My daughter, 24, was diagnosed with synovial chondritis in April 2023. The diagnosis turned into chondrosarcoma in her left knee in April 2024. She had a total knee replacement. It made 2 seedings and the wound turned septic because of poor blood circulation. In January, they had to remove a metastasized tumor from her lung. Her next CT scan is in June. Her cancer is so aggressive! She/us don't get time to adjust...
Hi, I just joined the group. I'm sorry to hear about your daughter's state of cancer.
My son (25) has been diagnosed on 23 June 2025 with chondrosarcoma in the left knee. He is due for a total knee replacement and prothesis on 28 June. Since the biopsy 6 months ago the tumor has grown significantly. They wanted to remove it a week ago but after more biopsies they made the decision for the replacement.
Any suggestions to keep the circulation moving?
My daughter, 24, was diagnosed with synovial chondritis in April 2023. The diagnosis turned into chondrosarcoma in her left knee in April 2024. She had a total knee replacement. It made 2 seedings and the wound turned septic because of poor blood circulation. In January, they had to remove a metastasized tumor from her lung. Her next CT scan is in June. Her cancer is so aggressive! She/us don't get time to adjust...
Hey, folks. Someone asked above about other people with chondrosarcoma. I had a bone tumor in my little finger when I was 27 years old. The bone broke when something relatively light fell on it, and when it was x-rayed, they found the tumor. Because tumors in the hand are almost always benign, they diagnosed it as benign in spite of a rather ominous biopsy report (which I didn't discover until years later) and sent me on my way.
Nine years later, the same thing happened. I had a pathological fracture in the same bone while bracing my hands on a horse's neck as we went over a jump. Again, they scooped the tumor out and used bone chips from elsewhere in my body to fill the tumor in.
Three years after that-- yep, the same thing. This time they found it before I broke it because they were following me intermittently. I insisted they run imaging because that bone was hurting so much. The hand surgeon thought it was just pain from my hand being operated on repeatedly. Sure enough, the tumor was back and this time it had grown through the end of the bone into the joint space at the base of the finger. I had another surgery to remove it. I asked the hand surgeon directly if the tumor could be malignant, and he insisted it couldn't be. Then I fired him and referred myself to an oncologist with expertise in bone tumors. The oncologist was alarmed by this history and referred me to another hand surgeon, who monitored me from that point.
About a year later, imaging shows that the tumor was back. This time it was diagnosed as a chondrosarcoma, and the oncologist and hand surgeon concurred that I would need that finger and underlying bone in the palm of my hand amputated. Frankly, I was fine with that, given that the joint hurt almost all the time, even when I wasn't using my hand.
That last surgery was almost exactly 25 years ago. I'm happy to say I haven't had any more bone tumors since then. I hope this is encouraging to others who might have weird bone tumors in their hands.
@sherlock999, wow. Your story underlines a number of important things, like how important it is to advocate for your health. You knew something wasn't right. Your story also gives hope!
Did you find that adapting after the amputation you had more use of your hand since the source of constant pain was gone? What is hard? Are you still jumping horses?
Have you done anything to change your diet since your diagnosis? Would you be open to communicating with my husband as your cases are very surreal and similar in areas of this cancer.
All the choices we have to make are terrible ones. I too could not face amputation of my right leg and chose resection. . It has since metastasised to my left leg and hip and right humerus. I don’t look sick and if I am in bed I don’t even feel sick. But when I try to stand…it is all very surreal. We are having slow public deaths and there is no manual. Strength to you.
Have you done anything to change your diet since your diagnosis? Would you be open to communicating with my husband as your cases are very surreal and similar in areas of this cancer.
That's great news for you, unfortunately not everyone has the same outcomes, my husband refuses to amputate his leg, even though he knows the tumor has been growing and can spread to other areas of his body, in which it's possible it already has in his hip area he complains of achy dull pain and especially his calf where the enlarged tumor is at currently and has had it go to his lymph nodes also, age 44 now.
All the choices we have to make are terrible ones. I too could not face amputation of my right leg and chose resection. . It has since metastasised to my left leg and hip and right humerus. I don’t look sick and if I am in bed I don’t even feel sick. But when I try to stand…it is all very surreal. We are having slow public deaths and there is no manual. Strength to you.
