1. < Chronic Pain

Chronic pain people that fall through the cracks!

Posted by johnjustice42 @johnjustice42, Jul 19 2:16pm

I have been on methadone for 23 years for a failed back surgery, I like methadone it doesn’t mess with your head like some other opioids. Only need 30 mg per day. But about 3 months ago at my visit with the pain Dr. I accidentally mixed my last methadone tabs with my bp meds that withought my glasses look just alike. I never asked for meds early, in 8 yrs of seeing him never had a problem. They had performed numerous procedures, implanted a Spinal Cord Stimulator that no longer works. Well he cut my methadone off and told me he would give me no more oral meds, I couldn’t believe it, he said however he would be willing to put in a pain pump ( which I do like the idea of ), but it’s been 3 months now and they keep giving me the runaround. I am absolutely miserable. To the point of looking into a methadone clinic, but they won’t see me because I’m not at that point yet. So I guess I have to do something bad to get help. This isn’t right to let someone suffer this way. I’m heading to a dark place and this scares me. My pain Dr. sees me as a criminal and won’t help and the methadone clinic does think I qualify for their help, so what do I do? My BP is out of control along with my sugar! I haven’t slept more that 2 hrs a night for over 2 months now. Anyone have any suggestions? I know I can’t be the only one to go through this!

Thanks,

John

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budo7 | @budo7 | Jul 20 4:01am

Sorry your dealing with this bs. Keep your head up. I pray a lot which seems to help for me.
Have you tried finding a new pain doctor?

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1 reply
dlydailyhope | @dlydailyhope | Jul 20 6:32am

@johnjustice42
Are you working with a primary doctor, cardiologist and endocrinologist to manage your BP and sugars? What is causing them to be out of control? Do you take medications? You need to get your BP and sugars under control because they are just worsening your other symptoms, especially if you are not sleeping. Do you have a psychologist to help you manage living with chronic pain and if you have depression? Are you taking any medications for depression? Are you doing physical therapy to help you manage pain?

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1 reply
johnjustice42 | @johnjustice42 | Jul 20 8:14am
In reply to @budo7 "Sorry your dealing with this bs. Keep your head up. I pray a lot which seems..." + (show)
@budo7

Sorry your dealing with this bs. Keep your head up. I pray a lot which seems to help for me.
Have you tried finding a new pain doctor?

Jump to this post

I have but once they see his notes they refuse to see me.

Thanks

REPLY
johnjustice42 | @johnjustice42 | Jul 20 8:21am
In reply to @dlydailyhope "@johnjustice42 Are you working with a primary doctor, cardiologist and endocrinologist to manage your BP and..." + (show)
@dlydailyhope

@johnjustice42
Are you working with a primary doctor, cardiologist and endocrinologist to manage your BP and sugars? What is causing them to be out of control? Do you take medications? You need to get your BP and sugars under control because they are just worsening your other symptoms, especially if you are not sleeping. Do you have a psychologist to help you manage living with chronic pain and if you have depression? Are you taking any medications for depression? Are you doing physical therapy to help you manage pain?

Jump to this post

I am working with all of those Dr’s. The thing is before he quite giving me the methadone all my numbers were in check with medication. I feel it’s from the lack of sleep and the increased pain. The psychologist might be a good option to look into, I’ve not been to one in years. Thanks for the insight, I am making appointments with the other docs, just hard, I am absolutely miserable.

Thanks again

REPLY
2 replies
dlydailyhope | @dlydailyhope | Jul 20 8:39am
In reply to @johnjustice42 "I am working with all of those Dr’s. The thing is before he quite giving me..." + (show)
@johnjustice42

I am working with all of those Dr’s. The thing is before he quite giving me the methadone all my numbers were in check with medication. I feel it’s from the lack of sleep and the increased pain. The psychologist might be a good option to look into, I’ve not been to one in years. Thanks for the insight, I am making appointments with the other docs, just hard, I am absolutely miserable.

Thanks again

Jump to this post

@johnjustice42
I empathize with you. I love with chronic pain and miserable/depressed. I am getting spine surgery soon due to congenital stenosis/DDD/neurogenic claudication. Have you had spinal injections to help you with pain and do you take melatonin to help you sleep? Your brain does get altered with long-term pain medication. It is sad that pain doctors would abruptly drop their patients knowing how hard it is for them going off cold turkey without other alternatives made available to them. That almost seems criminal. Have you been to a clinic to help you manage withdrawal symptoms?

REPLY
1 reply
dlydailyhope | @dlydailyhope | Jul 20 8:40am
In reply to @johnjustice42 "I am working with all of those Dr’s. The thing is before he quite giving me..." + (show)
@johnjustice42

I am working with all of those Dr’s. The thing is before he quite giving me the methadone all my numbers were in check with medication. I feel it’s from the lack of sleep and the increased pain. The psychologist might be a good option to look into, I’ve not been to one in years. Thanks for the insight, I am making appointments with the other docs, just hard, I am absolutely miserable.

Thanks again

Jump to this post

Correction, live with chronic pain. Definitely don’t “love” it. Lol

REPLY
joybo99 | @joybo99 | Jul 20 9:09am

I had to comment only because I recently became aware of the harshness
many pain patients are treated with under the new regulations.
It seems very unfair and makes me angry just thinking about it.
I hope you can get that pain pump soon and that it will be the answer to this issue. Good luck & God bless you.

REPLY
1 reply
johnjustice42 | @johnjustice42 | Jul 20 9:23am
In reply to @dlydailyhope "@johnjustice42 I empathize with you. I love with chronic pain and miserable/depressed. I am getting spine..." + (show)
@dlydailyhope

@johnjustice42
I empathize with you. I love with chronic pain and miserable/depressed. I am getting spine surgery soon due to congenital stenosis/DDD/neurogenic claudication. Have you had spinal injections to help you with pain and do you take melatonin to help you sleep? Your brain does get altered with long-term pain medication. It is sad that pain doctors would abruptly drop their patients knowing how hard it is for them going off cold turkey without other alternatives made available to them. That almost seems criminal. Have you been to a clinic to help you manage withdrawal symptoms?

Jump to this post

Best of luck with your surgery I am praying for a positive outcome! I will try the melatonin. I have had many blocks, ablation therapy, you name it I’ve tried it acupuncture, acupressure, meditation, and PT.

Thanks again!

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1 reply
johnjustice42 | @johnjustice42 | Jul 20 10:48am
In reply to @joybo99 "I had to comment only because I recently became aware of the harshness many pain patients..." + (show)
@joybo99

I had to comment only because I recently became aware of the harshness
many pain patients are treated with under the new regulations.
It seems very unfair and makes me angry just thinking about it.
I hope you can get that pain pump soon and that it will be the answer to this issue. Good luck & God bless you.

Jump to this post

Thank you so much, it is a huge problem. Hopefully it will solve a lot.

Thanks again!

REPLY
jenatsky | @jenatsky | Jul 21 3:29pm

@johnjustice42 try this which may cover you for any addiction issues you may still have. Buprenorphine is used in pill form and buccal film form for SUD at a higher dose. In the skin patch formulation it releases a small amount of medicine 24/7. I use a patch 20mcg/x7 days for my chronic pain and it works wonders.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4675640/

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