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Atypical lobular hyperplasia: Did you have surgery?

Posted by delormv @delormv, Aug 29, 2022

August 2021, I was diagnosed with invasive DCIS in my left breast. I underwent a lumpectomy, chemo, and radiation. I am currently on Anastrozole. August 2022, ALH was incidentally found in my right breast after a biopsy was performed due to microcalcifications found on a mammogram. My surgical oncologist stated that ALH does not need to be surgically removed since it is not cancer. Has anyone else been diagnosed with ALH and not had it removed? Have others had theirs removed? Thank you 🙏

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christie73 | @christie73 | Feb 8, 2023

My biopsy revealed ALH after having micro calcifications on a mammogram. I opted for the lumpectomy. Pathology revealed LCIS. While this is still not cancer it helps me better understand my risk. Initially I was on Tamoxifen but was switched to Letrozole after a total hysterectomy and salpinge-oophorectomy.

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rebecca55 | @rebecca55 | Feb 8, 2023
In reply to @delormv "@rebecca55 If you don’t mind, would you please share any updates from your MRI in April?..." + (show)
@delormv

@rebecca55 If you don’t mind, would you please share any updates from your MRI in April? I go back and forth on my decision whether to have the ALH removed. Thank you.

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I don’t go for my MRI until April of this year, 2023

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delormv | @delormv | Feb 7, 2023
In reply to @rebecca55 "I had my appt with the oncologist on January 17, 2023 due to Atypical lobular hyperplasia...." + (show)
@rebecca55

I had my appt with the oncologist on January 17, 2023 due to Atypical lobular hyperplasia. She wanted to put me on Tamoxifen for 5 years. I have decided due to all of the side effects my sister had to not take it. I am going to start out with testing every six months. I will have an MRI breast screening in April. I will see how this goes.

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@rebecca55 If you don’t mind, would you please share any updates from your MRI in April? I go back and forth on my decision whether to have the ALH removed. Thank you.

REPLY
1 reply
debbie2721 | @debbie2721 | Feb 6, 2023
In reply to @keepshining2003 "Hello, I am 44 years old just found out I have atypical hyperplasia. How many of..." + (show)
@keepshining2003

Hello, I am 44 years old just found out I have atypical hyperplasia. How many of you on here had the surgery to remove it? How many just kept doing the mammogram every 6 months and taking tamoxifen? Did tamoxifen did you bad or any side effects. Any comments on this would be so helpful. Thank you.

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@keepshining2003
I was diagnosed with atypical ductal hyperplasia which I think is similar. I had an excisional biopsy/ lumpectomy. I would have been prescribed tamoxifen but I have the factor five Leiden gene and the oncologist was worried about blood clots. I am taking Anastrozole and I don't seem to have any side effects after 4 months. I take it before I go to bed.
I was told tgey would like to keep me on it 5 yrs. I will also have mammograms every 6 months on that breast. Wishing you have a good outcome.

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gags1 | @gags1 | Feb 6, 2023
In reply to @rebecca55 "Did you have any signs that you had the LCIS?" + (show)
@rebecca55

Did you have any signs that you had the LCIS?

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None

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delormv | @delormv | Feb 6, 2023
In reply to @fronterae "Yes, they removed all the ALH. Now I will continue with alternative screenings MRI and mammograms..." + (show)
@fronterae

Yes, they removed all the ALH. Now I will continue with alternative screenings MRI and mammograms every 6 months. And my appointment with the oncologist is March 1st.

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Thank you. I appreciate your response and I hope your scans will always be clear of cancer. 🙏

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fronterae | @fronterae | Feb 6, 2023
In reply to @delormv "@fronterae thank you for your response. Did the biopsy removal all of the ALH?" + (show)
@delormv

@fronterae thank you for your response. Did the biopsy removal all of the ALH?

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Yes, they removed all the ALH. Now I will continue with alternative screenings MRI and mammograms every 6 months. And my appointment with the oncologist is March 1st.

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1 reply
delormv | @delormv | Feb 6, 2023
In reply to @fronterae "Hi, I was diagnosed with atypical lobular hyperplasia in my right breast. Had excisional biopsy to..." + (show)
@fronterae

Hi, I was diagnosed with atypical lobular hyperplasia in my right breast. Had excisional biopsy to remove it on 12/30/22.Had genetic test done waiting for results and have an appointment with oncologist to see what she recommends.

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@fronterae thank you for your response. Did the biopsy removal all of the ALH?

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1 reply
fronterae | @fronterae | Feb 5, 2023
In reply to @keepshining2003 "Hello, I am 44 years old just found out I have atypical hyperplasia. How many of..." + (show)
@keepshining2003

Hello, I am 44 years old just found out I have atypical hyperplasia. How many of you on here had the surgery to remove it? How many just kept doing the mammogram every 6 months and taking tamoxifen? Did tamoxifen did you bad or any side effects. Any comments on this would be so helpful. Thank you.

Jump to this post

Hi, I was diagnosed with atypical lobular hyperplasia in my right breast. Had excisional biopsy to remove it on 12/30/22.Had genetic test done waiting for results and have an appointment with oncologist to see what she recommends.

REPLY
1 reply
rebecca55 | @rebecca55 | Jan 21, 2023
In reply to @rebecca55 "Did you have any signs that you had the LCIS?" + (show)
@rebecca55

Did you have any signs that you had the LCIS?

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No I didn’t

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