COPD Bronchiectasis ABPA New: MAC & AFB

Posted by lvo @lvo, 2 days ago

I’m new to this site. I am a 75 year old female. I have the diagnoses, listed above , subsets of COPD(?)
I have 2 initial questions of you who live this…
Why is MAC the dreaded diagnosis?
What are the Big 3 in terms of drugs?
I don’t see my pulmonologist until June 5
to discuss and I know he will answer and allay.
Thank you for your patience and information.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Sorry to hear about your diagnosis. I can’t speak on the COPD or APBA but I think for many the MAC diagnosis is tough because it’s a chronic illness which requires daily intervention (airway clearance) plus if determined to be best, long term medication. I opted for the big 3 which is an antibiotic cocktail of arithromycin, rifabutin and ethambutol, the side effects of which can be tough. Labs to monitor, along with vision and hearing screening is required. Once the MAC infection is cleared the drugs are still taken for 12 months from that date. This forum does have a list of questions you can use to bring to your dr along with a wealth of information and support.

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Thank you. I’ll plug along and live my best life with what my lungs have to offer.

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