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Constant nausea and retching 8 weeks post esophagastrectomy.
My brother had oesophageal surgery 8 weeks ago and has been readmitted 2x for weight loss and inability to eat in that he feels nauseous 24/7 and eating couple teaspoons food causes severe retching some time later. Currently on TPN IV. He's had all follow up tests and nothing wrong - no narrowing , no leaking just slightly slowed motility. On reglan. Esomeprazole but zofran etc not working so been stopped. Consultant says never seen it before and doesn't know what to do next- GI team stumped as well. Anyone have any suggestions at all? It's worrying the nausea never subsides and he's v low.
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So sorry to hear. I’m 19 weeks post surgery. I wish I could help you. Have you talked to an oncology nutritionist might help.
Yes he has but no foodstuff can be tolerated without heaving so stopped trying to eat. Jusr constant nausea and retching.
When I had my surgery I was fed via a jtube connected to my intestine. I kept getting fed via the tube for a month or so until I could eat ln my own. Maybe he can get a jtube until his digestion stabilizes. His surgeon and oncology team should be providing solutions or alternatives so that he can eat. Talk to them. God Bless.
Also had j tube that should be an option. Ask your doctors about that. It would definitely help. Just might have to heal before you’re able to eat. Hope this helps.
I'm sorry for your brother but unfortunately this could go along for quite some time and he's going to have to ride it out. My husband is now two-years post-esophagectomy and is still on j-tube feeding. He has lost 100-lbs. Constant nausea and vomiting only slowed down over the last couple of months. This is a brutal operation and even worse recovery. My suggestion is don't give up--eventually things will improve.
Thank you for your response. I think he was led to believe he was an outlier and they'd never seen this before and most people could eat soon after surgery. Does your husband eat anything alongside his jtube now?
Not really. He's physically capable but vomiting has always been the result and now I'm afraid that he's just plain afraid to eat. He can and has had yogurts, pudding, Boost drinks (530 calories each), etc. Another thing, and research has also shown, nothing tastes the same to him anymore. I don't know if it's digestive enzymes, the result of medications, or what, but many people complain of this very same thing. Don't give up, eventually things will get better.