Colostomy problem: Rectal discharge 18 months out

Posted by bcstew @bcstew, Sep 29, 2020

My surgery was 18 months ago and I have had no rectal discharge in all that time. Yesterday twice there was a watery discharge.
I am now wearing a pad, Is this a common occurance? Should I see my surgeon?

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Profile picture for piki @piki

@weymouthpaula said: Without this discharge, the mucus could build up into a grey "ghost turd". That's what they called it!

So now I have a name to put to my problem? I must admit I couldn't find any references to mucus in the description. I don't have any of the symptoms of Diversion colitis and I've seen the colorectal surgeon twice on this matter and apparently there's nothing out there that will help.

So I'll keep on doing what I've been doing all along and be grateful that the interludes between the enemas appears to be lengthening.

All best to the rest of you having these problems.

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I have resorted to an enema a few times over the years. There is so much to living with an Ostomy that is for some reason under wraps. I just read about adding a charcoal capsule to the bag to control
Gas and odor. Why did I have to
to stumble upon this information.
BTW….coconut oil taken orally with a warm liquid helps with constipation.

REPLY
Profile picture for weymouthpaula @weymouthpaula

I too am eighty years old. Have had an ostomy for many years now. It is normal to have a random mucus discharge from your rectum. It is the natural bowl lubricant.
Without this discharge, the mucus could build up into a grey "ghost turd". That's what they called it!
I am doing fine as is and have no intentions of ever doing a reversal. Give yourself time to adjust.

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@weymouthpaula said: Without this discharge, the mucus could build up into a grey "ghost turd". That's what they called it!

So now I have a name to put to my problem? I must admit I couldn't find any references to mucus in the description. I don't have any of the symptoms of Diversion colitis and I've seen the colorectal surgeon twice on this matter and apparently there's nothing out there that will help.

So I'll keep on doing what I've been doing all along and be grateful that the interludes between the enemas appears to be lengthening.

All best to the rest of you having these problems.

REPLY
Profile picture for weymouthpaula @weymouthpaula

I too am eighty years old. Have had an ostomy for many years now. It is normal to have a random mucus discharge from your rectum. It is the natural bowl lubricant.
Without this discharge, the mucus could build up into a grey "ghost turd". That's what they called it!
I am doing fine as is and have no intentions of ever doing a reversal. Give yourself time to adjust.

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Thank you for your input. I am still learning and I do not think I will have a reversal....

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Profile picture for klancee47 @klancee47

I am 78 and decided when I got my colostomy that I was not ready for another surgery and decided to wait until I had to have it. If I had a problem that made it mandatory for surgery, It has not happen yet and I fear another surgery. With each one it just becomes closer to a problem happening. So I am not having a reversal. My colostomy surgery was 4/18/2017, and so far no problems. I have had so many surgeries that I fear another one if it is not needed.
I change my bag once a week maybe even 9 days. I always clean my skin well with washing it and them I use an alcohol wipe or two to sterilize the skin around my stoma so I am not putting the flange/faceplate over bacteria that may be left behind from washing. I have never had a skin break out and I really believe it is because I use the alcohol wipes first so no bacteria can grow under the flange.

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I was shocked to see that your surgery was 4/18/2017......mine was 04/18/2025 and I feel like you do. It left me very weak and muscle deprived, along with an edema problem. I do not want to have another surgery either!!

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Profile picture for kasandphyl1 @kasandphyl1

I had my surgery about 18 weeks ago for a ruptured bowel and I am 80 years old and do not know if I can go through with another surgery, so I am thinking about not having it reversed. I have had slight discharges all along after about a month and my doctor told me it was not uncommon for that to happen at a small rate as long as you are not bleeding. My rectum isn't even hooked up to my bowl, so I have no idea where it comes from. I have been wearing a pad since my surgery for my urine control after they put a catheter in me prior to other issues. If you feel like there is to much fluid coming out I would check with my doctor and let them know. Kas

