricky because of my communication needs and hopeful others may have suggestion I havnt tried other than just ending talking🤞 Definite correlation with physical fatigue and long conversations/extreme busy areas like airport where wheelchair needed as my body leaves me. This is the hardest symptom as many cannot see and relate to understand my unraveling reaction sometimes. Here assures us we are not alone and helpful info/support to get us thru this healing journey🌈
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4 ReactionsWow thanks for the information on the romberg stance.
Never heard of it.
I'm to the point of wanting to try anything.
🙏💜🏋️♂️🤗
I had the exact same situation. Over time, I gradually — very gradually — increased my exposure to the stimuli. While, not back to living the way I used to, I can now listen to music and am enjoying it. I had to completely “tune out” to the stimulus for a long, long time, and then slowly started to introduce it back into my life.
Just want to add a “me too”. Auditory stimuli like the sound of household appliances acutely painful. I have very limited ability to talk on phone: my mind just shuts down trying to process what people are saying when the information is from auditory source only. I hadn’t asked myself if some of this is from the discomfort of the sound of people’s voices.