Hey, folks. Someone asked above about other people with chondrosarcoma. I had a bone tumor in my little finger when I was 27 years old. The bone broke when something relatively light fell on it, and when it was x-rayed, they found the tumor. Because tumors in the hand are almost always benign, they diagnosed it as benign in spite of a rather ominous biopsy report (which I didn't discover until years later) and sent me on my way.
Nine years later, the same thing happened. I had a pathological fracture in the same bone while bracing my hands on a horse's neck as we went over a jump. Again, they scooped the tumor out and used bone chips from elsewhere in my body to fill the tumor in.
Three years after that-- yep, the same thing. This time they found it before I broke it because they were following me intermittently. I insisted they run imaging because that bone was hurting so much. The hand surgeon thought it was just pain from my hand being operated on repeatedly. Sure enough, the tumor was back and this time it had grown through the end of the bone into the joint space at the base of the finger. I had another surgery to remove it. I asked the hand surgeon directly if the tumor could be malignant, and he insisted it couldn't be. Then I fired him and referred myself to an oncologist with expertise in bone tumors. The oncologist was alarmed by this history and referred me to another hand surgeon, who monitored me from that point.
About a year later, imaging shows that the tumor was back. This time it was diagnosed as a chondrosarcoma, and the oncologist and hand surgeon concurred that I would need that finger and underlying bone in the palm of my hand amputated. Frankly, I was fine with that, given that the joint hurt almost all the time, even when I wasn't using my hand.
That last surgery was almost exactly 25 years ago. I'm happy to say I haven't had any more bone tumors since then. I hope this is encouraging to others who might have weird bone tumors in their hands.
That's great news for you, unfortunately not everyone has the same outcomes, my husband refuses to amputate his leg, even though he knows the tumor has been growing and can spread to other areas of his body, in which it's possible it already has in his hip area he complains of achy dull pain and especially his calf where the enlarged tumor is at currently and has had it go to his lymph nodes also, age 44 now.
Hi
Unfortunately the trial therapy did not work for me and was stopped. As the cancer metastasised I now have multiple tumours most serious my left hip and right humerus. My prognosis is grim. Sorry I can’t share better news. This is a deadly form of cancer.
That's what I'm afraid of as well, he has had chondrosarcoma since January 2021 is when he was diagnosed, it has been a concern for the cancer to get into his lymph nodes and they wanted to do another open biopsy, however he refused as he feels every time they do surgery it seems to return within a year later and last open biopsy it doubled in size when trying to remove as much as possible.
Hey, folks. Someone asked above about other people with chondrosarcoma. I had a bone tumor in my little finger when I was 27 years old. The bone broke when something relatively light fell on it, and when it was x-rayed, they found the tumor. Because tumors in the hand are almost always benign, they diagnosed it as benign in spite of a rather ominous biopsy report (which I didn't discover until years later) and sent me on my way.
Nine years later, the same thing happened. I had a pathological fracture in the same bone while bracing my hands on a horse's neck as we went over a jump. Again, they scooped the tumor out and used bone chips from elsewhere in my body to fill the tumor in.
Three years after that-- yep, the same thing. This time they found it before I broke it because they were following me intermittently. I insisted they run imaging because that bone was hurting so much. The hand surgeon thought it was just pain from my hand being operated on repeatedly. Sure enough, the tumor was back and this time it had grown through the end of the bone into the joint space at the base of the finger. I had another surgery to remove it. I asked the hand surgeon directly if the tumor could be malignant, and he insisted it couldn't be. Then I fired him and referred myself to an oncologist with expertise in bone tumors. The oncologist was alarmed by this history and referred me to another hand surgeon, who monitored me from that point.
About a year later, imaging shows that the tumor was back. This time it was diagnosed as a chondrosarcoma, and the oncologist and hand surgeon concurred that I would need that finger and underlying bone in the palm of my hand amputated. Frankly, I was fine with that, given that the joint hurt almost all the time, even when I wasn't using my hand.
That last surgery was almost exactly 25 years ago. I'm happy to say I haven't had any more bone tumors since then. I hope this is encouraging to others who might have weird bone tumors in their hands.
Hi
Unfortunately the trial therapy did not work for me and was stopped. As the cancer metastasised I now have multiple tumours most serious my left hip and right humerus. My prognosis is grim. Sorry I can’t share better news. This is a deadly form of cancer.
