Bladder Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, May 17 3:57pm

Welcome to the Bladder Cancer support group on Mayo Clinic Connect.

This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.

Pull up a chair. Let’s start with introductions.

What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

skind6 | @skind6 | Jul 18 11:03am

In reply to @swh "How was the next 6 hours after the infusion? I have a 5 hour drive home..." + (show)

@swh Im glad ur doing well. I would discuss with Mayo like @scott232 suggested. Personally, I would need to use the restroom prior to 5 hr drive. Wishing you the best

DAVID B. | @davidpball | Jul 18 6:07am

Greetings! I was diagnosed in June 2023 with NMIBC and have undergone two TURBTs and intravesical treatments. After induction and maintenance of BCG, I am refractive (cystoscopy detected CIS) and desire to try another option prior to potential cystectomy. Will group share any experiences with gemcitabine, e.g. side effects and effectiveness? Thank you.

Sue | @swh | Jul 17 3:45pm

In reply to @dldinsd "I'd do what scot232 suggests. Wait the 2 hours, empty the BCG and then get on..." + (show)

Thanks for asking. I inquired and will be getting a 50 mg (full dose) at Mayo Rochester.

dldinsd | @dldinsd | Jul 12 11:54pm

In reply to @swh "How was the next 6 hours after the infusion? I have a 5 hour drive home..." + (show)

I'd do what scot232 suggests. Wait the 2 hours, empty the BCG and then get on the road. The 6 hours were uneventful - you might have to stop once during the 5 hours. Good luck. Will you be having the full or half treatment? I had only the half due to shortages. Fingers crossed it does the job.

scott232 | @scott232 | Jul 12 9:20pm

Your bladder is empty when they put in BGH. I held it the two hrs but I’d guess you should talk with them. Maybe you stay there for the two hrs and drive back home after you empty the BGH.

Sue | @swh | Jul 12 4:47pm

In reply to @scott232 "Did my 1st BCG treatment yesterday. Not terrible as I thought. Day 2 has been uneventful..." + (show)

How was the next 6 hours after the infusion? I have a 5 hour drive home and am wondering how to manage bathroom stops & disinfecting....

scott232 | @scott232 | Jul 12 4:42pm

In reply to @johnfromca "I begin next week. Did you have a liver test before the treatment?" + (show)

No liver test. Blood and urine

johnfromca | @johnfromca | Jul 12 2:35pm

In reply to @dldinsd "I started first treatment this week but never had a liver test before treatment. Did they..." + (show)

My mistake. The test was for one wi
th IPF. I have bladder and lung problems and got mixed up,

dldinsd | @dldinsd | Jul 12 2:15pm

In reply to @johnfromca "I begin next week. Did you have a liver test before the treatment?" + (show)

I started first treatment this week but never had a liver test before treatment. Did they tell you why you needed that test? Good luck next week. I'm feeling fine so far.

johnfromca | @johnfromca | Jul 12 10:34am

In reply to @scott232 "Did my 1st BCG treatment yesterday. Not terrible as I thought. Day 2 has been uneventful..." + (show)

I begin next week. Did you have a liver test before the treatment?

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