IBS, diabetes and now issues my pancreas: Thoughts?
Good morning. I'm not sure this is the right group for me, but I belong to several Mayo groups and I am impressed with the amount of support and caring I have experienced. As far as I know I do not have pancreatic cancer, but I can't find a group for other pancreatic problems. If this is not the group for me, maybe someone can redirect me.
At last week's meeting with my primary doctor, she reviewed data from my Dexcom G7 and my use of both long and short term insulin and said in simple terms that the pancreas has "given up" and essentially stopped working to control glucose levels. This concerns me and I would like to hear from people in a like situation.
Now, for more background:
I was diagnosed with acute pancreatitis in an emergency room visit a couple of years ago, several months after a six-month course of Long Covid. Diagnosis was based on symptoms and pancreatic enzyme levels that were abnormal. Lipase and amylase levels were wrong with one high and one low, but I don't remember which was which at this point. I was referred to GI and told to eliminate all beef, lamb and pork from my diet, along with greasy foods. The next round of blood work (after about 60 days) was better but not perfect, so I added OTC digestive enzymes. The next round of pancreatic enzyme tests were fine and all subsequent tests were fine. I added lean pork back to the diet with no problems because I was tired of just chicken, turkey, and fish. My primary doctor was fine with the addition of OTC digestive enzymes.
I am 71 with a 56 year history of IBS and a 35 year history of diabetes. IBS is different for everyone, in my opinion, and in my case I cannot eat most vegetables or beans without immediate issues. After 56 years with this, I know what to eat and what not to eat for my specific body situation
After managing diabetes with prescription pills for many years with up and down results, my primary suggested diabetic injectables. We tried Victoza, Bydureon, and Ozempic. At the preferred (highest) level of each drug, I had various IBS issues and with Ozempic at the upper level, I developed cardiac issues (a rare side effect, but I developed it). My cardiologist suggested stopping the Ozempic completely, and all cardiac symptoms went away in 8 to 10 days. The primary doctor suggested long-term insulin at night, but my Dexcom G7 was still showing big spikes during the day with highs and lows for sugar, so the endo doc added short term insulin. That has helped considerably, smoothing out the big peaks and valleys to where my 14 day average now show as about 150 throughout the course of the day with me in the green zone 70 percent of the time.
I've read that a pancreas can just stop working. Apparently, this may be called pancreatic insufficiency or chronic pancreatitis (versus the acute I was diagnosed with) although my doctor did not say that.
Does any of this make sense to anyone and is there a group here at Mayo that deals with a chronic or acute or non-working pancreas? I don't want to bother the readers dealing with pancreatic cancer with my far less important issues (at least less important in my mind than cancer). I'm so sorry that you are dealing with cancer when I am only dealing with something that I seem to be able to control with glucose management, diet, and exercise, although I do not consider my quality of life to be as good as it was in previous years.
Thank you to anyone who has read this far and would like to respond.
Frank
Interested in more discussions like this? Go to the Digestive Health Support Group.
Hi @fpc3, I moved your question to the Digestive Health support group and the Diabetes/Endocrine system support group, where you can connect with other members are familiar pancreatic conditions like @cehunt57 @hopethereisnothing @susanh824 @debhammel @grannydee @jewill @fbbraha and others.
Frank, has it been determined in the meantime if you have pancreatic insufficiency or chronic pancreatitis or something else? How are you doing?