Bladder Cancer Group: Introduce yourself and connect with others

I had my last BCG treatment in the 15th I am so glad I have had the worst pain when going to the bathroom which ends up being every 30 minutes, I go back in 8 weeks for a cystoscope hopefully it will not be back within a year. I’ve had two surgeries and have had three places burned off. All I know is I don’t think I could go to the BCG treatment again not with the pain it has caused and my doctor I should say the nurse who gives a treatment all I get from her that’s normal too much pain. Has anyone else experience this thanks, Tammy.

Just had my 2nd of 6th BCG treatments Thursday. Did find it was a little more uncomfortable than the first treatment after holding for 2 hours. Thank goodness for AZO which is a live saver. I’ll take this shortly after treatment which helps with urinating after.
4 more to go!!

Going for 4th treatment tomorrow. So far so good only a few side affects. Felt bad last Saturday and appear to be loosing hair. Other than that hopefully this treatment is working. Thanks

@bigl55, how are you doing on chemo?

Thank you for your reply and concern. I never knew their were other options. I will inquire when this episode is over. Thanks

Hello big155 and welcome to Connect Bladder Cancer. My husband has battled an aggressive bladder cancer since 2019. He got tired of all the cystoscopies and followup tumor removals and had his bladder and prostate removed over 2 years ago, with a neobladder surgery done to replace it.
Many people live with and control their noninvasive bladder cancer with regular monitoring and removal of tumors, as bladder cancer does like to return. I hope that yours is very responsive to the chemo so you get a break from surgeries. I am hearing that BCG has become easier to get hold of so maybe when you are finished with your chemo you can use that for a maintenance therapy if needed. Good luck to you and keep looking through the bladder cancer topics here for answers to your questions.

Had my right kidney removed only to find out i also have bladder cancer. I have had it scrapped first and had 2 more timers removed 90 days later. I was placed on a waiting list for BCG treatment and after a month of waiting was offered the gensar chemo and taxotere treatment. I go for my second of six treatments tomorrow. I was not offered any treatment until about 7 months after surgery. I have had no side effects as of today. I am glad my wife found this site. I hope and prey everyone benefits from their treatment.

Thanks Tom
It appears that the BCG worked well for you. I'm having number 4 tomorrow. I have not had many side effects. I'm hoping that it works for me as it did for you. Thank you for the kindness of your reply.
Francis

Hi Fran,

Yes, I had 5+ rounds of BCG treatment ( not able to complete 6th round completely) 7 years ago which seemed to work.
Side effects weee minimal, just a bit uncomfortable until last round, my body started to reject at that point.

like you..i am not worried about me..feel am strong enough to deal..but sure could use someone to talk to..my worry will be for those i leave behind..bladder cancer seems to be unforgiven...as it seems to just about alwyas return..i have a line in sand i wont do..my bladder stays...i wont go out piece by piece..just alot of anxierty and fear of the unknown..it feels like atleast once a month..something is being done to me...i guess am fortunate in that regard as it gets caught early..but each test just heightens the anxiety...and awaiting pathology results is excruciating