Cant take biphosphate type drugs

I understand that the bisphosphonates are not working for you. Is your doctor considering one of the bone builders like forteo, tymlos or evenity. Of course, if you go that route you'll need something to lock in the gains.

No,because of my narcolepsy cataplexy all these drugs cause excruciating pain .so I'm trying to see if others have tried different calcium's or other supplements.

I take calcium with vitamin D plus an extra vitamin d. I am allergic to sulfates and biophosphates have sulfates in them. Triggered my asthma and could not breathe. I have been diagnosed with osteoporosis and avascular necrosis in both hips and knees. I lost so much bone in my left hip the stem almost reaches my knee. The surgeon said when he replaces my knee he will have to attach it to the stem from my hip because I lost so much bone. My hips have been replaced due to the bone damage my left hip replaced 4 times with actebulum and pubic ramus fracture. The orthopedic surgeon built up my hip joint with cadaver bone in both hips. He has to build it back up occasionally. Be careful with osteoporosis hips can fracture sometimes depending on how you move them. My orthopedic surgeon is a bone oncologist due to the fact not many doctors specialize in avascular necrosis. (Bone death due to lack of blood flow)

Calcium does not work directly. It might work while you’re growing bones, but not necessarily in older age. Hormone replacement therapy might give you a better outcome. There are other kinds of drugs besides the biphosphonate for bone medicine you need to talk to your doctor about those choices. I had unbelievably horrible effects from my first RECLAST. But the way I looked at it as I wasn’t prepared open parentheses flushing water, and taking Tylenol before the infusion) +10% of people get these really horrible reactions, but then only less than one percent go on to have a second bad reaction. I will be in that class who goes on. The way I look at it is that my bones really needed the medicine and my immune system was wrapped up and caused me to be in the most difficult state after the first infusion.. I read the research and I’m going to stick with it for the long haul. You only need to be miserable for three infusions and two years of the other type of bone medicine which you infuse on a daily basis. That I had mild reactions for the first two months and then like the nurse practitioner said The side effects “magically“ disappear. Titrating up on the medicine, doing it in the evening instead of the morning and allowing for slight headache, achy fatigue feeling in the first two months magically disappeared. I’m about two years into what should be a five-year protocol and then I’m done for life because the medicine continues to work after you’ve completed the regiment. If your doctor isn’t providing a team that is being supportive, you can get support here or bug them to have some meetings and do some testing. You need to have testing done after the first year of doing both medicines to get reinforcement that you’re on the right path and you’re reacting positively. I’m having great results, but medicines sometimes can make you feel really lousy for a bit. I’ve done several medicine protocols and while they are doing the necessary work, you feel like crap but the tests for follow up say that the medicines are working. When they are working eventually, you reach a place where you’re very happy because the needed effect is taking place. I hope you advocate for support from your endocrinologist and team infusion team