C3-C7 Severe bilateral foraminal stenosis

Posted by jet1024 @jet1024, Feb 12 3:49pm

I have had neck issues for many years. They have grown to the point where I can no longer turn my head very much, tingling in fingers at times, loss of grip and hand strength, pain, and I have issues with balance. I had an MRI in 2020 that showed mild to moderate foraminal stenosis from C3-C7. My symptoms have gotten worse, and at the prompting of the surgeon who just fixed my torn bicep tendons, I had an MRI last week. The results showed I now have severe bilateral foraminal stenosis from C3 - C7. It also shows that I now have mild to moderate spinal canal stenosis from C3-C7.

I have also had two lumbar surgeries in the last 10 years that have left me with neuropathy and pain in my left leg and foot. But, my lower back pain is much improved so I am very happy.

I do not want to have surgery. So, I guess I have some questions, and I am looking for information. I have already been referred to a “neck” surgeon by my shoulder surgeon. First, is this serious to the point of needing surgery? Second, can this get better on its own? Third, are there options that can fix these issues other than surgery? Fourth, if I delay possible surgery, is there a possibility of permanent damage that could lead to limited use of my arms or hands, etc?

I appreciate any insights… thank you!

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@jet1024 Welcome to Connect. Cervical spine surgery is not the same as lumbar spine surgery. What I hear from your words is a concern that surgery will leave you with pain. I am a cervical spine surgery patient, and my result was that the surgery cured all the pain I had. There are some key differences, however. I had surgery before permanent damage had set in. Results are usually better earlier rather than later. Surgeons can't tell you exactly when permanent damage begins. When it shows up on an MRI for example in the spinal cord, what shows up is nerve axon cells that are missing because they died and dissolved from compression. My imaging never showed that, but according to my surgeon, sometimes myelopathy does not show up on imaging.

I had pain all over my body from spinal cord compression. I lost the strength and coordination of my arms and had trouble emptying my bladder. That was an early sign, and it can progress to become permanent incontinence of bladder or bowels if the compression remains.

Stenosis of the spinal canal or at the nerve roots tends to get worse in time. As spinal discs collapse, it also adds pressure and causes wear on the facet joints. I have seen comments by a person who chose not to have spine surgery, and she is unable to walk and requires a burden for family to be her care givers. It is a huge financial burden that has them always trying to fundraise to support her, and she lives in a reclining wheelchair.

I have been a caregiver to my disabled parents and understand how difficult life becomes when you can't walk or care for yourself. Even though surgery is scary and was a journey, I feel privileged to be able to have that choice to avoid a disability that would have been my future.

I know how you feel. We all want a miracle. I am not a doctor, but it is easy to understand how far your spine condition has progressed and how quickly. That may give you a sense of urgency to understand what your future may be. Find the best surgeon that you can and get as many opinions as you need. I think you know the answers to your questions, and it may get a lot worse without surgery. As you know, surgery is a compromise with some loss of motion in exchange for trying to preserve function. With aging, the discs lose moisture and shrink a bit. That can cause any cracks in the walls to open up and cause a herniation. The inflammation from ruptured discs creates inflammation and leads to bone spur growth as the spine tries to stabilize itself. Yes, as I explained, there can be permanent damage if the compression is significant and for a long enough period of time. Your spine specialist is going to have to advise you on these questions as it relates to your spine condition. You will need to advocate for yourself and your care, and you may also run up against surgeons who dismiss you. Surgeons want to have successful cases and good results. My case was misunderstood and I had trouble finding a surgeon to help me, and the 6th one did because he understood the issues that the others missed. My surgery was at Mayo.

Have you scheduled a consultation with the spine surgeon where your doctor has referred you? Are there some other surgeons you wish to consult? You need information in order to make an informed decision.

REPLY
Profile picture for Jennifer, Volunteer Mentor @jenniferhunter

@jet1024 Welcome to Connect. Cervical spine surgery is not the same as lumbar spine surgery. What I hear from your words is a concern that surgery will leave you with pain. I am a cervical spine surgery patient, and my result was that the surgery cured all the pain I had. There are some key differences, however. I had surgery before permanent damage had set in. Results are usually better earlier rather than later. Surgeons can't tell you exactly when permanent damage begins. When it shows up on an MRI for example in the spinal cord, what shows up is nerve axon cells that are missing because they died and dissolved from compression. My imaging never showed that, but according to my surgeon, sometimes myelopathy does not show up on imaging.

I had pain all over my body from spinal cord compression. I lost the strength and coordination of my arms and had trouble emptying my bladder. That was an early sign, and it can progress to become permanent incontinence of bladder or bowels if the compression remains.

