Anyone have chronic diarrhea while on digestive enzymes?
Has anyone experienced chronic diarrhea using digestive enzymes like Zenpep or Creon? If so, did adjusting the dosage help?
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Your post is helpful. I am going to try 3 Zenpep at all meals. I have to gain 10 lbs. Did you have to gain weigh? And I thought Nutella had sugar. I don’t have diabetes, so I stay away from sugar. Just can’t get consistent. BM. Three days they are good, then I’ll eat something I always ate and the diarrhea returns. Maybe it’s because the enzymes aren’t strong enough.
Thanks for your response. It gives me something to try.
I have been eating nut butters at the suggestion of the hepatobiliary dietician at MSKCC to increase my calories, since animal fats don't do well with me. Saved my life I think. I like almond butter and cashew butter. Some of the high quality peanut butters can be good though. I have been eating Nutella as well, but very high in carbs. I found a chocolate/hazelnut butter by Justin, much lower in carbs, tastes good. I take three 36K Creon with each meal, don't try and adjust my dose.
I take ZenPep and was told by my Dietician yesterday to increase 20,000 to 40,000. I was find yesterday until I ate Pesnut Butter late and then a half and hour later had loose stools, this is before I increased my dosage today. I am very high string and there is a lot of tension here and sonetinrs it seems to be related, because I can’t eat when anxious.
I made a discovery yesterday re: fat. I saw the fat content of peanut butter is 18, at least my brand. So I took a chance and increased my Zenpep from 40,000 to 60,000. I had the first “real” BM since my journey began. Right color, right size and, if you’ll excuse the expression, clean toilet paper. I don’t know if it will hold, but it’s my first good news. I am going to adjust my dosages to fat content. I’ll post again in a week to see if it truly made a lasting difference. I don’t ask permission, I just experiment. Sugar I gave up from the start; I didn’t realize how important fat is to my new system.
I take creon twice a day. I eat often and little by little. I have diarrhea, but sometimes I don't have diarrhea. I'm gaining weight because of this. I'm eating even while I'm writing. I only stop eating 2 hours before bedtime.
I’m on CREON but unfortunately I have a different affect from it.
I’m having a hard time having a bowel movement 😩🤦🏾♀️
But I also don’t really have an appetite - I smoke cannabis to help me with this issue.
altc321, christinekaranges, I was put on Creon 24k units 2 with meals and my gastro doc said it was just my old pancreas that had stopped making the enzymes. The enzymes are needed to digest fat. I actually experimented to find the reason for my diarrhea. I cut out milk first with no luck and then found a no fat diet rid me of the severe symptoms. The Creon helps but I still have to watch my fat intake. I seem to need to increase my amount of Creon and will ask this on Monday. I have read another's post that said he was taking 5 25k at meals and could eat anything at all and does. I take Dicyclomine to help with the gas and the pain and bloating. Before I found out that my tumor had blocked the pancreas duct the only way I could leave my house, and bathroom was to not eat. Imodium did nothing for me. I found that the specific term for this is steatorrhea. It is not the enzyme replacement meds that cause this. It is the lack of having the enzymes to process your fat intake. Your body did this automatically when you were healthy. Now you will need to match the amount of enzymes to your fat intake. Eating the same thing all the time is one way to do this and taking the same amount of replacement enzymes with meals. Or you can count the fat in your meals and adjust the number of enzymes accordingly.
I just get the 2 with meals and as I said this does help but only if I watch my fat intake and keep it under 60 grams. under 50 grams is actually better.
Good luck to everyone in your fight against cancer.
I am on Creon 8 a day severe stomach cramps watery diarrhea Have to wear a nappy My stomach makes noises all the time sometimes don’t make it to the bathroom Always got to be near a toilet Can’t eat much lost a lot of weight always dehydrated
Thank you….. I also believe state of mind and emotions are a big factor as well as each individual will respond differently. Just keep “experimenting “ until you find the best combination that works.
I don’t know what worked. The Imodium did make a difference. Maybe increasing the Zenpep helped. I keep experimenting now for the occasional diarrhea. I really believe my state of mind and emotions play a role. I don’t eat if I’m upset; I wait until I have become calm. It seems it is all a crap (no pun intended) shoot. Good luck, just keep on trying until you find one that works. We are all different.