Stomach like a beer belly after colon cancer surgery

Posted by nannytart @nannytart, Sep 8, 2016

in november i had 12" of my colon removed.my stomach is like a beer belly. is this normal

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

@sderose

Been two for me and still working on it. Never heard the Kegel suggestion but definitely do the belly rub out of intuition it helps. All my best to you. Walking does help me now that my diarrhea is somewhat under control.

Jump to this post

Hi. I am glad you are working to get better. If you have the diarrhea under control in two months, you are doing much better than I did. I am at 11 months since my colon resection for diverticulitis and things finally seem to be settling down. My distended stomach is getting flatter and I am down from 6 or more bowel movements in a 24 hour period to about three. And they are more well formed. Sure taking a long time. I actually experimented with stopping pro/prebiotics (Culturelle) and Benefiber. I had read that the pro and prebiotics are not always the best for IBS, which I have had a long time and which my doctor said could have been exacerbated by the surgery. Now I take just 1/2 teaspoon of psyllium husk powder in water and a couple of enzyme capsules with meals. Those changes made a big difference in the frequency and consistency of my bowel movements.
And I have not had any pain for several months, except once in a while when I eat or drink the wrong thing and create gas. I only drink decaffeinated coffee and tea and upon the advice of my doctor, avoid lactose. There are a lot of lactose free products out there.. milk, cottage cheese, sour cream, etc. and it no longer has to be oat or almond based. Aged cheeses like Parmesan and Gouda are naturally low in lactose.

REPLY
@sderose

Been two for me and still working on it. Never heard the Kegel suggestion but definitely do the belly rub out of intuition it helps. All my best to you. Walking does help me now that my diarrhea is somewhat under control.

Jump to this post

Interesting comment and reply. Please can you tell me more as soon as you can. My spouse has the same issues and we will try what you recommend what massage for the colon do you do. How is it done and what gel used. Give me as much detail as you can as it will help me to advise. Thanks yiannis

REPLY
@robinmacdonald

I also have to eat less and have problems with fibrous foods, like beef or stringy chicken. Ground beef is Ok. I was down to 112 lbs. after surgery and am now up to about 123, which is a good weight for my 5’4” frame. I have been told that my extended stomach could be due to gas trapped while my colon is still recovering to normal since my 2/4/21 colon resection surgery for diverticulitis. It is slowly getting better, as is the frequency, shape and consistency of my stool. Also, the physical therapist to which my Cedars surgeon referred me has said it is most likely scar tissue (adhesions) making my stomach look swollen, which will soften with time. She has me massaging my colon with a gel twice a day for 5 minutes. And increasing my Kegel exercises to help my rectum evacuate properly. The colon runs in an upside down U, up from near the right hip, across under the ribs and the down near the left hip. I also massage the middle of my tummy where the robot pulled out the diseased section. I had laparoscopic robotic surgery.
Yes, let us know what your surgeon says. My physical therapist told me every colorectal surgeon she speaks to says it takes at least a year following surgery for the colon to function normally.

Jump to this post

Been two for me and still working on it. Never heard the Kegel suggestion but definitely do the belly rub out of intuition it helps. All my best to you. Walking does help me now that my diarrhea is somewhat under control.

REPLY
@osafo

Hi Gustavo,
There are some things that I’ve noticed as I started a journal. One is that if I have difficulty sleeping (which happens to me at least once or twice a week), then the abdominal swelling, bloating and diarrhea is much worse. The second thing is that I increased my prebiotic and probiotics each day. That also helps. Recently I got a membership to a company that delivers organic frozen fruit and veggies and I started making smoothies every day. I have not been able to eat fresh veggies for the last several years and I miss salads terribly. For me, this has helped me with feeling so “broken” if that makes sense. I’ve found that there is no help from my doctors, so I will take charge and not depend on them for help with this issue. I have one more check up next July for my 5 years meeting. My goal for next year is to have a plan that works so I can live and continue to get better.
Colleen, your welcome to me meant the world and it gave me an emotional “push” to take the bull by the horns.

Jump to this post

I hear you on the missing salads and fresh raw fruits and veggies. I am also going to try smoothies. Hope you feel better. I had bowel resection in two stricture locations two years ago and have spent a ton on time, insurance and my money on tests, meds, dr's ideas, etc. I am going to try to walk as much as I can (diarrhea under better control) and as you are, creating my own health plan. Good luck to you. It was inspiring to read.

REPLY
@terrip

Great to hear you are looking at options for fiber. We have to be our own best advocate and that is why this site is so helpful to patients.
My husband manages this tummy balance daily. He also has
adhesions that make it more challenging than the chemo he completes, so I don't discount your discomfort one bit. I wanted to share more in case it is helpful. Milk of Magnesia has been his over the counter choice for moving things (metimucil caused cramping for him). He does stool softeners daily as I mentioned, however recently worked with the oncologisy and fluctuate use of Constulose (enulose, lactulose liquid) and Linzess to ensure we don't find ourselves in the ER for blockage. I recommend "bending the ear" of your doctor/surgeon/oncologist (whomever's focus you have) and ensure they know the discomfort and partner for a solution. Keep asking the questions. I apologize for being so verbose. 🙁
🙂 Have a great day!