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I am 78 and decided when I got my colostomy that I was not ready for another surgery and decided to wait until I had to have it. If I had a problem that made it mandatory for surgery, It has not happen yet and I fear another surgery. With each one it just becomes closer to a problem happening. So I am not having a reversal. My colostomy surgery was 4/18/2017, and so far no problems. I have had so many surgeries that I fear another one if it is not needed.
I change my bag once a week maybe even 9 days. I always clean my skin well with washing it and them I use an alcohol wipe or two to sterilize the skin around my stoma so I am not putting the flange/faceplate over bacteria that may be left behind from washing. I have never had a skin break out and I really believe it is because I use the alcohol wipes first so no bacteria can grow under the flange.

REPLY
Profile picture for kasandphyl1 @kasandphyl1

I had my surgery about 18 weeks ago for a ruptured bowel and I am 80 years old and do not know if I can go through with another surgery, so I am thinking about not having it reversed. I have had slight discharges all along after about a month and my doctor told me it was not uncommon for that to happen at a small rate as long as you are not bleeding. My rectum isn't even hooked up to my bowl, so I have no idea where it comes from. I have been wearing a pad since my surgery for my urine control after they put a catheter in me prior to other issues. If you feel like there is to much fluid coming out I would check with my doctor and let them know. Kas

Jump to this post

I too am eighty years old. Have had an ostomy for many years now. It is normal to have a random mucus discharge from your rectum. It is the natural bowl lubricant.
Without this discharge, the mucus could build up into a grey "ghost turd". That's what they called it!
I am doing fine as is and have no intentions of ever doing a reversal. Give yourself time to adjust.

REPLY
Profile picture for kasandphyl1 @kasandphyl1

I had my surgery about 18 weeks ago for a ruptured bowel and I am 80 years old and do not know if I can go through with another surgery, so I am thinking about not having it reversed. I have had slight discharges all along after about a month and my doctor told me it was not uncommon for that to happen at a small rate as long as you are not bleeding. My rectum isn't even hooked up to my bowl, so I have no idea where it comes from. I have been wearing a pad since my surgery for my urine control after they put a catheter in me prior to other issues. If you feel like there is to much fluid coming out I would check with my doctor and let them know. Kas

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I got a diversion colitis in my rectum about 2 months after my colostomy. I had a reversal and that was supposed to take care of it but I ended up needing a hemmorhoidectomy. I would have spontaneous mucous discharges and a stabbing pain every couple days plus blood but I did have hemorrhoids too. I found out after the fact that there are foams and meds that can be used to help that especially if you have a permanent colostomy.

REPLY

I had my surgery about 18 weeks ago for a ruptured bowel and I am 80 years old and do not know if I can go through with another surgery, so I am thinking about not having it reversed. I have had slight discharges all along after about a month and my doctor told me it was not uncommon for that to happen at a small rate as long as you are not bleeding. My rectum isn't even hooked up to my bowl, so I have no idea where it comes from. I have been wearing a pad since my surgery for my urine control after they put a catheter in me prior to other issues. If you feel like there is to much fluid coming out I would check with my doctor and let them know. Kas

REPLY
Profile picture for klancee47 @klancee47

Sounds like you are a lucky one if your mucus is manageable morning and nigh. Mine is almost all day and about three tablespoons each time. I have found that dairy products make it worse and more active, so I try to not eat dairy when I know I have to go out into public places like doctors and grocery stores.
I don't know what a loop colostomy is or what it looks like, I think I will look it up. I have a colostomy sense 4-2017. I didn't get the mucus right away it was about four years before I had it. Seems strange to me that it was that long and now so much output, but I don't understand the whole anatomy thing and how it works. So it is live and learn everyday.
I hope your stays controllable and that you don't get the same problems I have, each of us are living with different outcomes.
have a blessed day

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@klancee47 So it is live and learn everyday. Truer words were never spoken. And the doctors often don't seem to know any more than we do. In the end it's often from each other that we can figure it out.

If you are experiencing all that mucus, chances are you also have a loop colostomy.

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