1. < Neuropathy

CIDP. HIZENTRA LONG TERM USE

Posted by ilovetarancon @ilovetarancon, Feb 8 3:51pm

I have been on hizentra with biweekly treatments for the last 13 months.
My doctor said it could a treatment for life . Has anyone stopped treatment?
As I have seen some have small red spots around the hairline and in the folicles which I also have.
Does anyone know about long term effects of this medication.

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nbailey7uh2edu3 | @nbailey7uh2edu3 | Feb 8 5:30pm

I tend to get the same red spots with certain brand of the IVIG. I was told it was an allergic response.

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kgitti | @kgitti | Mar 13 12:36am

I have been on Hyzentra, 40grams weekly for 18 months and have not seen that or any side effects.

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b09rmf1 | @b09rmf1 | Apr 8 3:57pm

I have been on Hizentra for 16 months with no side effects

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ycomorris | @ycomorris | Apr 17 12:16am

I’ve been in Hizentra 11 grams since 2020 I’ve never had side effects

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