Chemotherapy-induced neuropathy: What helps get rid of it?

@erichendrix I understand. I have a lot of doctors. I developed CIPN in 2005 within a month of completing chemo. Sometimes I feel like my doctors don’t communicate and it doesn’t feel like a team effort. I don’t like to complain, but it is very frustrating. I do have some wonderful doctors that listen to me. Especially PAs. So I do the best that I can do. Best of wishes to you.

Prescribed Pregabalin, Duloxetine, Nortriptyline, Naloxone, Gabapentin, and Buprenorphine for neuropathy, none of which helped at all. Very bad adverse reaction to Naloxone, the horrible “side” (think “direct”) effects of which I struggle to describe. I was on my knees praying to God that it would wear off. A few days ago was prescribed Buprenorphine which, to my great shock and dismay, was, conservatively, three times as bad as Naloxone and forced me to go to the ER, where they did nothing helpful, however they did succeed in performing a useless chest x-ray, CT scan, and blood test, all clear as I knew they would be. An overnight hospital stay, then back home with the recommendation from my GP that I contact the Mayo Clinic where I might benefit from a team of experts looking at my case. Not sure why my medical team here is not a "team"? Communication breakdowns everywhere.

@jnemeth1214

Sorry for the late reply; I have been struggling. The cancer came back. When I first started taking Ambien, I noticed right away it was giving me relief from my neuropathy symptoms. So, the question is "can I take it during the daytime hours?" I can't imagine any doctor would prescribe a sleeping pill like Ambien for daytime use. I'm not a doctor and I can't advise you about how you should take this or any other medication. About all I can say is do what you think will help. That's what I do.

Twelve year ago I got cancer, given its' aggressive nature, the chemotherapy was a strong mix of drugs. My neurologist said, "the only thing I could do is pray" (my understanding nothing could be done). The good new is the chemo saved my life! So, the discomfort living with neuropathy in my ties and the ball of my feet has been a small price to pay. The way I live with neuropathy in both feet is as follows. First, the most important thing is to wear heavy altheltic stocks (reduces the numb feeling walking to a degree. Next, I lotion the ball of my feet and my toes daily keeping them soft (I also use Asper cream multiple times per week) To have a good wardrobe of sneakers, that is very important. I buy "On" cloud, Cloud 6 ( no bow at the top just slip on. I also have shoes from Kizik, very comfortable (again, slip on, no tie).
Now that I am retired, I have conditioned myself to get up early every day as if I was going to work. I belong to a gym, only 3 miles away. Spend 50 minutes on the tread mill at 3.8, 3 miles, 6 days a week ( I do try a few balaning exercises, however, not with much luck) I did buy a foot vibrator a few years ago from Costco I use multiple times a week while reading. Also, from time to time I soak my feet in an epson salt bath. Nothing will ever repair the nerve damage, I know it's something I have to live with...yet, in a crazy way, the discomfort is a reminder that the chemo poison saved my life. I hope you find my methods of some help...and yes I'm still praying.

Twelve year ago I got cancer, given its' aggressive nature, the chemotherapy was a strong mix of drugs. My neurologist said, "the only thing I could do is pray" (my understanding nothing could be done). The good new is the chemo saved my life! So, the discomfort living with neuropathy in my ties and the ball of my feet has been a small price to pay. The way I live with neuropathy in both feet is as follows. First, the most important thing is to wear heavy altheltic stocks (reduces the numb feeling walking to a degree. Next, I lotion the ball of my feet and my toes daily keeping them soft (I also use Asper cream multiple times per week) To have a good wardrobe of sneakers, that is very important. I buy "On" cloud, Cloud 6 ( no bow at the top just slip on. I also have shoes from Kizik, very comfortable (again, slip on, no tie).
Now that I am retired, I have conditioned myself to get up early every day as if I was going to work. I belong to a gym, only 3 miles away. Spend 50 minutes on the tread mill at 3.8, 3 miles, 6 days a week ( I do try a few balaning exercises, however, not with much luck) I did buy a foot vibrator a few years ago from Costco I use multiple times a week while reading. Also, from time to time I soak my feet in an epson salt bath. Nothing will ever repair the nerve damage, I know it's something I have to live with...yet, in a crazy way, the discomfort is a reminder that the chemo poison saved my life. I hope you find my methods of some help...and yes I'm still praying.

Twelve year ago I got cancer, given its' aggressive nature, the chemotherapy was a strong mix of drugs. My neurologist said, "the only thing I could do is pray" (my understanding nothing could be done). The good new is the chemo saved my life! So, the discomfort living with neuropathy in my ties and the ball of my feet has been a small price to pay. The way I live with neuropathy in both feet is as follows. First, the most important thing is to wear heavy altheltic stocks (reduces the numb feeling walking to a degree. Next, I lotion the ball of my feet and my toes daily keeping them soft (I also use Asper cream multiple times per week) To have a good wardrobe of sneakers, that is very important. I buy "On" cloud, Cloud 6 ( no bow at the top just slip on. I also have shoes from Kizik, very comfortable (again, slip on, no tie).
Now that I am retired, I have conditioned myself to get up early every day as if I was going to work. I belong to a gym, only 3 miles away. Spend 50 minutes on the tread mill at 3.8, 3 miles, 6 days a week ( I do try a few balaning exercises, however, not with much luck) I did buy a foot vibrator a few years ago from Costco I use multiple times a week while reading. Also, from time to time I soak my feet in an epson salt bath. Nothing will ever repair the nerve damage, I know it's something I have to live with...yet, in a crazy way, the discomfort is a reminder that the chemo poison saved my life. I hope you find my methods of some help...and yes I'm still praying.

@jnemeth1214

Sorry for the late reply; I have been struggling. The cancer came back. When I first started taking Ambien, I noticed right away it was giving me relief from my neuropathy symptoms. So, the question is "can I take it during the daytime hours?" I can't imagine any doctor would prescribe a sleeping pill like Ambien for daytime use. I'm not a doctor and I can't advise you about how you should take this or any other medication. About all I can say is do what you think will help. That's what I do.