Celiac woes

Posted by marilyncarkner @marilyncarkner, 8 hours ago

My son is 6 months into his Celiac diagnosis. He is dealing with it as well as can be accepted but it really is a lifestyle altering change . Following the regimen is manageable at home but travelling very unnerving . We are researching new ways of determining if there is gluten in the food you are about to eat by using some gluten detector if there is such a thing .
There is a site The GLUTEN FREE RESEARCH GROUP GLIADIN ….but after looking more closely at this wondering what else is out there
Any thoughts on this ?

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windyshores | @windyshores | 7 hours ago

My kid has had celiac for 20 years. It is not that hard these days since gluten free products are so accessible. (Canyon Bakehouse has the best bread.) People don't understand it and think it is an allergy. This works okay though in restaurants. We seek pizza only from restaurants that have a separate oven (they could also use tin foil) and tell servers NO cross contamination. Again, they are thinking of anaphylaxis and that is just fine with us.

It is necessary to check medications for hidden gluten.

There are websites with lists of ingredients that may contain gluten (maltodextrin, caramel color many others.). Sometimes a product with maltodextrin will specify it is made with corn, not wheat.

It takes awhile to heal after diagnosis and some food allergies (to dairy) went away in time,

Yes maybe twice a year some take-out or bought food contains a tiny amount of gluten and my kid gets really sick. We know it can be microscopic! But overall they do not find celiac to be limiting. Friends are conscious of it and are really considerate in what they provide for meals.

Does your son also have type 1 diabetes?