Had colon cancer and now CEA is rising: Scared

Posted by segerfan @segerfan, Apr 26, 2022

Colon cancer 10 year and now raised CEA
Just had a colonoscopy and it was fine. Went for my yearly check up and CEA is evaluated to 7. no weight loss, no loss of appetite. I am under a great deal of stress, family, marriage lose of a grandchild. Went back to vaping. Doctor is going to do a ct scan. I am scared to death.

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

Hang in there and remember stress is harmful! I’m trying myself to practice more stress-relieving techniques. Prayer/meditation/breathing exercises as well as long walks and maybe yoga. Anything to get that nervous energy better under control. Try the 4-7-8 breathing technique. It works wonders sometimes for me.

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I M not sure what you’re vaping but smoking can cause elevated CEA so it may be nothing. Were CEA levels a good indicator for you?

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@segerfan

They are scheduling a CT scan in the next couple days. So hopefully that will give some answers. Doctor knows just how much stress I am under. But getting this info today just added more to my stress level.

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CT scan today. Now for the waiting game for the results.

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Vaping is not good. It can cause MORE problems. Stay strong, there are remedies fir your condition. Stay close to your Doctor.

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@colleenyoung

Welcome, @segerfan, I can imagine you're scared. Any test coming back abnormal sets off alarm bells. And you've been under such stress lately. So sorry for the loss of your dear grandchild.

Other members like @denise777 @sallyg @revcindy and others here know exactly what it's like to see rising CEA levels before they get the full picture. It's really hard not to worry.

I want you to know that CEA testing is notorious for false positives, meaning that the test results may show high levels when they are actually not.

Here's more info:
– High False-Positive Rate of Elevated CEA Seen in Patients With Resected Colorectal Cancer https://www.ascopost.com/issues/august-15-2014/high-false-positive-rate-of-elevated-cea-seen-in-patients-with-resected-colorectal-cancer/

I know it's really hard not to be anxious, but as they say "don't put the cart before the horse." The CEA levels are a simple test that may indicate the need for further testing to investigate IF there is a change.

Has further testing been ordered or a second CEA test? When will you be able to have an appointment to talk with your oncologist about next steps?

Jump to this post

They are scheduling a CT scan in the next couple days. So hopefully that will give some answers. Doctor knows just how much stress I am under. But getting this info today just added more to my stress level.

REPLY

Welcome, @segerfan, I can imagine you're scared. Any test coming back abnormal sets off alarm bells. And you've been under such stress lately. So sorry for the loss of your dear grandchild.

Other members like @denise777 @sallyg @revcindy and others here know exactly what it's like to see rising CEA levels before they get the full picture. It's really hard not to worry.

I want you to know that CEA testing is notorious for false positives, meaning that the test results may show high levels when they are actually not.

Here's more info:
– High False-Positive Rate of Elevated CEA Seen in Patients With Resected Colorectal Cancer https://www.ascopost.com/issues/august-15-2014/high-false-positive-rate-of-elevated-cea-seen-in-patients-with-resected-colorectal-cancer/

I know it's really hard not to be anxious, but as they say "don't put the cart before the horse." The CEA levels are a simple test that may indicate the need for further testing to investigate IF there is a change.

Has further testing been ordered or a second CEA test? When will you be able to have an appointment to talk with your oncologist about next steps?

REPLY
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