Chronic lower leg pain??
I have had chronic leg pain since January of 2021.
I was playing soccer in college at the time, and our regular fall season of 2020 was pushed to the following spring due to COVID-19. We started off with our regular preseason schedule of practice twice a day and a mid-day lift. I went through that symptom free, and was feeling great and excited for the upcoming season. We returned to practicing once a day, with a lift every other. Over the course of a few weeks, I began to have severe pain in both calves and around my tibias, and some serious swelling. I went to the athletic trainers, but had no relief with their treatments. I continued to practice, but had to sit out sometimes due to the pain.
My symptoms had gotten much worse to the point where I could barely walk for a few days following a regular practice. I rested and continued with treatments from the ATs. With weeks of rest my symptoms remained. Walking and driving made the pain worse, but even laying down and icing for hours the pain was horrible and never left. My AT scheduled me with the team doctor who insisted I only had shin splints. My days were filled with classes, seeing the trainers and laying in bed. Over the rest of the spring semester, I grew pretty depressed, stopped seeing any friends, and sometimes couldn’t even get myself to go to class due to the pain.
That summer I went to an ortho guy a few hours away. After doing all of the scans they could think of, they finally tested my compartment pressures. Sure enough, I had compartment syndrome. That fall and winter I had fasciotomies of both lower legs, all compartments. I returned next spring for our off season sessions (little cardio, mostly ball handling and scrimmaging), and was feeling great. I continued to workout all summer, and get through the 2023 preseason just fine. It was my senior year after missing the last two seasons, I was so excited and started off feeling great.
Almost as soon as preseason was over and games began, my symptoms were back. They almost came back overnight, and just as bad as right before my surgery. I tried playing through it, but couldn’t. I sat out the rest of the season. I went back to the surgeon, who told me that he did the surgery and there was nothing else he could do. He had also told me that if I “wasn’t happy with the scars, then I shouldn’t have had the surgery”. I had not mentioned anything about the scars, and quite frankly could not have cared any less about them. My concern was, and always has been, the pain and swelling.
I then saw our new team doctor who had referred me to cardiology where I was diagnosed with popliteal artery entrapment. I had artery releases on both legs the week after I graduated college, and then started physical therapy. The symptoms never went away. The cardiologist said that whatever was wrong, it wasn’t anything cardiology related. I had great strength in physical therapy and they said there was nothing more they could do for me, so I went back to the team doctor. At the same time, I went to a vein clinic where I was told there was nothing wrong with my veins.
The team doctor retested my compartments and they were on the higher end of “normal”. He was sure that it was still my compartments. He did not feel comfortable or experienced enough to do the revision surgery, so he referred me to a doctor five states away. I had the surgeries, and flew back home to recover. I completed six months of physical therapy, and was feeling amazing by the end of it. I was able to run small distances, which was the most I had been able to do since the pain first began. I still had some pain and swelling, but it was nothing compared to before.
I graduated from physical therapy, and a month later the pain returned to the same intensity that I have been dealing with for years. I went back to physical therapy, and have had no relief. I work in healthcare, and have always struggled with my pain and being on my feet all day. A few months ago I had tried switching careers simply because of the lower leg pain. But I love my job and ended up coming back. My supervisors are aware of my situation, and help me out as much as they can. I am 24 years old, and can not deal with this anymore. I have involved my pcp, and after finding high calcium levels in my labs she has decided to send me to get my parathyroid checked out. I am awaiting that appointment, and hope that that is the actual cause of my symptoms.
Throughout these years, I have been told multiple times by doctors that nothing could be done or that nothing was wrong. At times, I thought that maybe I was actually imagining it or that I was crazy. I have been depressed and feeling at a loss since the beginning of all of this. Almost everyday I question if it’s worth it to continue on with this pain. I have put off my plans of going back to school and starting my career due to the pain, and how hard it was for me to get through undergrad with this. I realize that I cannot let my legs determine the rest of my life, and I am in the process of getting back on track. It just makes it much more difficult. I struggle to live my life with this pain. I want to have a family eventually, but I wonder how pregnancy will affect my symptoms. I also dread that when I do have a family, I will miss out on so much due to my legs. I want to run around with my kids, I want to coach them, go on road trips and so much more. It’s been really difficult for me these past few years, and I can’t help but think of how hard the rest of my life will be. I used to be happy, social and active, but my pain has stolen all of that from me.
