Bladder Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, May 17 3:57pm

Welcome to the Bladder Cancer support group on Mayo Clinic Connect.

This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.

Pull up a chair. Let’s start with introductions.

What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

jimg56 | @jimg56 | 6 days ago

Hello everyone,
I have joined on behalf of my husband. He has non invasive carcinoma bladder cancer. He had a turbst in june and in sept the cancer was back. Drs have been slow with starting any treatments. He was suppose to start BCG treatments nov 14 but they do not have availability due to the WW shortage.
Next app is dec 3 @ sloan k. For cystocopy.
As of right now sloan does not have the bcg.
I am hopeful and will insist the alternate treatment i have read about on here is used.
Nice to meet all of you.
Catherine

kre22 | @kre22 | Nov 12 10:28am

In reply to @kre22 "Thanks for the “hug.” I appreciate it. PC" + (show)

Have been busy and not too familiar with this support group writing and replying, but someone asked me about anxiety with my upcoming follow-up visit on December 2 at Mayo Clinic. Yes, I am concerned; hopefully, there will be no recurrence of my bladder cancer. Thank you all. Peter

kre22 | @kre22 | Nov 12 10:25am

In reply to @kre22 "Thank you, very much for all you do in this support group . My bladder cancer..." + (show)

Thanks, Connie. I appreciate it.

kre22 | @kre22 | Oct 31 5:30pm

In reply to @kre22 "Thank you, very much for all you do in this support group . My bladder cancer..." + (show)

Thanks for the “hug.” I appreciate it.
PC

Colleen Young, Connect Director | @colleenyoung | Oct 31 3:18pm

In reply to @shamela "Hello. My husband was diagnosed with bladder cancer. He has been in constant pain for the..." + (show)

@shamela, I wanted to check in. How is your husband doing? Were they able to help him get rid of the infection in his kidneys and ease the pain? Has he started chemotherapy?

judilafleur | @judilafleur | Oct 30 4:31pm

In reply to @colleenyoung "@judilafleur, how did the biopsy go?" + (show)

Thank you for reaching out!
I go on the 6th of Nov.

Colleen Young, Connect Director | @colleenyoung | Oct 30 4:02pm

In reply to @judilafleur "I have been dealing with reoccurring tumors myself...I go in soon for a Biopsy removal. It's..." + (show)

@judilafleur, how did the biopsy go?

Colleen Young, Connect Director | @colleenyoung | Oct 30 3:18pm

In reply to @kre22 "Thank you, very much for all you do in this support group . My bladder cancer..." + (show)

Welcome, @kre22. I think whether a cancer has a known high-rate of recurrence or not, the though of cancer coming back lurks in one's mind, always - sometimes in the background, sometimes more pronounced.

Do you find that you start to have to cope with "scanxiety" as your six month follow-up approaches? Do you have ways to cope, distract, accept?

Colleen Young, Connect Director | @colleenyoung | Oct 29 5:12pm

In reply to @trft "I’m new here. I’m here because I have bladder cancer and I’m in maintenance mode. Except..." + (show)

Welcome, @trft. You mention that you are in maintenance mode. Are you on maintenance treatment? What treatment? May I ask what type of bladder cancer you have?

blazermaniac | @blazermaniac | Oct 28 5:35pm

In reply to @colleenyoung "@blazermaniac, I'd like to add my welcome. Using the group search function, I found this discussions..." + (show)

Yes, my doctor plans to remove the 2 small lesions and then six weeks later I begin BCG.

Thanks for the feedback @colleenyoung

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