Connect
High or Fluctuating Chromogranin A Level: What does it mean?
I’m not sure if I’m in the right place or not but I started this conversation here bc my Levels were so high. Has anyone ever had levels that high and what did the doctor say was wrong with you? I’m kind of freaking out bc they are jumping right in and sending me to get a octreotide scan in the next week. Someone please help me because the GI doctor isn’t saying anything.
Like
Helpful
HugInterested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
Connect
Hello @emilyliz16,
Unfortunately, I'm not a medical professional so I can't comment on what might have caused the high levels that showed up on your blood work. I would encourage you to contact your endocrinologist or other physician, who ordered the blood work, and ask what might have caused these high levels.
I look forward to hearing from you when you have some more information. Will you post again after you talk with your doctor's office?
I’m also 34 female- healthy weight. No high BP and I’ve had extensive blood test saying everything else is good. My anxiety has been very strong the last month and just got the test done (along with cortisol) and I was wondering if stress and anxiety can play a part?
-
Like -
Helpful -
Hug
1 Reaction@hopeful33250 i have PCOS AND I have been getting treated for high anxiety lately. Endo was running a lot of test and the level for normal was 335 and mine was 600. I read anxiety and stress can elevate things. I’m on metformin and lexapro. She hasn’t reached out on the test yet but everything else from ATCH and plasma were well within normal ranges. This was a blood test.
After my whipple surgery @ pancreas head in May 2023, my Chromograni A went down from 600+ to 400+. Then subsequently it went up to 600+ for next 2 blood tests. Eventually my endo aborted the blood test since then. Should I request for it again?
Hello @emilyliz16 and welcome to Mayo Connect. Yes, a high Chromogramin level can be caused by many health conditions as well as some medications.
If you are comfortable sharing more information, were the blood tests done to address symptoms you were having? Has your doctor ordered any other tests or scans?
@hopeful33250 i just received a 600 value and im freaking out. Doctor hasn’t said much and my endo was checking for all my hormones. I have zero symptoms and just PCOS. You said many things can cause a higher level?
Hello @peg152
Here is some information from Mayo Clinic's website about Addison's Disease and the tests that are used to diagnose it as well as the treatments. The more knowledge you have the better prepared you will be to discuss this with your doctor.
https://www.mayoclinic.org/diseases-conditions/addisons-disease/symptoms-causes/syc-20350293
What type of specialist are you seeing, Peg?
Just got ACTH of5.5 and ortisol of .05 which looks like adrenal insufficiency. Still waiting for doctor. Asked about Addison’s Disease and Pituitary MRI. From what I see this is serious and needs to be dealt with soon! Anyone else know anything about this?
Thank you! ;-))
-
Like -
Helpful -
Hug
1 ReactionAs I'm not an employee of Mayo Clinic, only a volunteer mentor, I can't answer that question. If you want to know more about billing and insurance here is a link you can use to find out more:
http://mayocl.in/1mtmR63
Here you will see phone numbers for each of the three Mayo locations and you can call and ask about insurance coverage.
I look forward to hearing from you again!