CA19-9 View trends Normal value: < 37 U/ML Value 1563

Good luck on your journey -keep you head up and a smile at the ready

Every case is different. My husband is stage 4 with spreads to lungs his CA19-9 are 0.9!!!!!!!

Great that you are taking action. Most men just don’t do it. Thats a lot of the battle. As soon as they do your EUS they might go back in and do an ERCP along with some ultra sound work up and a ct scan. I had all of them done within a 5 week period then was promptly advanced to a total pancreatic removal. I was alarmed and had no clue where this all was going. When my operation was scheduled last September I and my wife both thought I was only losing half of my pancreas but mid surgery while I was under anesthesia, the surgeon discussed with my wife the merits of taking the whole pancreas out along with 5-6 other organs nearby and below the pancreas. She s agreed that this sounded like the best option so it was game on at that point. I have to say, that as of today, I feel great, my neuropathy seems to be waning after 8 rounds of chemo and I’m more than comfortable the overnight change to becoming a type 3c diabetic. I got approved by Medicare last December to go on a Medtronic insulin pump and I must say that after two months of delivering insulin by pen, it’s a game changer!

I lead an active life at this point albeit I’m a 70 YO guy. I hope you are in good health and possibly a non smoker so you can qualify for the most aggressive course of action that the surgeon can provide.

Wishing you the best my friend!

Congrats! Does the insulin pump ever cause problems for you? Is it ever wrong like delivers too much insulin when you don't actually need it?
You have a wonderful attitude and glad to hear you are doing well.

The pump delivers very accurately provided you put in an estimated carb content on most everything you eat. I wasn’t advised until about 5 months after I got the unit that I need to put my carbs in 7-8 minutes before eating. I was putting them in when I sat down to eat or sometimes after I ate. So, with that said, yes, it is very accurate given the inputs. Sometimes in the over night hours it will present an auto correction based on a high glucogen number. Very helpful as it is administered at a level geared towards getting me back to something closer to the 112 blood sugar level we all seek.

If you get the opportunity to go on a Medtronic pump, go for it. Your life will be much the better. I refill the insulin about weekly and change the arm sensor and delivery set on my stomach weekly also. Not much of a hassle once you have the basics down.

Stay positive and get as much feedback you can from us that have already traveled this road. I wish I knew there was this particular chat line before as well as after I had my surgery. I’m doing remarkably well these days and living a good life again!

Hope the best for you too!