C. diff, SIBO and chronic nausea

Posted by jillannw @jillannw, Dec 25, 2018

I started 8 months ago with either food poisoning or a stomach flu. I have never recovered. I have had every test done and continue to suffer from nausea everyday. In the middle of this I was diagnosed with and treated for c-diff twice but because I didn’t have the classic symptoms the drs at Mayo thought they were false positives. I also was diagnosed and treated for SIBO twice. The nausea everyday which is where this all started never went away. Has anyone had this and come up with a solution?

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Profile picture for Kanaaz Pereira, Connect Moderator @kanaazpereira

Hello @darweshalassi, and welcome to Mayo Clinic Connect. It must be so stressful to have these symptoms, but no diagnosis!
I'd like to invite into this discussion more members who’ve talked about digestive issues, and who can perhaps speak to psychological issues and whether they have had any physical manifestations such as the chronic nausea you are experiencing.
Please meet @peabody88 @legallyred @jacque6977 @jlfisher56 @bobbiejean @melaniewa @lighthouseceliac @jeffreysgirl13 @astaingegerdm @pamshil58.

I’d also encourage you to go through some of these discussions on Connect:
– Small Intestine Bacteria Overgrowth (SIBO) https://connect.mayoclinic.org/discussion/small-intestine-bacteria-overgrowth/
– Somatic Symptom Disorder SSD https://connect.mayoclinic.org/discussion/somatic-symptom-disorder-ssd/
– Functional Neurological Disorder https://connect.mayoclinic.org/discussion/functional-neurological-disorder/

From what you’ve shared, @darweshalassi, it seems the antidepressant worked; have you considered going back to the psychiatrist?

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Hello , Thank u for ur Reply !
actually im going to another psychiatrist after 2 days and i`ll see what will happen ..i just Cant live like that even anti-nuasea med`s didnt work

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Profile picture for peggyn @peggyn

I had something very similar to this .Did the PPI and have gerd , still do. I was nauseated all od the time. Nothing showed up on ct scan.I think it was the ultra sound that finally did the trick. Found out it was my gallbladder. They said it was dieaseaded . Had it removed and I have not been nauseated since.

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Hello Thank u for ur reply .. actually i did ultrasound 3 times and nothing worng

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Profile picture for darweshalassi @darweshalassi

Hello ! how are you alli have a problem since 2 years and half , suddenly felt nauseating and i want to vomit so i went to the w/c and i thought its normal , but the nausea still with me !so i went to an internal doctor and he Gave me anti-nausea ( domby ) + ppi he said it could be GERD so i took them for like 8 month and nothing happened still ( nausea ) , i went to gastroenterology and i did Endoscopy and everything was fine ! i dont know what is happeneing to methen the Doctor said maybe u have a psycological problem , so i went to the psychiatry and the DR Gave me anti-deppression med`s .. actually after 1 month i felt good ! the nausea disappear and i was telling me SELF thanks GOD ! im BACK !and i kept using it for 9 month then the DR said lets stop it by lowering the Dose becuase u are fine now .. so i was happy now 3 month since i stoppped the Medicine ,, the Nausea Came BACK again .. the Same way it was before ..and there is a lot of gurgles and voices its like small burbs , upper the esophugus , and sometimes i feel like someone holding my NECK and if someone touched my neck i`ll Vomit immediatlly ;(i really dont know what to do ,, i cant Work sometimes i feel i just want to stay HOME all the time i cant meet ppl cuz when someone see me they think that my reaction to them like im nauseating from them .. but its not !!!is there anyone who is suffering like that and what he or she did to treat this ;(thanks for reading

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@darweshalassi - I had a few months of constant nausea at one point- I understand how miserable you must be. I finally saw GI at Mayo again. The thought was that it was caused by GERD. At the visit I also got Rx for Zofran for nausea. It worked very well and I would take it in the morning before getting out of bed. It wasn’t long before I could do without it.
Another thought- antidepressants helped you- SSRI ( serotonin reuptake inhibitor) I assume since that is most common nowadays. Our GI tract also likes serotonin- who knows how the antidepressant helped you. However, I suggest you also ask your doctor if you can try Zofran.

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Profile picture for darweshalassi @darweshalassi

Hello ! how are you alli have a problem since 2 years and half , suddenly felt nauseating and i want to vomit so i went to the w/c and i thought its normal , but the nausea still with me !so i went to an internal doctor and he Gave me anti-nausea ( domby ) + ppi he said it could be GERD so i took them for like 8 month and nothing happened still ( nausea ) , i went to gastroenterology and i did Endoscopy and everything was fine ! i dont know what is happeneing to methen the Doctor said maybe u have a psycological problem , so i went to the psychiatry and the DR Gave me anti-deppression med`s .. actually after 1 month i felt good ! the nausea disappear and i was telling me SELF thanks GOD ! im BACK !and i kept using it for 9 month then the DR said lets stop it by lowering the Dose becuase u are fine now .. so i was happy now 3 month since i stoppped the Medicine ,, the Nausea Came BACK again .. the Same way it was before ..and there is a lot of gurgles and voices its like small burbs , upper the esophugus , and sometimes i feel like someone holding my NECK and if someone touched my neck i`ll Vomit immediatlly ;(i really dont know what to do ,, i cant Work sometimes i feel i just want to stay HOME all the time i cant meet ppl cuz when someone see me they think that my reaction to them like im nauseating from them .. but its not !!!is there anyone who is suffering like that and what he or she did to treat this ;(thanks for reading

