Chemotherapy-induced neuropathy: What helps get rid of it?

Posted by taxlady @taxlady, Jan 31, 2023

I finished chemo April of 2022
I have neuropathy in my fingers and feet. It doesn’t seem to be going away. What are treatments I can do to help get rid of it.

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Profile picture for kathan55 @kathan55

The pain is unpredictable, moves around to different areas of my body, is different intensities and different types of pain.
Painful muscle spasms, pain all over at one time, back pain ( mid back- thoracic), neck and shoulder pain.
That all started within 1 month of completing chemo.
I got epidural’s for spinal pain, trigger point injections for muscle spasms, and am on pain management.
Later I developed burning sensations on my back and arms, legs and feet tingle and hurt, arms hurt, both knees are almost bone on bone ( wear knee braces). Continue to have initial issues. It’s so confusing. I really have trouble describing everything. Sometimes I wonder if I have fibro as well as CIPN. In 2005, fibro was the initial dx. A trashcan dx back then! Sorry this is such a long reply.

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Thank you for the hugs!! 🤗

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Profile picture for jfn @jfn

Hi @kathan55 ,

Shockwave like the cold laser is used to reduce inflammation and improve blood flow. It is a slightly intense vibration ( which can be controlled) with different 'heads'. I always feel better after.

Jfn

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Thank you for sharing this. If you don’t mind, can you tell me what type of Dr does this? Thanks again!

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Profile picture for kathan55 @kathan55

I’ve never heard of shock wave treatments. Can you tell me more?!

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Hi @kathan55 ,

Shockwave like the cold laser is used to reduce inflammation and improve blood flow. It is a slightly intense vibration ( which can be controlled) with different 'heads'. I always feel better after.

Jfn

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If you've gone camping at Paulina, do you live in central OR? Sounds like you do.
I'm another in central OR.

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Profile picture for kathan55 @kathan55

Thanks for sharing! What helps you most for the pain?

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A Glass of Wine 😎

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Profile picture for 3740 @3740

Kathy … I have CIPN from Stage 4 Lung Cancer. I SURVIVED. It’s been almost 3 years since I completed ChemotherapyRadiation. I’ve tried PT. Acupuncture Massages. Pills . Etc. Hands are Stiff all the time. Feet the same.

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Thanks for sharing! What helps you most for the pain?

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Profile picture for jfn @jfn

Hi,
I have written about all of the things I have done since my neuropathy started 2 years into my chemotherapy for NHL It is funny I was just thinking it was time for another Shockwave treatment. For me it works.

Jfn

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I’ve never heard of shock wave treatments. Can you tell me more?!

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Profile picture for Colleen Young, Connect Director @colleenyoung

Welcome, @kathan55. I moved your introduction post about dealing with chemotherapy-induced peripheral neuropathy from treatments for non-Hodgkin's lymphoma to this existing discussion:
- - Chemotherapy-induced neuropathy: What helps get rid of it https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy

I did this so you can read past posts and connect with other members like @cmdw2600 @raebaby @murray3 @3740 @auntieoakley @ginpene05 @jfn and many others.

Kathy, you may also be interested in joining in the NHL and lymphoma-related discussions here:
- Blood Cancers & Disorders Support Group https://connect.mayoclinic.org/group/blood-cancers-disorders/

You mention that symptoms are progressing. Do you mean the symptoms of neuropathy specifically? Where do you experience the pain? Hands? Feet? Both?

Jump to this post

The pain is unpredictable, moves around to different areas of my body, is different intensities and different types of pain.
Painful muscle spasms, pain all over at one time, back pain ( mid back- thoracic), neck and shoulder pain.
That all started within 1 month of completing chemo.
I got epidural’s for spinal pain, trigger point injections for muscle spasms, and am on pain management.
Later I developed burning sensations on my back and arms, legs and feet tingle and hurt, arms hurt, both knees are almost bone on bone ( wear knee braces). Continue to have initial issues. It’s so confusing. I really have trouble describing everything. Sometimes I wonder if I have fibro as well as CIPN. In 2005, fibro was the initial dx. A trashcan dx back then! Sorry this is such a long reply.

REPLY

Hi,
I have written about all of the things I have done since my neuropathy started 2 years into my chemotherapy for NHL It is funny I was just thinking it was time for another Shockwave treatment. For me it works.

Jfn

REPLY
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