Cancer Information Provided by the National Cancer Institute

Posted by california14 @california14, 3 days ago

I am sharing information about the NCI (National Cancer Institute) . This resource sent me information about my specific colon cancer (stage 3b). The NCI was identified as a source that provides you with a packet of information tailored to your specific cancer.

It took about a week, but I could not believe what I received. It was completely individualized to me and my concerns and it had a huge amount of information for both patients and even some for health care providers. There were also numerous links for more help. I was shocked!

This site does not allow me to post the email address (or any link) but I am sure you can find it. The most unique thing is that their response is specifically linked to your concerns regarding your type of cancer/treatment.

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

Colleen Young, Connect Director | @colleenyoung | 3 days ago

@california14, I noticed that you wished to post a URL to information with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam.

I believe you are referring to the NCI's Cancer Information Service
https://www.cancer.gov/contact
It is a comprehensive service that provides great information, both by mail as you experienced and also on their website: https://www.cancer.gov/

california14 | @california14 | 3 days ago

In reply to @colleenyoung "@california14, I noticed that you wished to post a URL to information with your post. You..." + (show)

Thank you the update. I will try again in several days. No, the link/ email you posted is not the one I used. Mine goes directly to the NCI which is part of the address.

california14 | @california14 | 3 days ago

As an addendum to my response regarding the email I used, in addition to nci , the address also includes nih as well. The information as I said also specifically addressed my concerns with research as well as provided numerous links for help.

gbm | @gbm | 2 days ago

Would surely appreciate the exact NIH address if it could please be posted at this site. Thank you.

california14 | @california14 | 1 day ago

The reason the exact address was not posted was because I am a new member and, according to the site's moderator, I am not allowed to post links/email addresses as a new member. I was told I will be able to do so after a short period. I will try again this week.

Colleen Young, Connect Director | @colleenyoung | 1 day ago

In reply to @gbm "Would surely appreciate the exact NIH address if it could please be posted at this site...." + (show)

@gbm, this is the link to the information that @california14 wished to share:
- NCI's Cancer Information Service https://www.cancer.gov/contact

@california14, the link includes the email NCIinfo@nih.gov as well as all the ways that people can contact NCI's Cancer Information Service, i.e., Live Chat, and phone number.