CRPS

I have CRPS Type 2 and peripheral neuropathy in both feet. The combination it unbelievably terrible on bad days to miserable on good days. After almost 5 years my care team finally has me on a combination of meds that keep me able to walk. I still have bad days that putting socks on is almost unbearable not to mention shoes and walking but I still manage

Hello,
Sorry about your condition. As long as we're still alive, the only thing we can do is to cope as best we can with the constantly changing symptoms of our condition. As the saying goes: "what doesn't kill us will only make us stronger". Please keep up your spirit and forge ahead.
I wish you the best.
Take care and have a serene evening,
gus

I have CRPS in my legs. It started in my left leg and mirrored over into my right. Go on YouTube and read about the doctor in one of the New England states who has made quite a few discoveries about this disease. Get off of sugar! It causes inflammation and will make your pain more severe. It's a matter of days to get over the withdrawal of the sugar. I allowed myself two small pieces of candy for the first week every single day. then I did a piece every other day and then I stopped. You will get a little bit of a headache and that is a small price to pay in the overall picture. Also think about going gluten-free. You must keep moving. Read all of the information that you can find in the Mayo Clinic blog from the past. I have a Boston Scientific implant in my back and it has been in me for four years now. I am so grateful I did this instead of going the route of medication. I have also gotten one nerve block and I'm going in for a second one next month. Consider looking into this also. The biggest thing I'm going to encourage you to do is watch your diet. Get off of red meats. Eat at least 2 cups of vegetables every day of various colors. And eat fruits.

I was fortunate enough to find an excellent Pain management doctor that does not hurt me and like I'm one of the heads of cattle. Keep digging until you can find someone that listens to you.

60% of CRPS patients are misdiagnosed!
After doing extensive research I would urge everyone thats currently diagnosed with CRPS to get a second opinion asap!

I had an undetected broken bone and was misdiagnosed with CRPS. Until they discovered the real cause of my pain. Get a second opinion. I'm so glad I did!

I'm currently filing a complaint with the GMC against the consultant for negligence & misdiagnosis.

I have had every test done on my feet, from X-rays to bone scans. the pain I feel is far worse then when I crushed my foot in the past. My podiatrist, my neurologist and my primary care all agree with my feet it's CRPS

Keep moving. Water aerobics. Find a GOOD pain doctor. Get off if sugar that causes inflammation UTube CRPS. Get moving to see if you can stop it. Mayo has great blogs about a specialist in the New England area.

Stay away from a pain doctor the “herds” you in like cattle. Get one that knows about CRPS and listens. I had great success with the teaching college. I actually contacted the Mayo Clinic in Jacksonville Florida and they guided me on going to UNC. I believe I asked for a nurse on call. I gave them my description of what was going on with my body and they directed me. I went to UNC in North Carolina. I also found a wonderful Pain management doctor down in the Charlotte area.

Hello,
I’m really sorry about your CRPS. Believe me I know the feeling from having the same in my entire right arm from shoulder to hand. The pain now is unbelievable where I feel like someone thrust two hands in beside my shoulder and is tearing apart.
I can only say that I hope you’re able to keep moving despite everything. It’s really important as hard as it may be.
Wishing you the best.
Take care and have a serene weekend ahead,
gusw

I’m so sorry and empathize with you. Hope you find relief
My situation isn’t same, but the pain is constant and intense
I have central pain syndrome caused by a stroke in thalamus region of the brain. Many wonderful doctors have exhausted what they know to help, to no avail ( neurologist, pain management, etc)
But maybe they could help you
One is a physiatrist… which I’d never heard of He is continuing to research methods to help. Haven’t seen anyone on these sights who has my condition
Wishing you well and much
success in healing

I can't speak to this firsthand, but I learned of a Center in Arkansas called the SPERO Clinic that focuses on CRPS; they also treat Long Covid, Dysautonomia, ME/CFS and other similar nervous system disorders.