Cushing's and Autonomic Nervous System Disorder (ANS)
I think I've had Cushing's for at least 5 or 6 years. I was diagnosed a year ago. My ACTH was high which led to a pituitary surgery. My ACTH dropped but cortisol didn't. After the surgery I was told that the surgeon couldn't find the tumor. My cortisol have decreased slowly but not all the way. Nobody really understands what's going on with me. I may start taking cortisol-lowering medications soon. Also, 2 years ago I was diagnosed with an orthostatic hypotension, which is an autonomic nervous system disorder. I really feel terrible most of the time. I looked on different AI websites and they all say that Cushing's can affect the ANS. I asked 2 endocrinologists about it and they denied that high cortisol affects the nervous system. I hope that eventually when my cortisol is under control my orthostatic hypotension. Did anyone experience the same?
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Sorry, correcting my statement. I meant to say that I hope that eventually when my cortisol is under control my orthostatic hypotension will improve.