Anyone else been diagnosed with a borderline ovarian tumor?

@charlotte 12 Many if not most hospitals who provide cancer care have a working tumor board. This is generally a weekly meeting with specialities who provide for cancer patients which included pathology, oncology, radiation oncology and in some cases internal medicine. Other larger medical centers will include other specialties such as gyn-oncology or genetics. The purpose of the tumor board is to discuss patients who have complicated diagnoses and needs in order to decide, in a collaborative way, what is a recommended treatment plan.

National Cancer Institute: Tumor Board Review

-- https://www.cancer.gov/publications/dictionaries/cancer-terms/def/tumor-board-review

I was diagnosed with endometrial cancer at Mayo Clinic in Rochester, MN. Since my diagnosis was not complex and the cancer was not aggressive my gyn-oncologist did not bring my case to the tumor board (I know this because my husband is a retired pathologist and this came up during one of my consults).

Does this answer your question?

I am hoping so, this is all so new to me, and still processing everything that I have been told in the last week or so. I hope to feel a little better after speaking with my surgeon this Friday. I have done a little more research and have questions regarding the actual pathology of the primary tumor and the satellites. What has been your experience thus far?

I'm treated at a teaching hospital, with 1200 physicians, this includes regional clinics. There are 3 gyn-oncologist at the hospital,
your hospital is at a different level, 2400 physicians, it offers a second opinion program-
https://www.northside.com/services/cancer-institute/cancer-second-opinion-program- and it is open 24 hours-
it sounds like a good place to be-

Northside Hospital in Atlanta, GA, and, yes as confused (and so much more), as I am with the diagnosis and outlook, do look forward to having a group discuss my treatment rather than relying on my gyn-onc alone. I will update after Friday~

I hope you don't have to wait long for the review. Wishing
you the best.

what hospital has a tumor board? Never heard about this before? Who is on it? I think you are fortunate that you have
a team reviewing your case.

I was recently diagnosed for the first time at 60 with a Serous Borderline Tumor with microinvasion, and abdominal implants, staged at IIIb, and am waiting for a case review by the hospital tumor board for treatment recommendations. I am having a hard time relaying to others the diagnosis, and prognosis..recommendations as I wait to see what comes next for me?

@l23. I was diagnosed with endometrial cancer (endometroid adenocarcinoma, Stage 1a) in 2019. No other treatment was recommended. I had a recurrence in late 2021 and so had radiation therapy. I'm at the two year mark and my next cancer surveillance appointments are next week. I will say that once the cancer diagnosis has been given the thought of recurrence never leaves. Sometimes it's buried further into my psyche and sometimes it rears up again.

I did not have the same diagnosis as you and I'm much older (71-years-old now) but I relate to your feelings of sometimes feeling angry, other times tired and worried. Yes, I am happy that I've not had to do chemotherapy but I drop all those "shoulds" as in "should be grateful" from my self-talk. "Should" talk isn't helpful. Follow-ups are difficult and anxiety-provoking. Still, I always keep my appointments and don't avoid anything I need to do for my own health.

When those worries pop up how do you give yourself self-compassion?

thank you for sharing your experience. it helps a lot of hear what other people have been through and to know that i am not alone.
that is really good news that you are almost to two years!
sending you good vibes. and sharing my intention to keep going one day at a time.

I didn’t have as many surgeries as you had: just open abdominal and removal of one ovary and fallopian tube because it was a giant cyst. Recovery was hard and painful, I was constantly fainting for the first 2 weeks and in so much pain, but they wouldn’t give me oxy (which I’m grateful for, now watching all the documentaries about addiction).

I was very tired even months after my surgery and I had abdominal tenderness (wearing a binder helps). I don’t have the pressure on my bladder, although I did when I had the cyst because it was pushing down on my bladder, but after surgery, I had a lot of UTIs and yeast infections and BV, not sure if it’s related.