Stenosis of the spinal canal or at the nerve roots tends to get worse in time. As spinal discs collapse, it also adds pressure and causes wear on the facet joints. I have seen comments by a person who chose not to have spine surgery, and she is unable to walk and requires a burden for family to be her care givers. It is a huge financial burden that has them always trying to fundraise to support her, and she lives in a reclining wheelchair.

I have been a caregiver to my disabled parents and understand how difficult life becomes when you can't walk or care for yourself. Even though surgery is scary and was a journey, I feel privileged to be able to have that choice to avoid a disability that would have been my future.

I know how you feel. We all want a miracle. I am not a doctor, but it is easy to understand how far your spine condition has progressed and how quickly. That may give you a sense of urgency to understand what your future may be. Find the best surgeon that you can and get as many opinions as you need. I think you know the answers to your questions, and it may get a lot worse without surgery. As you know, surgery is a compromise with some loss of motion in exchange for trying to preserve function. With aging, the discs lose moisture and shrink a bit. That can cause any cracks in the walls to open up and cause a herniation. The inflammation from ruptured discs creates inflammation and leads to bone spur growth as the spine tries to stabilize itself. Yes, as I explained, there can be permanent damage if the compression is significant and for a long enough period of time. Your spine specialist is going to have to advise you on these questions as it relates to your spine condition. You will need to advocate for yourself and your care, and you may also run up against surgeons who dismiss you. Surgeons want to have successful cases and good results. My case was misunderstood and I had trouble finding a surgeon to help me, and the 6th one did because he understood the issues that the others missed. My surgery was at Mayo.

Have you scheduled a consultation with the spine surgeon where your doctor has referred you? Are there some other surgeons you wish to consult? You need information in order to make an informed decision.

Jump to this post

@jenniferhunter is it ok to ask what doctor you saw for your neck?

REPLY

I've had 2 spinal fusion procedures done on my neck, C5-C6 and C7-T1, and my results have been positive.

REPLY
Profile picture for cdammen @cdammen

@jenniferhunter is it ok to ask what doctor you saw for your neck?

Jump to this post

@cdammen Absolutely! I was on my phone before, so I couldn't copy his profile. Here is my surgeon, Jeremy Fogelson who I recommend highly.
https://www.mayoclinic.org/biographies/fogelson-jeremy-l-m-d/bio-20055624

REPLY
Profile picture for Jennifer, Volunteer Mentor @jenniferhunter

@jet1024 Welcome to Connect. Cervical spine surgery is not the same as lumbar spine surgery. What I hear from your words is a concern that surgery will leave you with pain. I am a cervical spine surgery patient, and my result was that the surgery cured all the pain I had. There are some key differences, however. I had surgery before permanent damage had set in. Results are usually better earlier rather than later. Surgeons can't tell you exactly when permanent damage begins. When it shows up on an MRI for example in the spinal cord, what shows up is nerve axon cells that are missing because they died and dissolved from compression. My imaging never showed that, but according to my surgeon, sometimes myelopathy does not show up on imaging.

I had pain all over my body from spinal cord compression. I lost the strength and coordination of my arms and had trouble emptying my bladder. That was an early sign, and it can progress to become permanent incontinence of bladder or bowels if the compression remains.

Stenosis of the spinal canal or at the nerve roots tends to get worse in time. As spinal discs collapse, it also adds pressure and causes wear on the facet joints. I have seen comments by a person who chose not to have spine surgery, and she is unable to walk and requires a burden for family to be her care givers. It is a huge financial burden that has them always trying to fundraise to support her, and she lives in a reclining wheelchair.

I have been a caregiver to my disabled parents and understand how difficult life becomes when you can't walk or care for yourself. Even though surgery is scary and was a journey, I feel privileged to be able to have that choice to avoid a disability that would have been my future.

I know how you feel. We all want a miracle. I am not a doctor, but it is easy to understand how far your spine condition has progressed and how quickly. That may give you a sense of urgency to understand what your future may be. Find the best surgeon that you can and get as many opinions as you need. I think you know the answers to your questions, and it may get a lot worse without surgery. As you know, surgery is a compromise with some loss of motion in exchange for trying to preserve function. With aging, the discs lose moisture and shrink a bit. That can cause any cracks in the walls to open up and cause a herniation. The inflammation from ruptured discs creates inflammation and leads to bone spur growth as the spine tries to stabilize itself. Yes, as I explained, there can be permanent damage if the compression is significant and for a long enough period of time. Your spine specialist is going to have to advise you on these questions as it relates to your spine condition. You will need to advocate for yourself and your care, and you may also run up against surgeons who dismiss you. Surgeons want to have successful cases and good results. My case was misunderstood and I had trouble finding a surgeon to help me, and the 6th one did because he understood the issues that the others missed. My surgery was at Mayo.

Have you scheduled a consultation with the spine surgeon where your doctor has referred you? Are there some other surgeons you wish to consult? You need information in order to make an informed decision.

