Collagenous Gastritis

Also seems like collagenous gastritis doesn't come by itself. My 18 yr old also has dysautonomia/POTs and thyroid issues. Diet has helped tremendously but not the cure all.

@kellye5 I also have leg pain/aches and have not heard anyone else complain about these. Is there anything that helps you with this or have any doctors made any recommendations for the leg aches? The drs I have seen who know about cg do not believe that the leg pain is associated with it. Thank you.

Hi, My daughter was diagnosed eight years ago starting with massive stomach bleeds. So we started out with severe symptoms, at the beginning, stomach pain, nausea, etc. She is 20 years old and in college. After finding the right diet for her and traditional medicine and alternatives that work, she rarely has symptoms like others with CG -- i.e., frequent nausea. However, she does more easily get motion sickness than most. I usually let her sit in the front seat because of that. She's not on the diet I'd like to see her on but since she's in college, she does the best she can. The drugs she's on are omeprazole (10 mg) 1 x day and an injection of Lanreotide which is supposed to be given every month to prevent stomach bleeds. However, she is trying to space it out to every 2 months, to see if she can get off of the drug eventually. She is a nursing student and can give herself her own shots. As far as alternatives and diet: she is on a gluten-free diet, not as strict as one with celiac, and limits processed food, tries to eat a whole food diet (hard to do in college), and the homeopathic medicine, Arnica Montana 30C, has been a lifesaver for her, literally, she thought she was having a bleed two different times, (and as many as she has had, she knows it), and both times the arnica has helped keep her hemoglobin level stay normal; a couple of days of weakness and she bounces back. (Western medicine poo-pahs homeopathy, but it has worked for us, it's cheap, and it can't hurt her.) I hope you find the right things for your daughter. It's a journey and maybe somewhat different for everyone. By the way, stress can seem to trigger symptoms but that can be true for everyone. She is learnig how to breath deeply and move on. Her faith in Jesus has helped tremendously. She has been able to see that CG has been a gift from God, directing her path to become a nurse, possibily a nurse anesthetists. So her circumstances have not impacted her vision, her vision has impacted her circumstances. She has 1 1/2 years to go to get her nursing degree. I'll be praying for your daughter. Also, you can participate in more in-depth conversations with others with CG on the Facebook Page: collagenous gastritis discussion group. There are some super mom's who have done exhaustive research on CG who may be able to help. Your daughter can participate in the group as well, maybe gain some insight how she can help herself. I'm bumping up my prayer life now because my daughter is on week 7 without her Lanreotide and she's over 500 miles away. Please pray for her as well.

Hi, My daughter was diagnosed eight years ago starting with massive stomach bleeds. So we started out with severe symptoms, at the beginning, stomach pain, nausea, etc. She is 20 years old and in college. After finding the right diet for her and traditional medicine and alternatives that work, she rarely has symptoms like others with CG -- i.e., frequent nausea. However, she does more easily get motion sickness than most. I usually let her sit in the front seat because of that. She's not on the diet I'd like to see her on but since she's in college, she does the best she can. The drugs she's on are omeprazole (10 mg) 1 x day and an injection of Lanreotide which is supposed to be given every month to prevent stomach bleeds. However, she is trying to space it out to every 2 months, to see if she can get off of the drug eventually. She is a nursing student and can give herself her own shots. As far as alternatives and diet: she is on a gluten-free diet, not as strict as one with celiac, and limits processed food, tries to eat a whole food diet (hard to do in college), and the homeopathic medicine, Arnica Montana 30C, has been a lifesaver for her, literally, she thought she was having a bleed two different times, (and as many as she has had, she knows it), and both times the arnica has helped keep her hemoglobin level stay normal; a couple of days of weakness and she bounces back. (Western medicine poo-pahs homeopathy, but it has worked for us, it's cheap, and it can't hurt her.) I hope you find the right things for your daughter. It's a journey and maybe somewhat different for everyone. By the way, stress can seem to trigger symptoms but that can be true for everyone. She is learnig how to breath deeply and move on. Her faith in Jesus has helped tremendously. She has been able to see that CG has been a gift from God, directing her path to become a nurse, possibily a nurse anesthetists. So her circumstances have not impacted her vision, her vision has impacted her circumstances. She has 1 1/2 years to go to get her nursing degree. I'll be praying for your daughter. Also, you can participate in more in-depth conversations with others with CG on the Facebook Page: collagenous gastritis discussion group. There are some super mom's who have done exhaustive research on CG who may be able to help. Your daughter can participate in the group as well, maybe gain some insight how she can help herself. I'm bumping up my prayer life now because my daughter is on week 7 without her Lanreotide and she's over 500 miles away. Please pray for her as well.