Chronic Abdominal Wall pain

Posted by spiritusheart22 @spiritusheart22, Apr 24, 2023

Has anyone experienced CAWP- Chronic Abdominal Wall Pain? I have had this discomfort & swelling on my right side for 4 + months. I have had MRI, Cat scans, colonoscopy, exploratory surgery, bloodwork and all I hear from the doctors is “they don’t see anything “. I read it is one of the most frequently mis-diagnosed ailments.

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Hello spirit22,
It sounds very much like you are suffering from Abdominal cutaneous nerve entrapment syndrome or ACNES. There are 2 ways to identify. One is by trigger point shots to the inflamed area and second the Carnett test. You can get much information by googling ACNES and Carnet test (best on YouTube). I was fortunate to find a surgeon in Phoenix who performed Robotic Laparoscopic Surgery severing the effected nerves. Was an outpatient and went home that afternoon cured. I’d be happy to discuss further if you are interested. Jeff

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@jgroudan

Hello spirit22,
It sounds very much like you are suffering from Abdominal cutaneous nerve entrapment syndrome or ACNES. There are 2 ways to identify. One is by trigger point shots to the inflamed area and second the Carnett test. You can get much information by googling ACNES and Carnet test (best on YouTube). I was fortunate to find a surgeon in Phoenix who performed Robotic Laparoscopic Surgery severing the effected nerves. Was an outpatient and went home that afternoon cured. I’d be happy to discuss further if you are interested. Jeff

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Jeff: can you provide the Phoenix doctor that did trigger point injections for Chronic abdominal wall pain? Thank you liz

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Dr Eric Boyd, Phoenix gave me 4 rounds of trigger point. First worked about a week then less after until 4th did nothing.

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@jgroudan

Dr Eric Boyd, Phoenix gave me 4 rounds of trigger point. First worked about a week then less after until 4th did nothing.

Jump to this post

My email is jgroudan@cox.net if you’d like more information.
Jeff

REPLY
@jgroudan

Hello spirit22,
It sounds very much like you are suffering from Abdominal cutaneous nerve entrapment syndrome or ACNES. There are 2 ways to identify. One is by trigger point shots to the inflamed area and second the Carnett test. You can get much information by googling ACNES and Carnet test (best on YouTube). I was fortunate to find a surgeon in Phoenix who performed Robotic Laparoscopic Surgery severing the effected nerves. Was an outpatient and went home that afternoon cured. I’d be happy to discuss further if you are interested. Jeff

Jump to this post

Hi Jeff,
I too was diagnosed with ACNES on my intercostal area..nerves 8-11 were isolated. The pain management doctor at UF Shands in Gainesville, Florida did 4 steroid blocks on both left and right side which lasted for approximately 2 months.
He was also doing 2 test blocks on both sides of my neck and last Monday the numbing medication went into other areas around the nerves in 2 areas the doctor was numbing and paralyzed my left arm, neck, head and partially right arm. I could not move my left arm or head for 5-6 hours. I was sent by ambulance to Shands ER for stroke follow up. Thank God all it turned out to be was the numbing medication seeped into areas it wasn't intended for.
Now my doctor is hesitant to do Radio Frequency Abalation on my intercostal area..saying my body is too sensitive to needles.
I live in Central Florida and have not found a surgeon that surgically severs the nerves.
What kind of surgeon did you find and where are you located? How were able to locate him?
I have had ACNES in my abdominal area for over 4 1/2 years. I am back to severe, debilitating pain since the steroid blocks wore off. I am only able to get up and move around for 15-20 minutes before the pain is so bad that I have to either sit or lay down.
Any information you could give me to find a surgeon would be greatly appreciated.
Thank you,
Victoria Sarosy

