Ampullary Cancer: What treatments did you have?

Posted by baeph @baeph, Aug 17, 2022

My husband was diagnosed in March- the cancer was stage 1, quickly followed by the cirrhosis diagnosis. .has anyone had any experience with treatment for this situation?
Thank you in advance.

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@baeph, I'm sorry to hear about the additional diagnosis of cirrhosis. Has your husband already had Whipple surgery or is it not possible because of the new diagnosis? What is his treatment plan?

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Hello. I had ampullary carcinoma in 2016 and a Whipple procedure was performed. I did not undergo chemotherapy nor radiation as my surgeon and his colleagues consulted and told me that the cancer was not invasive. The cancer had not spread to any of the lymph nodes that were removed and studied.

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Profile picture for mdmnc @mdmnc

Hello. I had ampullary carcinoma in 2016 and a Whipple procedure was performed. I did not undergo chemotherapy nor radiation as my surgeon and his colleagues consulted and told me that the cancer was not invasive. The cancer had not spread to any of the lymph nodes that were removed and studied.

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@micamica69, just checking in to see how you are doing. I also hope that you have seen the helpful post from @mdmnc who also had ampullary carcinoma back in 2016 and is here to tell you about it.

Micamica, how are you doing? What treatments did you or are you having?

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your husband had whipple surgery; my daughter may have it as well;
must wait for chemo and radiation affects to "settle" before physicians determine next step. we are patient people in general, and this sure does test our "stuff". have you been married long? appears you perhaps have.
pancreatic cancer and then liver diagnosis. that is a fight worth
"staying the course; bette

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Profile picture for dramagrandma1 @dramagrandma1

your husband had whipple surgery; my daughter may have it as well;
must wait for chemo and radiation affects to "settle" before physicians determine next step. we are patient people in general, and this sure does test our "stuff". have you been married long? appears you perhaps have.
pancreatic cancer and then liver diagnosis. that is a fight worth
"staying the course; bette

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Our situation was quite different. He had Ampulary cancer, a rare type. Whipple was performed within 2 weeks of surgery and chemo, which was presented as optional, didn’t start until after five months. At that time we knew that we would be dealing with cirrhosis to further complicate the treatment. So far, one round of chemo has been completed with 5 remaining. His second PET scan is mid-October and we will have a better idea of what’s happening.
From my vantage point, Whipple is complicated and requires a long and sometimes complicated recovery. Our surgeon told us that ‘he would be playing golf ina month’ which was totally untrue. I would have much preferred the truth rather than to have to face the disappointment of false optimism.
My very best wishes for you and your daughter
Many people here have supported us and offered hugs and good information. Do your own research and keep fighting!!!

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Profile picture for baeph @baeph

Our situation was quite different. He had Ampulary cancer, a rare type. Whipple was performed within 2 weeks of surgery and chemo, which was presented as optional, didn’t start until after five months. At that time we knew that we would be dealing with cirrhosis to further complicate the treatment. So far, one round of chemo has been completed with 5 remaining. His second PET scan is mid-October and we will have a better idea of what’s happening.
From my vantage point, Whipple is complicated and requires a long and sometimes complicated recovery. Our surgeon told us that ‘he would be playing golf ina month’ which was totally untrue. I would have much preferred the truth rather than to have to face the disappointment of false optimism.
My very best wishes for you and your daughter
Many people here have supported us and offered hugs and good information. Do your own research and keep fighting!!!

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And to answer your question-we have been married for 14 years.

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Profile picture for Colleen Young, Connect Director @colleenyoung

@baeph, I'm sorry to hear about the additional diagnosis of cirrhosis. Has your husband already had Whipple surgery or is it not possible because of the new diagnosis? What is his treatment plan?

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Yes, Whipple was done several days after the diagnosis. He just finished round one of chemo. He is very carefully monitored before every treatment.

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Hi I am 45-year-old female, recently diagnosed with Ampullary cancer. I live in NYC any recommendations for where to perform the whipple procedure in NY or any other state.
Thanks

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Profile picture for kabam7775 @kabam7775

Hi I am 45-year-old female, recently diagnosed with Ampullary cancer. I live in NYC any recommendations for where to perform the whipple procedure in NY or any other state.
Thanks

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@kabam7775, where did you decide to get surgery? How are you doing?

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Profile picture for mdmnc @mdmnc

Hello. I had ampullary carcinoma in 2016 and a Whipple procedure was performed. I did not undergo chemotherapy nor radiation as my surgeon and his colleagues consulted and told me that the cancer was not invasive. The cancer had not spread to any of the lymph nodes that were removed and studied.

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I have recently been diagnosed with ampullary adenocarcinoma. Had Whipple procedure about 6 weeks ago. It was caught early with negative margins and nodes. Now I’m trying to decide do I have chemo or not? Your situation sounds similar. I wonder how you are doing and what influenced your decision not to have chemo?
ML

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