Bladder Cancer Group: Introduce yourself and connect with others
Welcome to the Bladder Cancer support group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.
Pull up a chair. Let’s start with introductions.
What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?
Interested in more discussions like this? Go to the Bladder Cancer Support Group.
I am a 73 YO male. In mid Dec I started peeing brown blood and a few days later it turned red. Went to the ER and the CT scan showed growths on my bladder. Last week I had the growths removed during the biopsy procedure. My follow up with the urologist is in a couple days. So we shall see what he plans for recovery. Some of what I read was not very encouraging.
I just got my pathology report. some I understood some I did not.
Recap
A 2.5cm tumor was taken out for pathology. This tumor and 2 smaller ones were removed and area cauterized.
Extensive high grad papillary urothelial carcinoma. OK high grade (not good) cancer.
With Foci of Lamina propria invasion. The cancer cells were detected in next level tissue.
Definitive angiolymphatic invasion is identified. Not sure but sounds like cancer cells in blood and lymph nodes.
Small microscopic focus of muscularis properia not involved in the tumor. I think muscle layer does not have cancer cells
@nolaughingmatter, I can imagine you are nervous. If the biopsy confirms urothelial cancer, you might be interested in these related discussions:
- https://connect.mayoclinic.org/group/bladder-cancer/?search=urothelial%20&index=discussions
Hi, I can relate to your situation. I’m a 70 year old female & was diagnosed with HG urothelial cancer 2 years ago. The medical field has made great progress in treating this type of cancer. There are some good websites that explain the treatments and I hope you are able to ask your doctors what treatments are available to your particular situation. Be encouraged that this can be difficult to deal with but there will be brighter days ahead. I’ll be thinking of you.
I haven't seen the urologist yet so sadly I have no idea what the plans are. I just know that my bladder needs to be removed from researching it myself. Then I read some people have chemo before but some just have it removed and have it after or immunotherapy. I hopefully will know a plan when I finally see the urologist on Wednesday. Depending on that meeting I will know if I need to look for someone else. I am expecting him to have a plan and dates ready to start as he has had a month now to do that. Thank you
Are they planning a radical cystectomy immediately or will you have chemo before bladder removal? I had three months of chemo, a month wait to help my body recover from it a bit and then bladder removal. I also had a muscle invasive tumor that was 5 cm. (My only tumor)
If you aren't happy with any of your doctors remember there are many more out there. Don't be afraid to switch. You'll know when you've found the right ones and that can help give peace of mind. Prayers for you.
I hope I get a team care. You would assume that alot should be ready for me to start as it will be just over a month and he already knows my bladder needs to be removed. He hasn't even completed paperwork for me to give manulife so my short term disability doesn't end next Friday. And I am told not to stress 🥺🙄 Thank you
I hope your care team can come up with a plan that provides you with hope. I agree that it is the uncertainty of not knowing that is so difficult to experience. Best wishes to you.
I waited 3 weeks for my pathology results, even though they were sent with a rush on them. Apparently the rush was not put on the vials so they were not rushed 🙄 the worst part is the waiting. I had 3 of the 4 tumors removed on December 20th but no appointment with the urologist until January 22nd. I am aware I will more than likely be having a radical cystectomy as the 1 tumor remaining is still 5cm into my bladder wall which is aggressive high-grade. So why all the waiting, while it hasn't spread further? Just so frustrated.
Hello, I am a 74 year old female who was recently diagnosed with bladder cancer. It appears I have a very large tumor that is suspicious of urothelial cancer. I will be getting a biopsy soon to confirm this but was suspected in the mri with contrast and cystoscopy. I am very nervous about all this. I would like to hear from others who have been diagnosed with same. Thank you.
Hi. I had 9 inductions of BCG this past yr. Cysto found 2 tumors small My cancer is nimbis High grade. 3rd Turbt scheduled for next week. Im then scheduled for Gen/Dox sometime after Turbt. Has anyone used any other chemo treatment besides Gembiticde/Dox. Thanks