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CSF leak, waitlist, myelogram-yes or no?
Hello all. My husband has had a CSF leak since April 2024 and we think it was caused by a scuba diving incident and his pain pump removal. We have been on the waitlist for the CSF clinic at Mayo since October. We had to rule out ENT, neurology, and other possibilities. He had two spots show up on his brain MRI that are indicative of a CSF leak but there is only one doctor that knows about these and wants to do a myelogram. Should we wait for Mayo to do the myelogram or should we have his doctor do it?
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Wait. Get a doctor perhaps a PCP or the neurologist to recommend your case to Mayo.
Do the myelogram. It will tell if he, in fact, has a leak. I had them on my spine several times. First they said it was a leak, then another doctor said no. Move forward and do this. Good luck. What are your symptoms? Mine are constant headache and dizziness.
My husband has dizziness, nausea, vomiting, headache pressure, cognitive issues similar to dementia symptoms. He forgets where he is or gets very confused.
Did you get seen yet? I am also on the wait list for a possible leak and have been since April of 2024. Symptoms for about 4 years, however. Curious if the wait list is moving!