REPLY
@vlvhvlvh

Hi Jeff,
I too was diagnosed with ACNES on my intercostal area..nerves 8-11 were isolated. The pain management doctor at UF Shands in Gainesville, Florida did 4 steroid blocks on both left and right side which lasted for approximately 2 months.
He was also doing 2 test blocks on both sides of my neck and last Monday the numbing medication went into other areas around the nerves in 2 areas the doctor was numbing and paralyzed my left arm, neck, head and partially right arm. I could not move my left arm or head for 5-6 hours. I was sent by ambulance to Shands ER for stroke follow up. Thank God all it turned out to be was the numbing medication seeped into areas it wasn't intended for.
Now my doctor is hesitant to do Radio Frequency Abalation on my intercostal area..saying my body is too sensitive to needles.
I live in Central Florida and have not found a surgeon that surgically severs the nerves.
What kind of surgeon did you find and where are you located? How were able to locate him?
I have had ACNES in my abdominal area for over 4 1/2 years. I am back to severe, debilitating pain since the steroid blocks wore off. I am only able to get up and move around for 15-20 minutes before the pain is so bad that I have to either sit or lay down.
Any information you could give me to find a surgeon would be greatly appreciated.
Thank you,
Victoria Sarosy

Jump to this post

My email is vanhoosesarosy@gmail.com
Thanks,
Victoria

REPLY
@vlvhvlvh

Hi Jeff,
I too was diagnosed with ACNES on my intercostal area..nerves 8-11 were isolated. The pain management doctor at UF Shands in Gainesville, Florida did 4 steroid blocks on both left and right side which lasted for approximately 2 months.
He was also doing 2 test blocks on both sides of my neck and last Monday the numbing medication went into other areas around the nerves in 2 areas the doctor was numbing and paralyzed my left arm, neck, head and partially right arm. I could not move my left arm or head for 5-6 hours. I was sent by ambulance to Shands ER for stroke follow up. Thank God all it turned out to be was the numbing medication seeped into areas it wasn't intended for.
Now my doctor is hesitant to do Radio Frequency Abalation on my intercostal area..saying my body is too sensitive to needles.
I live in Central Florida and have not found a surgeon that surgically severs the nerves.
What kind of surgeon did you find and where are you located? How were able to locate him?
I have had ACNES in my abdominal area for over 4 1/2 years. I am back to severe, debilitating pain since the steroid blocks wore off. I am only able to get up and move around for 15-20 minutes before the pain is so bad that I have to either sit or lay down.
Any information you could give me to find a surgeon would be greatly appreciated.
Thank you,
Victoria Sarosy

Jump to this post

Hi VLV,
I had abdominal cutaneous laparoscopic surgery (procedure) performed on 9/2/21 by Dr Thomas Gillespie, surgeon at St Joseph's Medical Center in Phoenix, AZ. Long story how I found be him but it was after an extensive search. Dr Gillespie severed my T8, T9 and T10 nerves. I walked out of the hospital that afternoon cured. He is an amazing caring physician. If you'd like to discuss further please private message me and we can set up a discussion. I have referred numerous patients to him with all being cured of this horrible painful syndrome.
Jeff Groudan

REPLY
@jgroudan

Hi VLV,
I had abdominal cutaneous laparoscopic surgery (procedure) performed on 9/2/21 by Dr Thomas Gillespie, surgeon at St Joseph's Medical Center in Phoenix, AZ. Long story how I found be him but it was after an extensive search. Dr Gillespie severed my T8, T9 and T10 nerves. I walked out of the hospital that afternoon cured. He is an amazing caring physician. If you'd like to discuss further please private message me and we can set up a discussion. I have referred numerous patients to him with all being cured of this horrible painful syndrome.
Jeff Groudan

Jump to this post

Hi Jeff: what were you symptoms that led to you nerve severance? Liz

REPLY
@jgroudan

Hi VLV,
I had abdominal cutaneous laparoscopic surgery (procedure) performed on 9/2/21 by Dr Thomas Gillespie, surgeon at St Joseph's Medical Center in Phoenix, AZ. Long story how I found be him but it was after an extensive search. Dr Gillespie severed my T8, T9 and T10 nerves. I walked out of the hospital that afternoon cured. He is an amazing caring physician. If you'd like to discuss further please private message me and we can set up a discussion. I have referred numerous patients to him with all being cured of this horrible painful syndrome.
Jeff Groudan

Jump to this post

So Jeff if I understand your posts: trigger point injections did not work but your laparoscopic surgery did? Liz

REPLY

Hi Liz, The first trigger point worked amazing but only lasted a day or two. The next few shots were ineffective but the first shotit indicated that I had ACNES.
Jeff

REPLY
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