Jump to this post

I thank you for your input. I actually used Linzes yesterday to avoid blockage, my stomach was becoming so hard and painful I took matters into my own hands, and today I feel relief. Put another message into my care team. I have been suffering for too many years to go backwards and have come to realize that sometimes I have to do for myself than inform the doctors if you know what I mean. My follow up has been pushed out another 3 months, it is impossible to get appointments at BSW in Central Tx. It took over a year to get the surgery done and a day longer I would have been dead from the large and multiple abscesses and growths and blockages and infections in my colon the stricture was caused by the radiation treatments I had for cancer several years ago. I know too much information. I do appreciate your response. It helps to know someone understands and has some useful information to share. Have a Blessed Day

REPLY
@maureen54

I feel like I am trying to hard some days. What really is bothersome is this bloating and heavy feeling. I know I have had several previous abdominal surgeries and have adhesions but this is the worst. Will switch up my fiber list and see if that helps. I have a feeling this is going to be a long journey. Hope your hubby is doing well. This sure isn't as easy a recovery as I was led to believe.

Jump to this post

Great to hear you are looking at options for fiber. We have to be our own best advocate and that is why this site is so helpful to patients.
My husband manages this tummy balance daily. He also has
adhesions that make it more challenging than the chemo he completes, so I don't discount your discomfort one bit. I wanted to share more in case it is helpful. Milk of Magnesia has been his over the counter choice for moving things (metimucil caused cramping for him). He does stool softeners daily as I mentioned, however recently worked with the oncologisy and fluctuate use of Constulose (enulose, lactulose liquid) and Linzess to ensure we don't find ourselves in the ER for blockage. I recommend "bending the ear" of your doctor/surgeon/oncologist (whomever's focus you have) and ensure they know the discomfort and partner for a solution. Keep asking the questions. I apologize for being so verbose. 🙁
🙂 Have a great day!

REPLY
@terrip

Hi Maureen. I’m sorry your struggling. My husband takes anti gas medicine (gas x etc.) as he has had similar issues. Also, sometimes what you intake as fiber can be switched up as well. We have learned that trying different options allows him to find what is best for “him”. You know your body best but of course touch base with your doc to make sure you are safe. Sending you hope of speedy relief.

Jump to this post

I feel like I am trying to hard some days. What really is bothersome is this bloating and heavy feeling. I know I have had several previous abdominal surgeries and have adhesions but this is the worst. Will switch up my fiber list and see if that helps. I have a feeling this is going to be a long journey. Hope your hubby is doing well. This sure isn't as easy a recovery as I was led to believe.

REPLY
@maureen54

Had my Sigmoid colon resection surgery done November 17th ( removed a little over a foot of colon) I was home on the 3rd day, I was having frequent bowel movements, soft but formed, not the past few days not so much, they are not easy to pass and are small and pencil thin, I am starting to freak out. My stomach is sore and heavy bloated and sore, messaged my surgeon was advised the pain may be from to much activity drink more water and keep up the fiber intake. I actually feel worse than I did 2 weeks ago. Is this the normal course. How long does it take to start feeling better? I am so sore. I am 67 years old and I know it takes a little longer as one gets older, but boy howdy it all I got to say.

Jump to this post

Hi Maureen. I’m sorry your struggling. My husband takes anti gas medicine (gas x etc.) as he has had similar issues. Also, sometimes what you intake as fiber can be switched up as well. We have learned that trying different options allows him to find what is best for “him”. You know your body best but of course touch base with your doc to make sure you are safe. Sending you hope of speedy relief.

REPLY

Had my Sigmoid colon resection surgery done November 17th ( removed a little over a foot of colon) I was home on the 3rd day, I was having frequent bowel movements, soft but formed, not the past few days not so much, they are not easy to pass and are small and pencil thin, I am starting to freak out. My stomach is sore and heavy bloated and sore, messaged my surgeon was advised the pain may be from to much activity drink more water and keep up the fiber intake. I actually feel worse than I did 2 weeks ago. Is this the normal course. How long does it take to start feeling better? I am so sore. I am 67 years old and I know it takes a little longer as one gets older, but boy howdy it all I got to say.

REPLY
@tbillz119

Hi everyone! I had my 3 month update with my Surgeon. All is well. Yes it will take some time for this belly to go down. She was concerned when I told her I lost 20lb weight loss. She asked was it intentional?
I told her after the surgery I couldn’t eat much and I continued to use small plates. She asked when do I see the Oncologist again I said in 3 months. They found a half pinky nail size polyp on my kidney and it’s being monitored. If it gets any larger they Will remove.

She said the irregular bowel movement is normal until my body gets used to the “new size of my colon”. I had foot of my colon removed. She mentioned to my sister after the surgery that the polyp removed was larger than the 8 cm originally thought.

She said I had a muscle spasm this weekend when I lifted a big bag of ice. I mentioned the pain I felt and she said that’s what is was.

Sorry for such a long post. I wanted to give the most in depth update.

If I was supposed to ask her something else I forgot LOL

Good luck to all of us!!!

Thank you all for giving the me the opportunity to be apart of such an informative group!!!

Jump to this post

Really appreciate the update TBillz. You must be grateful that your surgeon investigated the weight loss further. The kidney polyp may never cause any issues, but it’s good that it is being monitored.

REPLY
Please sign in or register to post a reply.