Jump to this post

@jenniferhunter I agree with everything you have said, Jennifer. Over 10 years ago I had a C5-7 fusion and was fortunate to have a good surgeon

REPLY
Profile picture for mrmacabre @mrmacabre

I've had 2 spinal fusion procedures done on my neck, C5-C6 and C7-T1, and my results have been positive.

Jump to this post

@mrmacabre i'm getting ready to have a fusion from C5 to T1. I am really worried about it. Could you tell me how bad the pain was? I can't take most narcotics because they make me itch.
Thank you!

REPLY
Profile picture for erdocsmom @erdocsmom

@mrmacabre i'm getting ready to have a fusion from C5 to T1. I am really worried about it. Could you tell me how bad the pain was? I can't take most narcotics because they make me itch.
Thank you!

Jump to this post

@erdocsmom Are they doing your procedure through your throat? If so then I don't remember the pain being anything overwhelming or debilitating as long as you wear your neck brace. I only took the hard painkilling drugs for a couple of days, and then switched to Alleve. Just take it slow and do what they tell you to when they send you home. You more than likely will need to sleep in a chair/recliner for the next few weeks.

REPLY

Unfortunately they have to do it posteriorly.

Thanks.

REPLY
Profile picture for Jennifer, Volunteer Mentor @jenniferhunter

@jet1024 Welcome to Connect. Cervical spine surgery is not the same as lumbar spine surgery. What I hear from your words is a concern that surgery will leave you with pain. I am a cervical spine surgery patient, and my result was that the surgery cured all the pain I had. There are some key differences, however. I had surgery before permanent damage had set in. Results are usually better earlier rather than later. Surgeons can't tell you exactly when permanent damage begins. When it shows up on an MRI for example in the spinal cord, what shows up is nerve axon cells that are missing because they died and dissolved from compression. My imaging never showed that, but according to my surgeon, sometimes myelopathy does not show up on imaging.

I had pain all over my body from spinal cord compression. I lost the strength and coordination of my arms and had trouble emptying my bladder. That was an early sign, and it can progress to become permanent incontinence of bladder or bowels if the compression remains.

Stenosis of the spinal canal or at the nerve roots tends to get worse in time. As spinal discs collapse, it also adds pressure and causes wear on the facet joints. I have seen comments by a person who chose not to have spine surgery, and she is unable to walk and requires a burden for family to be her care givers. It is a huge financial burden that has them always trying to fundraise to support her, and she lives in a reclining wheelchair.

I have been a caregiver to my disabled parents and understand how difficult life becomes when you can't walk or care for yourself. Even though surgery is scary and was a journey, I feel privileged to be able to have that choice to avoid a disability that would have been my future.

I know how you feel. We all want a miracle. I am not a doctor, but it is easy to understand how far your spine condition has progressed and how quickly. That may give you a sense of urgency to understand what your future may be. Find the best surgeon that you can and get as many opinions as you need. I think you know the answers to your questions, and it may get a lot worse without surgery. As you know, surgery is a compromise with some loss of motion in exchange for trying to preserve function. With aging, the discs lose moisture and shrink a bit. That can cause any cracks in the walls to open up and cause a herniation. The inflammation from ruptured discs creates inflammation and leads to bone spur growth as the spine tries to stabilize itself. Yes, as I explained, there can be permanent damage if the compression is significant and for a long enough period of time. Your spine specialist is going to have to advise you on these questions as it relates to your spine condition. You will need to advocate for yourself and your care, and you may also run up against surgeons who dismiss you. Surgeons want to have successful cases and good results. My case was misunderstood and I had trouble finding a surgeon to help me, and the 6th one did because he understood the issues that the others missed. My surgery was at Mayo.

Have you scheduled a consultation with the spine surgeon where your doctor has referred you? Are there some other surgeons you wish to consult? You need information in order to make an informed decision.

Jump to this post

@jenniferhunter

Thank you so much... you have shared great information. My appointment is a couple of weeks out. I know I am going to get a second opinion like I did with my Lumbar surgeries.

What you mention about not being understood rings home with me. I currently have neuropathy in my left leg and foot. Because of that when I would have balance issues it would just be related to that and kind of ignored. I also have Type2 Diabetes and I have been told it is related to that. Although I am proud to say, that sine 2010 I have lost 105 pounds so I am now under 170 pounds and my Diabetes is well under control. I also have an essential tremor in my hands, right is worse than left, so when I would mention to the doctor that I have a hard time gripping things and I also drop things, it was just related back to that. The shoulder issues I have had for years and the pain was related to just rotator cuff issues which I have. In fact I just had shoulder surgery for my left shoulder. It was that surgeon who told me I needed to have another MRI on my cervical spine because he told me that during surgery it was almost impossible to turn my head.

I will post as I learn more information... everyone on here is so kind!

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