ddAC chemo & Paclitaxel

Posted by mjmac @mjmac, 2 days ago

Hello,
I was DX with ILC last June. Had a lumpectomy with 6 nodes diseased and removed. Because of the number of nodes found I will have to start chemo next week. Initially no chemo just radiation.
Curious to see if anyone has undergone this type of treatment and what might be in store for me? I'm aware that everyone reacts differently but I am curious to hear others journey.
Also, any recommendations as far as how to prepare?
Thanks to all who respond, I am so grateful for this chat group!
Best wishes to all who have struggled, those who have made it across the finsh line and especially to those who are in the fight!
MJ

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it's a confronting time for you . i went thru chemo treatment for 6 months . red devil and paclitaxil last year . you will get thru it easier than you think . the not knowing is the worst . i'm in my 60s. i slept a lot ! . still ate quite well . was given a medication like speed first 4 days of treatment , which made me very hungry and awake . i had this every time i had treatment . had anti nausea tablets but didn't overuse them . but any slight feeling of nausa took them . so that wasn't a big problem . and never had to worry about it . doctors can regulate it very well . i went to dentist to get teeth checked . that's good idea. mouth hygiene is important during treatment . i always gargled , with baking soda in water . during treatment and never got any mouth ulcers , thank god . mouth ulcers can be very painful so that's important . i drove myself to treatment and back it's the 3 /4 day xou feel most tired . at hospital was given sandwich tea etc . which was great . if not provided i'd take some .

i made up batches of bone broth which was good to have . eggs were good too . i was needing a high protein diet .

mentally try focus on something else , get a tv series you can lose yourself in , yellowstone, suits, breaking bad, anything you can switch off too . it helps to not let it consume you . i didn't google stuff as that's a rabbit hole you don't want to go down . that can be for another time . keep positive and don't dwell on it , move your mind to other things . your doing the hard work , already., no point worrying , i had the best sleep . . try get outside and walk for a bit , or sit under a tree . a pet is a great help . really try and spoil yourself , flowers , books , food you like . your body is working overtime so try rest sleep and indulge yourself in what you like .

easy said for older woman , but i noticed the younger ones had busy lives , with children , work house to care for too . so if that's the case rely and ask for help . try not do too much , try step back from as much as you can . and just really think about yourself .

it was the first time in my life i didn't have to worry about someone else . so that was a bonus .

the time will go quicker than you think . try and protect yourself from covid or flues . even well after treatment .

all the best . your stronger than you can imagine and so is your body . before you know it , you will have finished treatment . !

REPLY

Hello,
Thank you so much for the pep talk and the tips!
I’m really hoping I can drive myself, it will be a long day for someone else if not. Yellowstone & Suits 2 of my favs, I plan on taking enough things to keep me busy. I do love to be outside, I walk and do the garden thing, have access to a pool and swim, which is nice (not sure about sun though), will have to check.
Did you have any neuropathy or lymphedema? I’m a little concerned about that and read that compression sleeves might work. Will check with my oncologist.
Thanks again, anything else you can think of let me know!
All the best to you as well.
MJ

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