Has anyone experienced back pain with Tymlos?

harryboy7, back pain is signaled as a common side effect of Tymlos.
I'd want a lumbar MRI because of the possibility that you may be fracturing in the lumbar spine.
The thoracic fractures are changing the dynamics in your low back, it could just be muscular.
If it is just a side effect, it may go away after a couple of weeks.
Tymlos can cause hypercalcemia which can cause kidney stones but I think it's too soon for that effect.
I haven't taken Tymlos and hope your back pain just goes away.

Hi @harryboy7

When I was using Tymlos, my doc (at that time) told me to use the full dose of the meds from the jump. He also said that it didn't matter if the meds were given in the abdomen, thigh, etc. It is a sub-q med and therefore can be given anywhere you can "pinch" your skin to inject; he said even the back of my arms :{.

My current doc recently told me if necessary, I could try Tymlos again, this time beginning with fewer clicks and, hopefully, reach the eight for the full dose. A very good argument for uptitrating is that we are all different (height, weight, body comp, etc) and what might be good for those of us who are 6' tall and 160 pounds, might not be good for those of us who are more like 5' tall and 120 pounds. Sometimes, it is what it is!

I agree with gently - it might be a mechanical reason your back hurts. I started to walk with a "list to the left" after a fracture and had severe pain. Saw a PT who told me I was out of whack lengthwise and also twisted to the side. Subsequently saw a chiropractor who told me the same thing and made an adjustment. The list was rectified. Of course, I could tell my pain was more muscular and not a bone-type of pain.

I wish you a speedy answer and relief for your back pain.

Cheers!

I have recently been diagnosed with OP, i am 66 and in very good health, they want to put me on Tymlos. I have never taken any thing other than pain meds for a short time after surgery! My question is what is your plan for afterwards do you move to a maintaince drug or can you do Diet and exercise. All the doctors want to do is perscribe another drug.

I think most Doctors lean towards the Pharmaceuticals. At least mine did. I am 71. I too found out the had Osteoporosis. My dexascan showed it was really bad. I have started Tymlos. This one is recommended for people in severe cases.
I am not an expert on this, but my understanding is you start with a medication that builds new bone for a couple years, then start a different one to preserve the bone.
Diet and exercise is always good. I have always been super active. Thought I did everything right. And I still developed severe Osteoporosis.
I would talk to an Endocrinologist. My Endo had me talk to the clinical Pharmacist. She had my whole history. I found out you can't take just any drug. for various reasons. I would get a lot of information I learned a lot via the Osteoporosis foundation. There was a video on this support that was great. Go to reputable sites.
I am sure many people on this support group will be able to help and guide you.

@chrisdietrich I will be finishing up two years of Tymlos in March. After that, the plan is to take alendronate (Fosamax) for one year to preserve gains. Then we take a medication break, with annual DEXA scans to monitor. I've been doing nutrition and exercise all the while.

For people who still need further bone building after Tymlos, Evenity for a year is one possibility.

FYI, I started this journey at -3.3, and this past January I was up to -2.0 (osteopenia.) It's probably even better now.

I wish we could say "take this for two years and then you're good to go", but that isn't the reality. 🙁 Unfortunately, if your bone loss is severe (-3.3, say), diet and exercise aren't going to be enough.

I am thinking of starting Tymlos. I would love to get any advise and information from this group. I am already experience lumbar pain from a slipped vertebra. I also have four sacral fractures that are not completely healed. I have to choose between Evenity and Tymlos and Reclast. There are so many variables that it is really uncertain which will have the fewest side effects. I am very sensitive to medicine, so I am very cautious.
Thank you !

Yes, I have a lot of side effects with the Tymlos, but back pain was a major one. It would start 10 minutes after the injection, like a spasm. It wasn't very pleasant, but it has subsided to a degree. My doctor recommended taking extra magnesium and to be sure that I was well hydrated. Maybe that helped or maybe I’m just getting used to the medication.

I’m sorry, but what you are saying is flat out incorrect. I don’t know where you got your information but I suggest you call the T YMLOS manufacturer or contact your doctor or look online! You can rotate your injections between your left and right leg and your left and right tummy — and even underneath your arm (but I can’t reach there). You have not received proper information. In addition, doctors WILL suggest titrating up if you aren’t tolerating the medicine well. Mine certainly did and it lessened the side effects I was experiencing. Just like they said after two months, the side effects disappeared. One aspect of having specific pain is that you have an area in need of treatment and your immune system is ramping up to address that area in need. I suggest calling your doctors office with your issues and calling the manufacturer as well.

What exactly is incorrect?

@njx58 Thank you, this has beeen very helpful! Due to 2 factures they want to put me on the Tymlos, I guess I am considered high risk. My plan would be very similar to yours (2 years of Tymlos then maintiance drug for a year) since I am 66 and very healthy. The diet and exercise is the easy part for me. I am an ex professional athlete and still race bikes at a elite level. All the best, I would like to hear your progress through out the next year!!!