Clinical Trials for Neuropathy

Thanks @john Bishop

If you live in and around the Minneapolis - St. Paul area you might want to consider volunteering for the nerve testing study at the William R. Kennedy Lab of the University of Minnesota - http://kennedylab.med.umn.edu/volunteer-nerve-testing-study. I believe he is working on developing an inexpensive test that can be done by your primary care doctor to test for peripheral neuropathy.

I may be interested. It depends on what the treatment involves. I will check it out. Thank you, John. Have you ever done any?

I've never done any neuropathy clinical trials but I have done 3 different heart studies at Mayo Clinic Rochester. The studies were for high blood pressure and done through St. Mary's Hospital in Rochester. I actually benefited from the 3rd study. They changed my blood pressure meds because they determined I had a specific type of hypertension.

If you live in and around the Minneapolis - St. Paul area or within driving distance, the Minnesota Neuropathy Association (http://neuropathy-mn.org/) is having there next monthly meeting on Thursday, August 31, 2017 at 1:00 PM. It looks to be an interesting meeting.

Dr Allen: Neuropathy updates from the University of Minnesota: Active and future clinical trials

DR ALLEN, a neuromuscular specialist and clinical investigator, will discuss clinical trials at UMN that are currently enrolling and those that are expected over the next year. Included will be trials relevant to inflammatory neuropathies, diabetes, hereditary neuropathies, and others. The presentation will be followed by a question and answer discussion, open to any question of neuropathy not limited to clinical trials.

Meeting location:
St. Michael’s Lutheran Church
9201 Normandale Boulevard,
Bloomington, MN 55437
Directions: http://minnesotaneuropathyassociation.org/wp-content/uploads/Directions-to-St-Michaels.pdf

Meeting Flyer (PDF): http://neuropathy-mn.org/wp-content/uploads/MNA-flyer-8-17.pdf

John

I live in the state of Missouri. I know that KC, St. Luke's Hospital specifically conducts clinical trials in Neuropathy. My thoughts about being involved. Depends on your situation. Personally I would be willing to be involved if the treatment involved medical cannabis because it's natural. At this time though the state of Missouri isn't allowing medical cannabis YET.
WHAT thoughts or info do you all have?
Darlia

I can't find anything on St. Luke's website about clinical trials for neuropathy. Could you please send me a link. I do know that Washington University medical school is doing some work with neuropathy.

Hi @steeldove - did you try searching on the link posted inside the discussion description at the top? You can search to see what clinical trials are close to where you live.

John

Yes, I've checked that link for clinical trials, but found nothing that would apply. Most of the studies involve neuropathy caused by diabetes or chemotherapy, and my form of neuropathy is not connected to those condition.

Hi @steeldove, here's another search link but I'm guessing it might not show anything either. I think a lot of the current reseach is in diabetic or chemo induced neuropathy but I'm not sure.

Another idea might be to make contact with local neuropathy support group if you are able to locate one. Here is a site to help find something closer to you:

John