Can anyone share their experience with Pluvicto?

Posted by vcash @vcash, Apr 22, 2024

My 85 year old dad has prostate cancer that has metastasized to his bones. Zytiga is no longer effective. He is considering Pluvicto. I would appreciate input from those who have used Pluvicto.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for jeff Marchi @jeffmarc

Pets are just a susceptible to radiation as people, Maybe even more so since their bodies are so small.

It’s pretty obvious you never even did a search of the web about whether or not you should be near your pets after being treated with Pluvicto because that would Show you that what I said is accurate.

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Ok Jeff, Please cite which clinical trail says that. You'd have to share your bodily fluids with your pet to transfer any radio active material to your pets .check that out.On this forum the info we share must be accurate.

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Profile picture for eugenelapietra1 @eugenelapietra1

Hi Blane, Jeff Marchi is totally misinformed. There's no Scientific evidence that pets are in danger. Clinical trials didn't include pets. I'm happy jeff didn't have any side effects from his 7 weeks I had over 100 radiation treatments with plenty of side effects. Bulking up is entirely different than putting on fat. You need the fat. Again everyone will have a unique experience. Don't let the negative experiences dictate yours. Good Luck , Gene

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Pets are just a susceptible to radiation as people, Maybe even more so since their bodies are so small.

It’s pretty obvious you never even did a search of the web about whether or not you should be near your pets after being treated with Pluvicto because that would Show you that what I said is accurate.

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Profile picture for eugenelapietra1 @eugenelapietra1

Hi Blane, Have someone drive you to your treatments and have them stay with you and take notes. Eat all your favorite junk foods. You do not want to lose weight. Don't let any negative BS enter your space. Shut the news off and watch comedies or listen to your music. If you have a pet keep them with you. You may or may not have some side effects, don't worry they'll pass quickly. This treatment is so much easier than chemo or radiation.You'll be happy you did it!!!Good luck, Gene

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Hi Blane, Jeff Marchi is totally misinformed. There's no Scientific evidence that pets are in danger. Clinical trials didn't include pets. I'm happy jeff didn't have any side effects from his 7 weeks I had over 100 radiation treatments with plenty of side effects. Bulking up is entirely different than putting on fat. You need the fat. Again everyone will have a unique experience. Don't let the negative experiences dictate yours. Good Luck , Gene

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Same here Jeff in terms of diet. I eat salmon about 2 times a week and the rest is like chicken, tuna, veggies and fruit. LOVE it!! 🙂

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Profile picture for blane6 @blane6

Hello. I am getting ready to go through this treatment. Amy information and advise is appreciated.

Thank you
Blane6

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Read through the earlier posts on this thread--good information and advice are there. Good luck to you and hang in there.

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Profile picture for eugenelapietra1 @eugenelapietra1

Hi Blane, Have someone drive you to your treatments and have them stay with you and take notes. Eat all your favorite junk foods. You do not want to lose weight. Don't let any negative BS enter your space. Shut the news off and watch comedies or listen to your music. If you have a pet keep them with you. You may or may not have some side effects, don't worry they'll pass quickly. This treatment is so much easier than chemo or radiation.You'll be happy you did it!!!Good luck, Gene

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Keeping your pet close after Pluvicto would not be a good thing for your pet. It could cause cancer in them. You could wait 3 days To be close to the pet but the half life of Pluvicto is almost 7 days. It will be safer for you to keep your pet away for that amount of time.

This treatment is definitely not easier than radiation for the vast majority of people. I know for myself after 7+ weeks of radiation I had no side effects at all. Some people on Pluvicto cannot even have more than one treatment because their body just rebels heavily. Almost everybody on pluvicto Has dry mouth that makes it a difficult to eat without extra liquid. Serious fatigue is frequently a common problem with Pluvicto treatments, Not something most people have with radiation.

Eating junk food is never a good idea, It’s terrible for your system. There’s no reason you can’t bulk up eating A lot of Mediterranean style food. That’s a healthy diet you can eat a lot of.

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Profile picture for blane6 @blane6

Hello. I am getting ready to go through this treatment. Amy information and advise is appreciated.

Thank you
Blane6

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Hi Blane, Have someone drive you to your treatments and have them stay with you and take notes. Eat all your favorite junk foods. You do not want to lose weight. Don't let any negative BS enter your space. Shut the news off and watch comedies or listen to your music. If you have a pet keep them with you. You may or may not have some side effects, don't worry they'll pass quickly. This treatment is so much easier than chemo or radiation.You'll be happy you did it!!!Good luck, Gene

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Profile picture for blane6 @blane6

Hello. I am getting ready to go through this treatment. Amy information and advise is appreciated.

Thank you
Blane6

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Pray...... Think Positive..... The odds are in your favor.......You'll do Great!!! I've not felt this GOOD in over 20 years !!! Focus in on why you want to live!!!

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Profile picture for eugenelapietra1 @eugenelapietra1

76 years old in the same boat your dads in. Treatment #1 not bad at all, treatment #2 a little rough, Treatment #3 a total nightmare, Treatment #5 I didn't think I was going to survive. I don"t have a choice I'll take Treatment #5 and pray..........The rub is , everyone may have a different experience so I suggest gathering more testimonials . Pluvicto with all its unknowns is still the only game in town. If you decide to go through with the treatments you can contact me and I'll share with you some tips on how to make your dads trip easier. God Bless ,Gene

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Hello. I am getting ready to go through this treatment. Amy information and advise is appreciated.

Thank you
Blane6

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Profile picture for stup1dwaz @stup1dwaz

I'm 83, had prostate removed on 2001, been on hormone therapy since then, also immune therapy, Xteva and now Pluvicto. I've had 3 injections with the only noticeable side effect was a dry mouth for about a week. After the 4 th injection the dry mouth has persisted for 3 weeks, not bad but taste is off a bit. I've been hiking between 5-6 miles a couple of times a week, kayaking and biking 20 miles.Somewhat fatigued but still able to participate. I read that the dry mouth could persist for awhile or even become permanent. I've been very fortunate my PSA went from 8 to .05 after 3 injections. Stopped the Xtandi after the 3 injection and next week will see what blood levels are. Since stopping Xtandi BP has dropped, hope to get off some BP meds.

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Staying on an ARSI can be very important. Xtandi Does cause fatigue for a lot of people, Nubeqa (Darolutamide) On the other hand, doesn’t normally cause fatigue and also doesn’t pass the blood brain barrier so it doesn’t cause brain fog,

You should ask your doctor about getting on Nubeqa, It can be important for a long-term progression free survival.

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