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Pain is no friend. As you have experienced(as I have), it steals most of the things that you love dearly. You are much too young to have all this happen to you, but there it is. Like you, I have had doctors tell me that there is nothing else that can be done. I was determined to be my own best advocate. By God's grace I found a private practice neurologist who helped me get my life back. After four years, my symptoms also returned. I have been fighting pain that makes even walking short distances difficult. My faith has helped sustain me through all of this. And, a strong will to find a way to get to the bottom of all this. Keep pressing on. All you need is one doctor willing to look deeper into your medical issues. My prayer goes up for you.
Oh, that is so sad. I empathize greatly. You should never give up. This may sound patronizing, but it builds character what you’re going through. To be able to get through it build character and you will turn around one day and help other people the same way people will help you. Don’t be afraid to reach out. I have a pretty high pain threshold, however when I experienced paying incessantly that wouldn’t go away the military doctors that I saw at the time ibuprofen me straight into the hospital because they wouldn’t put me on opioids. That almost killed me. So then I got to take the opioids and here I sit 25 years later pretty content that the tailbone pain I experience daily to some extent or another has become part of who I am. I’ve had multiple joint replacement surgeries and each time. I hope the pain will go away, but it does not. I love life and suicide was never in my repertoire as the only sibling I had committed suicide when we were in our 20s. I’m in my 60s now. I am an extremely productive artist and a happy camper with the exception that my body gets in the way sometimes of my passion and pursuits. I just have to adjust periodically. I inherited fairly extensive arthritis, degenerative disc disease and familial coronary artery disease. In spite of it all, I love life. It sounds like you do too. My problems started when I was 18 when I couldn’t stand well on my feet all day working. By 35. I started degenerating having other kinds of pain and suffering with arthritis. I am now 68 and I still love life and I still hate the pain but the things I want to do are more important than letting pain stop me. I think you need to find a good team of doctors that will support you in pain management as well as medication whatever that might be. They tried all of the nerve pains on me they didn’t do a thing. I was given a variety of narcotics and only, Percocet/oxy allows me to live my life freely, stably, and with a lot of control. You just have to keep pushing. One thought that I had about your problems are scar tissue. From all the things she said scar tissue could be a problem and present itself in the ways you wrote. I want to recommend that you find a good MFR therapist (deep myofascial tissue release) they do a really good job on nerves, muscle connective tissue and scar tissue. I go twice a month and I pay out of my pocket and it brings so much relief. Continue going to all different kinds of doctors like Kinzie, nerve, doctors, pain, management, doctors and physical therapy doctors and having treatments. Try MFR, acupressure, acupuncture, and Botox. By the grace of God you’ll go. You have so much to offer the world, don’t despair. I have a to do list of things that occupy my attention when I get into severe pain. For me, I go go, go go go with activity, and then when the pain hits me really bad I feel good about stopping entirely, laying on the couch and deep breathing, taking the opioid and waiting for the pain relief to kick in. Then I go back to go go go go go! Find a groove for yourself that feels right. After 40 years I’ve never stopped looking for solutions to my problems. I have hit roadblock and I found that certain doctors were entirely wrong and wasted my time because they were lazy to look beyond what an x-ray showed or a report. Get to the good doctors you gotta wait through a lot of crap to find your prints for princess.
I kinda look at it this way: I got stuck with pain, but I didn’t get stuck with financial insecurity. I failed at being World famous with my God-given talent of art making because the pain got in the way however I achieved recognition on a smaller level and I taught others The grace of art making. I have no family to speak of, one son with neurodivergent disorder extremely on the spectrum, but I know a lot of people. What I’m trying to say is: everybody’s got something. Better is to learn how to cope and utilize your life in a way that helps yourself and others. Find joy. Find joy. Find joy.
Leg and walking health can be everything ! Keep pushing for diagnostic. Sounds like you are trying it all. Check odd things too ( PAD ) an arthritis? A neuromuscular decease ( at 78 I just learned I have muscular dystrophy!). Keep at it!! 🤞
Praying for both of you. Perseverance is very important as you said it would only take one doctor to figure it out. Keep going.