Collagenous Gastritis

Posted by e @epvb, Mar 27, 2017

I was recently diagnosed with collagenous gastritis which is very rare. I'm looking for anyone else who has similar diagnosis.

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for luft80 @luft80

Thank you for your speedy and comprehensive response. I really appreciate it! I will definitely make contact with Mayo Clinic in London. The iron tablets are controlling his CG, but once he ceased taking them earlier this year, he relapsed with severe anaemia, so we are back on the supplements and they have just added a PPI twice a day as well. He has no obvious other symptoms other than lethargy, which impacts his ability to play sport, socialise etc. I am glad to find this resource/forum, as my doctor in Spain has very limited knowledge of the condition.

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Hi @luft80. I just ran across this article listing top specialized hospitals worldwide. I sorted by speciality to find top 150 gastroenterology. Mayo tops the list and there are several closer to you in Spain, even Barcelona. The article explains ranking criteria and I do not know more beyond that. It may be worth digging into some of them a bit.

Newsweek Worlds Best Specialized Hospitals: https://rankings.newsweek.com/worlds-best-specialized-hospitals-2026/gastroenterology

I am interested to hear more as you take steps through the process of finding a top specialist for your son’s collagenous gastritis. Please come back and update.

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Profile picture for Janell, Volunteer Mentor @jlharsh

Hi @luft80. I just ran across this article listing top specialized hospitals worldwide. I sorted by speciality to find top 150 gastroenterology. Mayo tops the list and there are several closer to you in Spain, even Barcelona. The article explains ranking criteria and I do not know more beyond that. It may be worth digging into some of them a bit.

Newsweek Worlds Best Specialized Hospitals: https://rankings.newsweek.com/worlds-best-specialized-hospitals-2026/gastroenterology

I am interested to hear more as you take steps through the process of finding a top specialist for your son’s collagenous gastritis. Please come back and update.

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Thank you so much! I can see that the hospital that we are being referred to is on the list, which is very reassuring. I will come back and update once I know more, as it may help others in this forum with pediatric questions as well.

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