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Hi, I just joined the group. I'm sorry to hear about your daughter's state of cancer.
My son (25) has been diagnosed on 23 June 2025 with chondrosarcoma in the left knee. He is due for a total knee replacement and prothesis on 28 June. Since the biopsy 6 months ago the tumor has grown significantly. They wanted to remove it a week ago but after more biopsies they made the decision for the replacement.
Any suggestions to keep the circulation moving?
My daughter, 24, was diagnosed with synovial chondritis in April 2023. The diagnosis turned into chondrosarcoma in her left knee in April 2024. She had a total knee replacement. It made 2 seedings and the wound turned septic because of poor blood circulation. In January, they had to remove a metastasized tumor from her lung. Her next CT scan is in June. Her cancer is so aggressive! She/us don't get time to adjust...
@sherlock999, wow. Your story underlines a number of important things, like how important it is to advocate for your health. You knew something wasn't right. Your story also gives hope!
Did you find that adapting after the amputation you had more use of your hand since the source of constant pain was gone? What is hard? Are you still jumping horses?
I would be very happy to .
Have you done anything to change your diet since your diagnosis? Would you be open to communicating with my husband as your cases are very surreal and similar in areas of this cancer.
All the choices we have to make are terrible ones. I too could not face amputation of my right leg and chose resection. . It has since metastasised to my left leg and hip and right humerus. I don’t look sick and if I am in bed I don’t even feel sick. But when I try to stand…it is all very surreal. We are having slow public deaths and there is no manual. Strength to you.
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1 ReactionThat's great news for you, unfortunately not everyone has the same outcomes, my husband refuses to amputate his leg, even though he knows the tumor has been growing and can spread to other areas of his body, in which it's possible it already has in his hip area he complains of achy dull pain and especially his calf where the enlarged tumor is at currently and has had it go to his lymph nodes also, age 44 now.
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Like -
Helpful -
Hug
1 ReactionThat's what I'm afraid of as well, he has had chondrosarcoma since January 2021 is when he was diagnosed, it has been a concern for the cancer to get into his lymph nodes and they wanted to do another open biopsy, however he refused as he feels every time they do surgery it seems to return within a year later and last open biopsy it doubled in size when trying to remove as much as possible.
Hey, folks. Someone asked above about other people with chondrosarcoma. I had a bone tumor in my little finger when I was 27 years old. The bone broke when something relatively light fell on it, and when it was x-rayed, they found the tumor. Because tumors in the hand are almost always benign, they diagnosed it as benign in spite of a rather ominous biopsy report (which I didn't discover until years later) and sent me on my way.
Nine years later, the same thing happened. I had a pathological fracture in the same bone while bracing my hands on a horse's neck as we went over a jump. Again, they scooped the tumor out and used bone chips from elsewhere in my body to fill the tumor in.
Three years after that-- yep, the same thing. This time they found it before I broke it because they were following me intermittently. I insisted they run imaging because that bone was hurting so much. The hand surgeon thought it was just pain from my hand being operated on repeatedly. Sure enough, the tumor was back and this time it had grown through the end of the bone into the joint space at the base of the finger. I had another surgery to remove it. I asked the hand surgeon directly if the tumor could be malignant, and he insisted it couldn't be. Then I fired him and referred myself to an oncologist with expertise in bone tumors. The oncologist was alarmed by this history and referred me to another hand surgeon, who monitored me from that point.
About a year later, imaging shows that the tumor was back. This time it was diagnosed as a chondrosarcoma, and the oncologist and hand surgeon concurred that I would need that finger and underlying bone in the palm of my hand amputated. Frankly, I was fine with that, given that the joint hurt almost all the time, even when I wasn't using my hand.
That last surgery was almost exactly 25 years ago. I'm happy to say I haven't had any more bone tumors since then. I hope this is encouraging to others who might have weird bone tumors in their hands.
-
Like -
Helpful -
Hug
1 ReactionHi
Unfortunately the trial therapy did not work for me and was stopped. As the cancer metastasised I now have multiple tumours most serious my left hip and right humerus. My prognosis is grim. Sorry I can’t share better news. This is a deadly form of cancer.