Chemotherapy-induced neuropathy: What helps get rid of it?

Posted by taxlady @taxlady, Jan 31, 2023

I finished chemo April of 2022
I have neuropathy in my fingers and feet. It doesn’t seem to be going away. What are treatments I can do to help get rid of it.

Interested in more discussions like this? Go to the Cancer: Managing Symptoms Support Group.

@tymish17

I developed progressive peripheral neuropathy after treatment for small cell lung cancer. I was told by the oncologist that these symptoms resolve after completion of treatment. It’s been a year and my painless neuropathy has not improved and my proprioception and balance is getting worse. I would appreciate all and any suggestions

Jump to this post

Hi, glad to hear that your cancer is gone. Mine is too 🤗but the nerve pain has gotten progressively worse. It’s been 5 years since chemotherapy but 6 years since I was diagnosed with fibromyalgia. That’s a tricky condition…
Physical therapy, supplements added to my medication and I’m trucking on. I see a neurologist, GP and pain manager every 3 months. . We learn to count our blessings…get outside and take in life 🌅

REPLY

I developed progressive peripheral neuropathy after treatment for small cell lung cancer. I was told by the oncologist that these symptoms resolve after completion of treatment. It’s been a year and my painless neuropathy has not improved and my proprioception and balance is getting worse. I would appreciate all and any suggestions

REPLY

See a neurologist. I have had chemo-induced peripheral neuropathy for years. It has become worse over the years to the point I had it pretty much in my whole body. I went to a neurologist who did an EMG and Skin Biopsies. I was diagnosed with small fiber neuropathy. There is no cure. I take Cymbalta which helps with the worst of it. Also check out these websites - Winsantor.com; https://www.foundationforpn.org/; an https://pnhelp.org/.
Lots of information and support groups where you can learn about PN in general. Winsantor focuses on Chemo-induced Peripheral Neuropathy.

REPLY
@momof3gals

Hi!
I am happy to be following you all with some similar stories of neuropathy trials and tribulations!
I was diagnosed with Pancreatic Ca July of 2021. I had twelve rounds of chemo (4 drugs) including oxaliplatin and 5-FU.
I also had 15 rounds of proton radiation along with oral chemo and lastly the Whipple procedure in May 2022.
I began to experience neuropathy symptoms probably after my 8th round. Doses were reduced but the neuropathy only got worse. It got substantially worse after my surgery, slightly better over last summer but increased in intensity after an emergency appendectomy in Dec of 22.
I have numbness, pins needles and stiffness in my feet and ankles, sometimes into my calves to the knee. Also I’m my fingers. I have tried gabapentin which really didn’t work and am now on Cymbalta which is not working. I was told that if after a year if you don’t see improvement it probably will never go away. Does anyone have experience with CIPN if so have you seen improvement after so much time? Thank you for anything that you can share.

Jump to this post

REPLY

I admit to myself,there is no real help.
Bless you

REPLY
@jimmy252

I also have chemo induced neuropathy. I work with my pain doctor on this. Right now I’m on 600 mg gabapentin 4 times a day. It’s the only thing they can do because the Chemo word out the nerve endings so there’s no “fixing” the problem just treating.

Jump to this post

Welcome @jimmy252, I'm sorry to hear you have neuropathy caused by your chemo treatments. The Foundation for Peripheral Neuropathy is a good resource for alternative treatment/therapies and learning more about chemo induced neuropathy. Here are a few:
--- Webinar: Chemo-Induced Peripheral Neuropathy: https://www.foundationforpn.org/webinar-chemo-induced-peripheral-neuropathy/
--- Living Well: https://www.foundationforpn.org/living-well/

Have you looked into any alternative or complementary treatments for your neuropathy?

REPLY
@patclem

Jldavis23 I’m looking for most recent posts, is this 1923 post? I have what my oncologists refer to as chemo-induced neuropathy and from what I understand this is different from other neuropathy that some get. Mine started when I started chemo for breast cancer, doctors kept telling me it would go away after treatment t was done. All treatment including surgery and radiation was finished in 11/22. Am not on anymore treatment because neuropathy got worse. I still have symptoms, numbness and tingling in feet and fingers. It was improving but numbness in left foot has gotten worse. Also have strength and balance issues, using a cane. Taking Gabapentin 300mg twice a day. Oncologists said to keep taking it. Can’t understand why there is no treatment for this, doctors keep saying there is nothing that can be done. I feel that is not good enough, cancer has been happening for decades and this is doctors answer? Hope you find something to help you.

Jump to this post

I also have chemo induced neuropathy. I work with my pain doctor on this. Right now I’m on 600 mg gabapentin 4 times a day. It’s the only thing they can do because the Chemo word out the nerve endings so there’s no “fixing” the problem just treating.

REPLY
@patclem

Jldavis23 I’m looking for most recent posts, is this 1923 post? I have what my oncologists refer to as chemo-induced neuropathy and from what I understand this is different from other neuropathy that some get. Mine started when I started chemo for breast cancer, doctors kept telling me it would go away after treatment t was done. All treatment including surgery and radiation was finished in 11/22. Am not on anymore treatment because neuropathy got worse. I still have symptoms, numbness and tingling in feet and fingers. It was improving but numbness in left foot has gotten worse. Also have strength and balance issues, using a cane. Taking Gabapentin 300mg twice a day. Oncologists said to keep taking it. Can’t understand why there is no treatment for this, doctors keep saying there is nothing that can be done. I feel that is not good enough, cancer has been happening for decades and this is doctors answer? Hope you find something to help you.

Jump to this post

Yes, this is from a few weeks ago.

REPLY
@jldavis823

I got neuropathy from chemo as well. I haven’t heard of anyone else who had the burning pain I had. It felt like my finger tips and feet bottoms were on fire constantly. I found a regiment of supplements that took away the pain. Living with the numbness that I still have is still a great improvement.

Jump to this post

Jldavis23 I’m looking for most recent posts, is this 1923 post? I have what my oncologists refer to as chemo-induced neuropathy and from what I understand this is different from other neuropathy that some get. Mine started when I started chemo for breast cancer, doctors kept telling me it would go away after treatment t was done. All treatment including surgery and radiation was finished in 11/22. Am not on anymore treatment because neuropathy got worse. I still have symptoms, numbness and tingling in feet and fingers. It was improving but numbness in left foot has gotten worse. Also have strength and balance issues, using a cane. Taking Gabapentin 300mg twice a day. Oncologists said to keep taking it. Can’t understand why there is no treatment for this, doctors keep saying there is nothing that can be done. I feel that is not good enough, cancer has been happening for decades and this is doctors answer? Hope you find something to help you.

REPLY

I got neuropathy from chemo as well. I haven’t heard of anyone else who had the burning pain I had. It felt like my finger tips and feet bottoms were on fire constantly. I found a regiment of supplements that took away the pain. Living with the numbness that I still have is still a great improvement.

REPLY
Please sign in or register to post a reply.