Can anyone share their experience with Pluvicto?

Posted by vcash @vcash, Apr 22, 2024

My 85 year old dad has prostate cancer that has metastasized to his bones. Zytiga is no longer effective. He is considering Pluvicto. I would appreciate input from those who have used Pluvicto.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

oldfords | @oldfords | 6 days ago

I am sorry to hear about your issue but I cannot answer your question.

rosedl | @rosedl | Jun 12 12:53pm

Following this as my 81 y.o. father just received injection 1 of 6 today. Wondering if anyone else has been a caretaker with someone currently unable to walk due to metastases and how you handle/handled the 3 feet distance and what precautions or extra steps you took or suggest as most of the guidelines are simply impossible and were advised to do the best we can. Thanks in advance for reading.

wesbjack | @wesbjack | May 6 2:18pm

I am 72 and had prostate removal over 20 years go, but the cancer returned, as often happened. Had my sixth pluvicto two weeks ago (never had chemo before, Nubeca was no longer working to suppress PSA). The side effect that got to me--beyond dry mouth---was decreasing to the point that I faint in someone's garage. I had no idea, thinking it was general fatigue as described. No ocular or bone structure damage but I was hospitalized overnite (plus hospital at home one nite) but the right side of my face above the cheek is a horror movie. I am grateful that it was only that. I will add I have not been hospitalized in at least 30 years and I got the worst sleep in my life in the place.

oldfords | @oldfords | Apr 18 8:32am

Thank you

Colleen Young, Connect Director | @colleenyoung | Apr 17 5:13pm

In reply to @ewatson201 "Looking for others who have used Pluvicto treatment for Stage 4 Prostate Cancer." + (show)

I moved your question about Pluvicto to this related discussion:
- Can anyone share their experience with Pluvicto? https://connect.mayoclinic.org/discussion/can-anyone-share-their-experience-with-pluvicto/

See all Pluvicto related discussions using Search here: https://connect.mayoclinic.org/group/prostate-cancer/

@ewatson201, is Pluvicto being recommended for you? Are you scheduled to start treatment?

brianjarvis | @brianjarvis | Apr 5 3:24pm

In reply to @ewatson201 "Looking for others who have used Pluvicto treatment for Stage 4 Prostate Cancer." + (show)

Here’s a good primer on Pluvicto (in language even I can understand!) —> Dr. Johnson (of Mayo Clinic) talks about scans in his presentation, starting with the scans we’ve all heard about (MRI, bone, & CT scans), and then going into detail about PSMA PET scans and Pluvicto:

kjacko | @kjacko | Apr 5 8:38am

In reply to @ewatson201 "Looking for others who have used Pluvicto treatment for Stage 4 Prostate Cancer." + (show)

My friend was put on Pluvicto awhile back. He said it is the best he has felt in 4 years. Only downside is he has to stay isolated for a week after his treatment because of the radioactivity. Best wishes!

lag | @lag | Apr 4 4:53pm

In reply to @ewatson201 "Thanks I'm new here" + (show)

@ewatson201 No need to apologize--we were all new here once. 🙂 Please don't hesitate to ask questions, because there are many helpful people with lots of experience with prostate cancer and its treatments on this forum.

ewatson201 | @ewatson201 | Apr 4 3:58pm

In reply to @ewatson201 "Looking for others who have used Pluvicto treatment for Stage 4 Prostate Cancer." + (show)

Thanks I'm new here

lag | @lag | Apr 4 12:54pm

In reply to @ewatson201 "Looking for others who have used Pluvicto treatment for Stage 4 Prostate Cancer." + (show)

There are many, many posts on this site from other men who have gotten Pluvicto treatments or from their caregivers. They appear in different threads and are too numerous to repeat them here. Just do a search for "Pluvicto" at the very top of the page and relevant posts should come up.