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My mom is now 84 and has been experiencing chronic nausea for 6 yrs that use to be seasonal in Alabama (Feb - Oct), but now year round. She has recently started taking Imipromene to reduce the sensitivity of the gut which takes several weeks to start working, but about the time it seemed to be working she had a bad UTI and of course a round of antibiotics. Her nausea during the UTI and antibiotics was high level and around the clock coupled with anxiety and lack of sleep. She is taking Nexium and now Phenergen (vs Reglan which stopped working after 2 months). Her gut seems more sensitive so we are trying to give her foods with probiotics and prebiotics to build the healthy bacteria again. Phenergan is helping her sleep at night better, but unstable due to dizziness. We are not sure what to do and her gastroenterologist seems puzzled. We are also going to try the ReliefBand and praying that works for her! Any suggestions of a great doctor in Alabama or near?

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Profile picture for janethmc @janethmc

My mom is now 84 and has been experiencing chronic nausea for 6 yrs that use to be seasonal in Alabama (Feb - Oct), but now year round. She has recently started taking Imipromene to reduce the sensitivity of the gut which takes several weeks to start working, but about the time it seemed to be working she had a bad UTI and of course a round of antibiotics. Her nausea during the UTI and antibiotics was high level and around the clock coupled with anxiety and lack of sleep. She is taking Nexium and now Phenergen (vs Reglan which stopped working after 2 months). Her gut seems more sensitive so we are trying to give her foods with probiotics and prebiotics to build the healthy bacteria again. Phenergan is helping her sleep at night better, but unstable due to dizziness. We are not sure what to do and her gastroenterologist seems puzzled. We are also going to try the ReliefBand and praying that works for her! Any suggestions of a great doctor in Alabama or near?

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Maybe she should have fecal elastase testing to rule out EPI.

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Profile picture for janethmc @janethmc

My mom is now 84 and has been experiencing chronic nausea for 6 yrs that use to be seasonal in Alabama (Feb - Oct), but now year round. She has recently started taking Imipromene to reduce the sensitivity of the gut which takes several weeks to start working, but about the time it seemed to be working she had a bad UTI and of course a round of antibiotics. Her nausea during the UTI and antibiotics was high level and around the clock coupled with anxiety and lack of sleep. She is taking Nexium and now Phenergen (vs Reglan which stopped working after 2 months). Her gut seems more sensitive so we are trying to give her foods with probiotics and prebiotics to build the healthy bacteria again. Phenergan is helping her sleep at night better, but unstable due to dizziness. We are not sure what to do and her gastroenterologist seems puzzled. We are also going to try the ReliefBand and praying that works for her! Any suggestions of a great doctor in Alabama or near?

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What does a doctor say about the fact that it started out seasonal and what is their different about where she lives

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Profile picture for susanh824 @susanh824

Maybe she should have fecal elastase testing to rule out EPI.

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Hi Susan -- yes her Gastroenterologists have done a fecal test and said all was fine there. Thank you.

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Profile picture for cgs @cgs

What does a doctor say about the fact that it started out seasonal and what is their different about where she lives

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The doctors she has been seeing do not seem to focus on that and now we are beyond that and it is constant. The nausea use to begin about 5 am and sometimes go away later in the morning, but most days it would linger until 5 to 6 pm and magically diminish. Somedays she would be free of nausea, but not often. She use to never be nauseous at night, but now since she took the 5 days of antibiotic about 3 wks ago the nausea is 24/7 with no relief unless on 50 mg of Phenergan.

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Profile picture for janethmc @janethmc

My mom is now 84 and has been experiencing chronic nausea for 6 yrs that use to be seasonal in Alabama (Feb - Oct), but now year round. She has recently started taking Imipromene to reduce the sensitivity of the gut which takes several weeks to start working, but about the time it seemed to be working she had a bad UTI and of course a round of antibiotics. Her nausea during the UTI and antibiotics was high level and around the clock coupled with anxiety and lack of sleep. She is taking Nexium and now Phenergen (vs Reglan which stopped working after 2 months). Her gut seems more sensitive so we are trying to give her foods with probiotics and prebiotics to build the healthy bacteria again. Phenergan is helping her sleep at night better, but unstable due to dizziness. We are not sure what to do and her gastroenterologist seems puzzled. We are also going to try the ReliefBand and praying that works for her! Any suggestions of a great doctor in Alabama or near?

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I suffer from chronic nausea and use phenergan which helps me a great deal

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Profile picture for janethmc @janethmc

My mom is now 84 and has been experiencing chronic nausea for 6 yrs that use to be seasonal in Alabama (Feb - Oct), but now year round. She has recently started taking Imipromene to reduce the sensitivity of the gut which takes several weeks to start working, but about the time it seemed to be working she had a bad UTI and of course a round of antibiotics. Her nausea during the UTI and antibiotics was high level and around the clock coupled with anxiety and lack of sleep. She is taking Nexium and now Phenergen (vs Reglan which stopped working after 2 months). Her gut seems more sensitive so we are trying to give her foods with probiotics and prebiotics to build the healthy bacteria again. Phenergan is helping her sleep at night better, but unstable due to dizziness. We are not sure what to do and her gastroenterologist seems puzzled. We are also going to try the ReliefBand and praying that works for her! Any suggestions of a great doctor in Alabama or near?

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Has she thought about seeing a gastro naturopath or functional dr? They get to the root cause.

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