Crps has been untreated for a year, it is spreading from legs to back.
Had crps for 20 yrs in leg, a year ago the pain clinic closed and no more methadone. Have tried two other clinics and they are stimulator only. Had one, made it worse. Now it seems crps has gone into my back. Every day is very painful. Just waiting for it all to end.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
Keep looking. You will find someone to help. What is that?
Chronic regional pain syndrome.
Been there...am there...started with small abdominal injury. CRPS went to my thoraic spjne nerve. Stimulator caused horrible complications, its now out.
I live in daily severe pain levels, saps my energy, life is one day after another couch bound.
Western medicine doesn't have much to offer CRPS....its a crippling diagnosis. Gd luck.
I can offer you some more information about this place if you like, but I would check out The Spero Clinic. They treat many conditions, but they specialize in CRPS. It is expensive, but you should at least check it out. http://www.thesperoclinic.com
I understand. I have one of those rare hard to treat pains. I have 24/7 chronic abdominal pain. It’s a constant ache that doesn’t fall below right now level seven this year been fighting it since spring of 2018 biggest problem I found is that my body doesn’t respond to almost any medicine. Do you do an enzyme and balance I found out about not sure if it’s done for you, but it caused me to quit work over three years ago and I’m day-to-day Bed our couch or can I do a little chores or the once in a while lunch rare do I get out if the pain is over a seven. I get it that it’s not living but existing alot. You miss out on many events and things when you really can’t leave the house as you moan in pain with a heating pad. Tried methadone 10/10/20 mg pills last year for first time from April ( started days after a useless 7 day hospital). I got lucky and overall the pills moved the pain levels to 6-7. I started living, volunteering and making plans to build the house I always wanted and timing was now okay with kids older. Then slowly methadone quit working in October. And pain went back to 7-9 depending. Mornings always horrible pain like as I speak I sit and shake at level 8 which is severe. Can’t do much liked drive, shop or even enjoy any kinds of walk. It’s such a bad nonstop Ache is call it. I’d pay good money monthly to be in a 5-7 level. Tried ketamine you name it. 50 diff meds. Only thing I could recommend trying if you haven’t is buprenorphine 8mg tablet under your tongue, it’s bitter takes about 30 mins to dissolve. It can be used as a pain killer and works occasionally for me but could really bring it down for you. They have adjusted the laws so that more doctors can prescribe it like mine does from the pharmacy. Sorry this was long, but I was trying to touch on point. Maybe you feel the same way and go through and realize I understand you’re terrible terrible pain and what pain does to one’s life. I feel very hopeless like you and would be glad to talk or text support and friend if you’re going through the same thing I am daily. It helps if you ever find someone to talk to who suffers some chronic pain I’ve never found anyone based on how much I’ve lost in the level of pain I’m in, which makes it hard for a lot of those Facebook groups and stuff. I wish I had a local pain meeting group like AA does, open once a week where you go grab support from others who suffer from chronic pain would be nice to have. Rob