1. < Breast Cancer

Anyone else get breast cancer after bilateral mastectomy?

Posted by sandyjr @sandyjr, Feb 12 6:42am

What are the chances of getting breast cancer again after bilateral mastectomy with diep reconstruction? First BC…DCIS right breast with radiation and tamoxifen. Second BC …left breast IDC with radiation and anastrozole for 5 years. No lymph node involvement. CHEK 2 mutation found, so bilateral mastectomy with reconstruction.

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windyshores | @windyshores | Feb 12 6:52am

Noone can say what the risks are, but the Oncotype covers the first 5 years, then Breast Cancer Index tells risk after that. I had both done at those different times, and also had the Prosigna Assay (formerly PAM 50) done at the 5 year point. Online programs like cancer math are more generalized so I go by the risks in testing on my own tissue.

I learned about these tests on breastcancer.org. Breast Cancer Index is now in the NCCN guidelines, not sure about the Prosigna. At the time my MD's did not know about them. I printed the paperwork and brought to MD's who were interested in them. This was 5 years ago so MD's may be more aware.

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sandyjr | @sandyjr | Feb 13 8:27am
In reply to @windyshores "Noone can say what the risks are, but the Oncotype covers the first 5 years, then..." + (show)
@windyshores

Noone can say what the risks are, but the Oncotype covers the first 5 years, then Breast Cancer Index tells risk after that. I had both done at those different times, and also had the Prosigna Assay (formerly PAM 50) done at the 5 year point. Online programs like cancer math are more generalized so I go by the risks in testing on my own tissue.

I learned about these tests on breastcancer.org. Breast Cancer Index is now in the NCCN guidelines, not sure about the Prosigna. At the time my MD's did not know about them. I printed the paperwork and brought to MD's who were interested in them. This was 5 years ago so MD's may be more aware.

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I realize that no one can tell what the exact chances are. I had the Oncotype and that was ok, but I also have the mutation. My question should have been asking how many people have gotten BC again after radiation, taking an aromatose inhibitor and having a bilateral mastectomy.

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windyshores | @windyshores | Feb 13 9:50am

Would you consider the other tests I mentioned?

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sandyjr | @sandyjr | Feb 15 5:29am

I previously posted about this, but asked it in the wrong way. I asked what the chances are of getting breast cancer after a bilateral mastectomy. What I would really like to know is how many people have had this happen to them. If you have had this happen to you, could you please just comment on it. Thank you.

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1 reply
bessie4fr | @bessie4fr | Feb 15 9:02am
In reply to @sandyjr "I previously posted about this, but asked it in the wrong way. I asked what the..." + (show)
@sandyjr

I previously posted about this, but asked it in the wrong way. I asked what the chances are of getting breast cancer after a bilateral mastectomy. What I would really like to know is how many people have had this happen to them. If you have had this happen to you, could you please just comment on it. Thank you.

Jump to this post

Your oncologist should be able to tell you the odds of recurrence after your successful surgery, chemo, radiation treatments, and any drugs they think you should take to help stay cancer free. It's been 20+ years for me as a survivor, so I can't remember the exact details of the TCNMO ~ numbers. If you do have a recurrence, Mayo is the best, you are in good hands, so listen to your doctors. Good luck!

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